Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation

Research output

Research output per year 1992 2003 2004 2008 2009 2010 2011 2012 2013 2014 2015 2016 2017 2018 2019 2020 2021 2022 2023 2024

• 179135 Citations
• 1865 Article
• 120 Meeting abstract
• 116 Review article
• 73 Literature review
• 375 More
  • 72 Chapter
  • 69 Editorial
  • 69 Letter
  • 47 Poster abstract
  • 24 Report
  • 18 Book
  • 18 Comment/debate
  • 17 Other contribution
  • 16 Conference paper
  • 7 Meeting Abstract
  • 7 Book/Film/Article review
  • 3 Commissioned report
  • 3 Abstract
  • 3 Poster
  • 1 Scholarly edition
  • 1 Entry in encyclopedia/dictionary

Research output per year

Research output per year

Search results

• 2023

  Engaging with young people to improve research, services and workforce development: eye-YPAG and 'visually' workshops

  Tailor, V., Brady, LM., Miller, J., Bays, L., Zane, J., Nagel, G., Baker, H., Crosby-Nwaobi, R. & Dahlmann-Noor, A., 5 Oct 2023, In: BMJ Open Ophthalmology. 8, p. A6-A7

  Research output: Contribution to journal › Meeting abstract › peer-review

  Open Access

  • Research Service 100%
  • Roles 66%
  • Volunteering 40%
  • Training 40%
  • Statistics 33%
• 2018

  Botulinum toxin a in upper limb spasticity management: Baseline data from the upper limb international spasticity (ULIS)–III study: 12th World Congress of the International Society of Physical and Rehabilitation Medicine. Paris. 8-12 July 2018

  Turner-Stokes, L., Ashford, S., Jacinto, J., Fheodoroff, K., Maisonobe, P., Senturk, O. & Brashear, A., 2018, In: Annals of Physical and Rehabilitation Medicine. 61, p. e69-e70

  Research output: Contribution to journal › Meeting abstract › peer-review

• Relief of spasticity-related pain with botulinum neurotoxin-A (bont-A) in real life practice. Post-hoc analysis from a large international cohort series: 12th World Congress of the International Society of Physical and Rehabilitation Medicine. Paris. 8-12 July 2018

  Turner-Stokes, L., Jacinto, J., Fheodoroff, K., Maisonobe, P., Senturk, O. & Ashford, S., 2018, In: Annals of Physical and Rehabilitation Medicine. 61, p. e67-e68

  Research output: Contribution to journal › Meeting abstract › peer-review

  • Post-Hoc Analysis 100%
  • Spasticity 100%
  • Physical Medicine and Rehabilitation 100%
  • Patient 61%
  • Therapeutic Procedure 53%
• 2016

  Integrated upper limb spasticity management including botulinum toxin A (BoNT-A) on patient-centred goal attainment: Methodology for ULIS-III and initial goal-setting data: TOXINS 2017: Basic Science and Clinical Aspects of Botulinum and Other Neurotoxins

  Turner-Stokes, L., Balcaitiene, J., Ashford, S., Jacinto, J., Maisonobe, P. & Fheodoroff, K., 25 Dec 2016, In: Toxicon. 123, Supplement, p. S81

  Research output: Contribution to journal › Meeting abstract › peer-review
• 2015

  The Northwick Park Therapy Dependency Assessment (NPTDA) scale: A psychometric analysis from a large multicentre dataset

  Turner-Stokes, L., Alexandrescu, R., Sephton, K., Williams, H. & Siegert, R., 10 Jun 2015, In: Brain Injury. 28, 5-6, p. 696 1 p., 0488.

  Research output: Contribution to journal › Meeting abstract › peer-review
  2 Citations (Scopus)
• 2014

  Comprehending the inexplicable: qualitative accounts of black Caribbean and white british people severely affected by multiple sclerosis

  Koffman, J., Goddard, C., Silber, E., Burman, R., Shaw, P., Barnes, F., Speck, P. & Higginson, I., Mar 2014, In: BMJ Supportive & Palliative Care. 4 , Suppl 1, p. A20 1 p., P 013.

  Research output: Contribution to journal › Meeting abstract › peer-review

  • Caribbean 100%
  • Environmental Stress 100%
  • Viral Genetics 100%
  • Diseases 83%
  • Meaning 50%

• Creating guidance for the use of patient reported outcome measures (proms) in clinical palliative care

  van Vliet, LM., Harding, R., Bausewein, C., Payne, S., Higginson, IJ. & EUROIMPACT, Mar 2014, In: BMJ Supportive & Palliative Care. 4, 1, p. 113 1 p., P 023.

  Research output: Contribution to journal › Meeting abstract › peer-review

  • Symptomatic Treatment 100%
  • Patient-Reported Outcome 100%
  • Palliative Therapy 100%
  • Patient 25%
  • Clinical Practice 25%

• Integrating Preferences for End of Life Care in the Continuum of Cancer Care

  Gomes, B., Calanzani, N., Pinheiro, M. J., Sarmento, V. P., Ferreira, P. L., Daveson, B. A., Harding, R. & Higginson, I., Oct 2014, In: Psycho-Oncology. 23, s3, p. 38-39 2 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

  Open Access
• 2013

  Determinants of Healthcare Costs in the Last Year of Life

  Groeneveld, E. I., Murtagh, F. E. M., Kaloki, Y., Bausewein, C. & Higginson, I. J., Feb 2013, In: Journal of Pain and Symptom Management. 45, 2, p. 342-342 1 p., N/A.

  Research output: Contribution to journal › Meeting abstract › peer-review

• HYPERGLYCAEMIA WITHIN 14 DAYS OF LIVER TRANSPLANTATION PREDICTS NEW ONSET DIABETES AFTER TRANSPLANTATION (NODAT)

  Turner, A., Pierce, A., Farne, H., Kriese, S., Shawcross, D. L., Heaton, N. D. & Heneghan, M. A., Aug 2013, In: Gut. 62, p. A24-A24 1 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

• Improving team training in acute health care: critical synthesis of seven mixed methods studies.

  Siassakos, D., Fox, R., Bristowe, K., Angouri, J., Hambley, H. & Draycott, T. J., 2013, In: The Lancet. 381 (S1)

  Research output: Contribution to journal › Meeting abstract

• International Measurement of Cost Avoidance Through Specialist Palliative Care: A Universally Applicable Approach

  Cassel, J. B., Murtagh, F., Higginson, I. & Kerr, K., Feb 2013, In: Journal of Pain and Symptom Management. 45, 2, p. 343-344 3 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

• Is neuromuscular electrical stimulation (NMES) an acceptable and feasible exercise intervention for patients with non-small cell lung cancer (NSCLC) receiving palliative chemotherapy? Preliminary results from the NCRI NMES trial

  Byrne, A., Maddocks, M., Halliday, V., Chauhan, A., Taylor, V., Nelson, A., Sampson, C., Griffiths, G. & Wilcock, A., Jan 2013, In: Lung Cancer. 79, p. S46-S47 2 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

  28 Citations (Scopus)

• Measuring the Intensity, Cost and Duration of Palliative Care-Relevant Cases Among all Hospitalizations in Three US and UK Hospitals

  Cassel, J. B., Kerr, K., Yanni, L., Murtagh, F., Higginson, I., Myers, M., Day, T. & Adefisan, A., Feb 2013, In: Journal of Pain and Symptom Management. 45, 2, p. 342-343 3 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

• Senior clinician presence on labour ward and patient outcome: a multicentre mixed-methods study.

  Cornthwaite, K., Bristowe, K., Angouri, J., Hambly, H., Draycott, T. J., Fox, R. & Siassakos, D., 2013, In: BJOG. 120, s1, p. 592

  Research output: Contribution to journal › Meeting abstract
• 2012

  A Comparison of Functional Outcomes for Brain Injured and Non-Brain Injured Patients

  Williams, N., Turner-Stokes, L. & Ramdharry, G., 2012, In: Brain Injury. 26, 4-5, p. 317-317 1 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

• A UK pilot for a large international prospective cohort analysis of the use of Botulinum Toxin A (BoNT-A) in upper limb spasticity.

  Ashford, S., Williams, H. & Turner-Stokes, L., 2012, In: Physical Medicine & Rehabilitation . 2, 9, p. S190-S19

  Research output: Contribution to journal › Meeting abstract › peer-review

• Cognitive behavioural therapy (CBT) for panic and anxiety in chronic obstructive pulmonary disease - A systematic review

  Ramsenthaler, C., Siegert, R., Weatherall, M., Bausewein, C., Koffman, J., Higginson, I. & Simon, S. T., 2012, In: Palliative Medicine. 26, 6, p. OA29 1 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

• 'It's as though you itch to the bone': a qualitative study of the experiences and needs of patients with cutaneous T-cell lymphoma

  Radcliffe, E., Beynon, T., Harding, R., Orlowska, D., Child, F., Selman, L. & Whittaker, S. J., Jul 2012, In: British Journal of Dermatology. 167, p. 62-62 1 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

• Outcome of Patient Declined for Liver Transplantation; Should Prognostic Scores Guide Proactive Palliative Care Review?

  Kriese, S., Al-Freah, M. A., Maggs, J. R., Prentice, W. M., Agarwal, K., O'Grady, J. G., Heaton, N., Aluvihare, V., Suddle, A. & Heneghan, M. A., Oct 2012, In: Hepatology. 56, p. 1093A-1093A 1 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

• PHYSICAL INACTIVITY IS ASSOCIATED WITH MID-THIGH INTRAMUSCULAR FAT IN PATIENTS WITH COPD

  Maddocks, M., Shrikrishna, D., Vitoriano, S., Tanner, R. J., Natanek, S. A., Hart, N., Kemp, P. R., Moxham, J., Polkey, M. I. & Hopkinson, N. S., Dec 2012, In: Thorax. 67, p. A98-A98 1 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

  • Patient 100%
  • Obstructive Lung Disease 100%
  • Fat 100%
  • Chronic Obstructive Lung Disease 100%
  • Intramuscular Fat 100%
  8 Citations (Scopus)

• PLACE OF CANCER DEATHS IN ENGLAND, 2001-2010: TIME TRENDS AND DETERMINANTS

  Gao, W., Ho, Y., Verne, J., Glickman, M. & Higginson, I. J., Sept 2012, In: Journal of Epidemiology and Community Health. 66, p. A27-A27 1 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

  • Hospital 100%
  • Nursing Home 22%
  • End of Life Care 22%
  • Gender 11%
  • Health Care Cost 11%

• PREDICTORS OF MOOD IN AMYOTROPHIC LATERAL SCLEROSIS: PHYSICAL AND PSYCHOLOGICAL FACTORS

  Martin, N. H., Janssen, A., McCrone, P., Lyall, R., Landau, S., Dougherty, A., Sakel, M., Higginson, I., Shaw, C., Al-Chalabi, A., Leigh, P. N. & Goldstein, L. H., Oct 2012, In: Journal of Neurology, Neurosurgery and Psychiatry. 83, 10, 1 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

  • Mood 100%
  • Demographics 42%
  • Illness Perceptions 42%
  • Multiple Regression 28%
  • Mental Health 14%

• "Probably the Worst Cancer Death that I've Seen": A Qualitative Study of the Experiences and Needs of Health Care Professionals (HCPs) Caring for Patients with Cutaneous T-cell Lymphoma (CTCL)

  Radcliffe, E., Beynon, T., Whittaker, S., Orlowska, D., Child, F., Selman, L. & Harding, R., 2012, In: Journal of Palliative Care. 28, 3, p. 187-187 1 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

• PROJECTIONS OF HEALTHCARE COSTS IN THE LAST YEAR OF LIFE FOR OLDER CANCER PATIENTS IN EUROPEAN UNION MEMBER STATES (2008-2030)

  Petkova, H., Dawoud, D., McCrone, P. & Higginson, I. J., Sept 2012, In: Journal of Epidemiology and Community Health. 66, p. A9-A9 1 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

  • Patient 100%
  • Health Care Cost 100%
  • Europeans 100%
  • Annuals 85%
  • Inflation 26%

• Psychological Problems and their Impact on Carers in Diverse Long Term Neurological Conditions

  Jackson, D., Harris, J. & Turner-Stokes, L., 2012, In: Brain Injury. 26, 4-5, p. 691-691 1 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

• Towards Improving the Coordination of Care for People with Advanced Life-Threatening Diseases: A UK Mixed-Method Study

  Mason, B., Donaldson, A., Epiphaniou, E., Nanton, V., Daveson, B., Harding, R., Shipman, C., Higginson, I., Munday, D., Barclay, S., Boyd, K., Dale, J., Kendall, M., Worth, A. & Murray, S., 2012, In: Journal of Palliative Care. 28, 3, p. 195-196 2 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

• WHAT IS IMPORTANT TO THE QUALITY OF LIFE OF PEOPLE WITH MULTIPLE MYELOMA? IMPLICATIONS FOR THE DESIGN OF QUALITY OF LIFE QUESTIONNAIRES

  Osborne, T., Ramsenthaler, C., Higginson, I. J. & Ramsenthaler, C., Sept 2012, In: Journal of Epidemiology and Community Health. 66, p. A54-A55 2 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

  • Quality of Life 100%
  • Patient 23%
  • Clinical Practice 11%
  • Family 5%
  • Hospital 5%
• 2011

  "At last I had the chance to talk about it" - acceptability and experiences of severly ill patients and their carers with a qualitative interview study

  Kannenberg-Otremba, B., Otremba, B., Prenzel, R., Reichert, D., Scheve, C., Bausewein, C. & Simon, S. T., 2011, In: ONKOLOGIE. 34, p. 51 - 51 1 p.

  Research output: Contribution to journal › Meeting abstract

• Designing a preliminary adaptive study to inform a biomarker trial in Psoriasis

  Prevost, T. & Bowden, J., 13 Dec 2011, In: Trials. 12, S1, A17.

  Research output: Contribution to journal › Meeting abstract › peer-review

  Open Access

• FATIGUE IN IDIOPATHIC INFLAMMATORY MYOPATHIES IS NOT CAUSED BY PERIPHERAL MUSCLE FATIGABILITY: STUDIES OF NON-VOLITIONAL QUADRICEPS MUSCLE ENDURANCE USING REPETITIVE TRANSCUTANEOUS STIMULATION

  Campbell, R. C., Rafferty, G., Scott, D. L., Reilly, C., Ward, K. & Gordon, P. A., 2011, In: Rheumatology. 50, p. 68 - 68 1 p.

  Research output: Contribution to journal › Meeting abstract

• SYMPTOMATIC TREATMENT OF INTERFERON-ALPHA-INDUCED DEPRESSION: A SYSTEMATIC REVIEW

  Baraldi, S., Hepgul, N., Mondelli, V., Pariante, C. M. & Mondelli, V., Aug 2011, In: Journal of Psychopharmacology. 25, 8, p. A20-A20 1 p.

  Research output: Contribution to journal › Meeting abstract › peer-review

• THE ASSESSMENT OF HEALTH RELATED QUALITY OF LIFE IN INTERSTITIAL LUNG DISEASE WITH THE KING'S BRIEF INTERSTITIAL LUNG DISEASE QUESTIONNAIRE (K-BILD)

  Patel, A. S., Siegert, R., Brignall, K., Keir, G., Bajwah, S., Desai, S. R., Wells, A. U., Higginson, I. J. & Birring, S. S., 2011, In: Thorax. 66, p. A61 - A61

  Research output: Contribution to journal › Meeting abstract

• THE ASSESSMENT OF HEALTH RELATED QUALITY OF LIFE IN SARCOIDOSIS WITH THE KING'S SARCOIDOSIS QUESTIONNAIRE (KSQ)

  Patel, A. S., Siegert, R., Creamer, D., Larkin, G., Gray, B., Wells, A. U., Higginson, I. J. & Birring, S. S., 2011, In: Thorax. 66, p. A102 - A103

  Research output: Contribution to journal › Meeting abstract

• THE NEEDS AND EXPERIENCES OF PROGRESSIVE IDIOPATHIC FIBROTIC INTERSTITIAL LUNG DISEASE PATIENTS, INFORMAL CAREGIVERS AND HEALTH PROFESSIONALS: A QUALITATIVE STUDY

  Bajwah, S., Koffman, J., Higginson, I. J., Ross, J. R., Wells, A. U., Birring, S. S., Patel, A. & Riley, J., 2011, In: Thorax. 66, p. A103 - A103

  Research output: Contribution to journal › Meeting abstract
• 2010

  A Comparative Two-Country Study to Determine Public Meanings and Priorities Regarding Provision of End-of-Life Care

  Daveson, B. A., Bechinger-English, D., Bausewein, C., Harding, R., Simon, S., Higginson, I. & Gomes, B., 2010, In: Journal of Palliative Care. 26, 3, p. 234 - 235 2 p.

  Research output: Contribution to journal › Meeting abstract

• An Evidence-Based Algorithm to Determine the Selection of a Corresponding Analytical Method for Cognitive Interview Data within Palliative Care Research

  Daveson, B. A., Harding, R., Gomes, B. & Higginson, I., 2010, In: Journal of Palliative Care. 26, 3, p. 214 - 214 1 p.

  Research output: Contribution to journal › Meeting abstract

• A NEW MODEL OF IMPROVED END OF LIFE SUPPORT FOR FAMILIES OF DYING PATIENTS LEADS TO BETTER PROVISION FOR ALL PATIENTS AND RELATIVES

  Leonard, S., Hopkins, P., Rumble, C., Shipman, C. & Higginson, I., 2010, In: Intensive Care Medicine. 36, p. S156 - S156

  Research output: Contribution to journal › Meeting abstract

• A Pan-European survey of public preferences and priorities for end of life care

  Gomes, B., Calanzani, N., Bechinger-English, D., Bausewein, C., Ceulemans, L., Deliens, L., Ferreira, P. L., Gysels, M., Menaca, A., Toscani, F., Cohen, J., Hall, S., Murtagh, F., Daveson, B., Harding, R. & Higginson, I. J., 2010, In: European journal of public health. 20, p. 79 - 80 2 p.

  Research output: Contribution to journal › Meeting abstract

• Core attitudes in palliative care: acceptance as the key element

  Ramsenthaler, C., Geiss-Mayer, G., Bausewein, C. & Simon, S. T., Jun 2010, In: Palliative Medicine. 24, 4 suppl, p. S35-S35 1 p., 105.

  Research output: Contribution to journal › Meeting abstract › peer-review

• Der Begriff „Krise“ bei Patienten mit fortgeschrittenen Erkrankungen – eine systematische Literaturanalyse

  Translated title of the contribution: The term "crisis" in patients with advanced disease - a systematic literature reviewRamsenthaler, C., Scheve, C., Bausewein, C. & Simon, S. T., 1 Sept 2010, In: Zeitschrift für Palliativmedizin. 11, 1 p., V12_1.

  Research output: Contribution to journal › Meeting abstract › peer-review

• IMPACT OF GENETIC FEEDBACK ON ADHERENCE TO NICOTINE REPLACEMENT THERAPY: THE PERSONALISED EXTRA TREATMENT (PET) TRIAL

  Marteau, T. M., Munafo, M. R., Prevost, A. T., Aveyard, P., Johnstone, E. C., Armstrong, D., Kinmonth, A-L. & Sutton, S. R., 2010, In: International Journal of Behavioral Medicine. 17, p. 119 - 119 1 p.

  Research output: Contribution to journal › Meeting abstract

• What influences place of death for people with non-malignant conditions?

  Murtagh, F., Bausewein, C., Gomes, B., Petkova, H. & Higginson, I. J., 2010, In: European journal of public health. 20, p. 80 - 80 1 p.

  Research output: Contribution to journal › Meeting abstract
• 2009

  Factors influencing use/non-use of respite/replacement care by carers of adults with acquired brain injury. Australian Society for the Study of Brain Impairment Conference (ASSBI) Sydney.

  Turner-Stokes, L. F. & Jackson, D. M., 2009, In: Brain Impairment. 10, 1

  Research output: Contribution to journal › Meeting abstract › peer-review

• Maintaining Dignity at the End of Life: The Views of Older People in Care Homes

  Hall, S., Longhurst, S. & Higginson, I. J., 2009, In: Psycho-Oncology. 18, 3, p. 327 - 327 1 p.

  Research output: Contribution to journal › Meeting abstract

• The symptom prevalence and burden in HIV-1-infected adults in rural Uganda

  Wakeham, K., Harding, R., Parkes, R., Bamukama, D., Levin, J., Muzaaya, G., Kamali, A. & Lalloo, D., 2009, In: HIV MEDICINE. 10, p. 43 - 43 1 p.

  Research output: Contribution to journal › Meeting abstract
• 2008

  Assessment of pain intensity using a set of pain emoticons: preliminary normative data: American Academy of Physical and Rehabilitation Medicine. 69th Annual assembly. San Diego

  Turner-Stokes, L. F., 2008, In: Archives of Physical Medicine and Rehabilitation.

  Research output: Contribution to journal › Meeting abstract

• Dialysis or not? Considerations for conservative management

  Murtagh, F. E. M., 2008, In: Blood Purification. 26, 5, p. 432 - 432 1 p.

  Research output: Contribution to journal › Meeting abstract

• Impact of informed choice invitations on uptake of screening for diabetes: A randomised controlled trial

  Mann, E., Sutton, S., Kinmonth, A. L., Prevost, T., Griffin, S. & Marteau, T., 2008, In: Psychology & health. 23, p. 41 - 41 1 p.

  Research output: Contribution to journal › Meeting abstract

• Maintaining dignity at the end of life: The views of older people in care homes

  Hall, S., Longhurst, S. & Higginson, I. J., 2008, In: Psychology & health. 23, p. 136 - 137 2 p.

  Research output: Contribution to journal › Meeting abstract