Research output per year
Research output per year
- 1 - 50 out of 74 results
Search results
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2024
A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research
Mitchell, S., Turner, N., Fryer, K., Beng, J., Ogden, M. E., Watson, M., Gardiner, C., Bayly, J., Sleeman, K. E. & Evans, C. J., 8 Feb 2024, In: Research involvement and engagement. 10, 1, 19.Research output: Contribution to journal › Article › peer-review
Open Access2 Citations (Scopus) -
Co-Designing a Palliative Dementia Care Framework to Support Holistic Assessment and Decision Making: The EMBED-Care Framework
EMBED‐Care Team, 2 Aug 2024, In: Health expectations : an international journal of public participation in health care and health policy. 27, 5, p. e70011 e70011.Research output: Contribution to journal › Article › peer-review
Open Access -
Co-design of the EMBED-Care Framework as an intervention to enhance shared decision-making for people affected by dementia and practitioners, comprising holistic assessment, linked with clinical decision support tools: A qualitative study
Aworinde, J., Evans, C. J., Gillam, J., Ramsenthaler, C., Davies, N., Ellis-Smith, C. & EMBED-Care Programme, Feb 2024, In: Health expectations : an international journal of public participation in health care and health policy. 27, 1, e13987.Research output: Contribution to journal › Article › peer-review
Open Access1 Citation (Scopus) -
Comprehensive Geriatric Assessment for people with both COPD and frailty starting pulmonary rehabilitation: a mixed-methods feasibility trial
Brighton, L. J., Evans, C., Farquhar, M., Bristowe, K., Kata, A., Higman, J., Ogden, M., Nolan, C. M., Yi, D. H., Gao, W., Koulopoulou, M., Hasan, S., Ingram, K., Clarke, S. F., Parmar, K., Baldwin, E., Steves, CJ., Man, W. DC. & Maddocks, M., 1 Jul 2024, In: ERJ Open Research. 10, 4, 00774-2023.Research output: Contribution to journal › Article › peer-review
Open Access -
Exploring the contextual assumptions, interventions and outcomes of digital advance care planning systems: A theory of change approach to understand implementation and evaluation
Bradshaw, A., Allsop, M. J., Birtwistle, J., Evans, C. J., Relton, S. D., Richards, S. H., Twiddy, M., Foy, R., Millares Martin, P., Yardley, S. & Sleeman, K. E., 21 Sept 2024, (E-pub ahead of print) In: Palliative Medicine. p. 2692163241280134Research output: Contribution to journal › Article › peer-review
Open Access -
Factors Influencing the Implementation of Digital Advance Care Planning: Qualitative Interview Study
Bradshaw, A., Birtwistle, J., Evans, C. J., Sleeman, K. E., Richards, S., Foy, R., Millares Martin, P., Carder, P., Allsop, M. J. & Twiddy, M., 16 Aug 2024, In: Journal of Medical Internet Research. 26, p. e50217 e50217.Research output: Contribution to journal › Article › peer-review
Open Access -
Integration of primary care and palliative care services to improve equality and equity at the end-of-life: Findings from realist stakeholder workshops
Mitchell, S., Turner, N., Fryer, K., Aunger, J., Beng, J., Couchman, E., Leach, I., Bayly, J., Gardiner, C., Sleeman, K. E. & Evans, C. J., 11 May 2024, (E-pub ahead of print) In: Palliative Medicine. p. 2692163241248962Research output: Contribution to journal › Article › peer-review
Open Access1 Citation (Scopus) -
Symptom burden, service use and care dissatisfaction among older adults with cancer, cardiovascular disease, respiratory disease, dementia and neurological disease during the last 3 months before death: A pooled analysis of mortality follow-back surveys
Miyashita, M., Evans, C. J., Yi, D., Gomes, B. & Gao, W., 21 May 2024, In: Palliative Medicine. 38, 5, p. 582-592 11 p.Research output: Contribution to journal › Article › peer-review
Open Access -
The influence of care home registration type and size on senior care leader's confidence to provide palliative and end-of-life care: an explanatory sequential mixed methods study
Tunnard, I., Sleeman, K. E., Bradshaw, A., Bone, A. E. & Evans, C. J., 22 Aug 2024, In: BMC Palliative Care. 23, 1, p. 213 213.Research output: Contribution to journal › Article › peer-review
Open Access -
2023
A population-based retrospective cohort study of end-of-life emergency department visits by people with dementia: multilevel modelling of individual- and service-level factors using linked data
Williamson, L. E., Leniz, J., Chukwusa, E., Evans, C. J. & Sleeman, K. E., 1 Mar 2023, In: Age and Ageing. 52, 3, afac332.Research output: Contribution to journal › Article › peer-review
Open Access4 Citations (Scopus) -
Co-design of a theory-based implementation plan for a holistic eHealth assessment and decision support framework for people with dementia in care homes
Gillam, J., Evans, C., Aworinde, J., Ellis-Smith, C., Ross, J. & Davies, N., 28 Nov 2023, (E-pub ahead of print) In: Digital Health. 9Research output: Contribution to journal › Article › peer-review
Open Access1 Citation (Scopus) -
Exploring access to community care and emergency department use among people with dementia: A qualitative interview study with people with dementia, and current and bereaved caregivers
Williamson, L. E., Sleeman, K. E. & Evans, C. J., 24 Jul 2023, In: International Journal of Geriatric Psychiatry. 38, 7, e5966.Research output: Contribution to journal › Article › peer-review
Open Access1 Citation (Scopus) -
Family carers’ administration of injectable medications at the end-of-life: a service evaluation of a novel intervention
O'Hara, L., Evans, C. & Bowers, B., 2 Jun 2023, In: British Journal of Community Nursing. 28, 6, p. 284-292 9 p.Research output: Contribution to journal › Article › peer-review
Open Access -
Frailty and mortality risk in COPD: a cohort study comparing the Fried Frailty Phenotype and Short Physical Performance Battery
Brighton, L. J., Nolan, C. M., Barker, R. E., Patel, S., Walsh, J. A., Polgar, O., Kon, S. S. C., Gao, W., Evans, C., Maddocks, M. & Man, W. D. -C., 20 Jan 2023, In: International journal of chronic obstructive pulmonary disease.Research output: Contribution to journal › Article › peer-review
Open AccessFile7 Citations (Scopus)29 Downloads (Pure) -
Provision of palliative and end-of-life care in UK care homes during the COVID-19 pandemic: A mixed methods observational study with implications for policy
Bradshaw, A., Ostler, S., Goodman, C., Batkovskyte, I., Ellis-Smith, C., Tunnard, I., Bone, A. E., Barclay, S., Vernon, M., Higginson, I. J., Evans, C. J. & Sleeman, K. E., 14 Mar 2023, In: Frontiers in Public Health. 11, 1058736.Research output: Contribution to journal › Article › peer-review
Open Access4 Citations (Scopus) -
2022
Formal and Informal Costs of Care for People With Dementia Who Experience a Transition to Hospital at the End of Life: A Secondary Data Analysis
Leniz, J., Evans, C. J., Yi, D., Bone, A. E., Higginson, I. J. & Sleeman, K. E., 9 Jul 2022, In: Journal Of The American Medical Directors Association. 23, 12, p. 2015-2022.e5Research output: Contribution to journal › Article › peer-review
Open Access3 Citations (Scopus) -
"I wanna live and not think about the future" what place for advance care planning for people living with severe multiple sclerosis and their families? A qualitative study
Koffman, J., Penfold, C., Cottrell, L., Farsides, B., Evans, C. J., Burman, R., Nicholas, R., Ashford, S. & Silber, E., 26 May 2022, In: PLoS ONE. 17, 5 May, p. e0265861 e0265861.Research output: Contribution to journal › Article › peer-review
Open Access10 Citations (Scopus) -
The most important components of out-of-hours community care for patients at the end of life: A Delphi study of healthcare professionals' and patient and family carers' perspectives
Goodrich, J., Tutt, L., Firth, A. M., Evans, C. J., Murtagh, F. E. & Harding, R., Sept 2022, In: Palliative medicine. 36, 8, p. 1296-1304 9 p., 2692163221106284.Research output: Contribution to journal › Article › peer-review
Open Access5 Citations (Scopus) -
2021
Characteristics and mortality rates among patients requiring intermediate care: a national cohort study using linked databases
SPACE, Dec 2021, In: BMC Medicine. 19, 1, p. 48 48.Research output: Contribution to journal › Article › peer-review
Open Access8 Citations (Scopus) -
Common elements of service delivery models that optimise quality of life and health service use among older people with advanced progressive conditions: a tertiary systematic review
Bayly, J., Bone, A. E., Ellis-Smith, C., Tunnard, I., Yaqub, S., Yi, D., Nkhoma, K. B., Cook, A., Combes, S., Bajwah, S., Harding, R., Nicholson, C., Normand, C., Ahuja, S., Turrillas, P., Kizawa, Y., Morita, T., Nishiyama, N., Tsuneto, S., Ong, P., & 3 others, Nov 2021, In: BMJ Open. 11, 12, e048417.Research output: Contribution to journal › Article › peer-review
Open Access8 Citations (Scopus) -
Community-based short-term integrated palliative and supportive care reduces symptom distress for older people with chronic noncancer conditions compared with usual care: a randomised controlled single-blind mixed method trial
Evans, C., Bone, A., Yi, D. H., Gao, W., Morgan, M., Taherzadeh, S., Maddocks, M., Wright, J., Lindsay, F., Bruni, C., Harding, R., Sleeman, K., Gomes, B. & Higginson, I., 1 Aug 2021, In: International Journal of Nursing Studies. 120, 103978.Research output: Contribution to journal › Article › peer-review
Open Access28 Citations (Scopus) -
Culture in the spotlight—cultural adaptation and content validity of the integrated palliative care outcome scale for dementia: A cognitive interview study
Hodiamont, F., Hock, H., Ellis-Smith, C., Evans, C., de Wolf-Linder, S., Jünger, S., Diehl-Schmid, J., Burner-Fritsch, I. & Bausewein, C., May 2021, In: Palliative Medicine. 35, 5, p. 962-971 10 p.Research output: Contribution to journal › Article › peer-review
Open Access11 Citations (Scopus) -
How many people will need palliative care in Scotland by 2040? A mixed method study of projected palliative care need and recommendations for service delivery
Finucane, A., Bone, A., Etkind, S., Carr, D., Meade, R., Munoz-Arroyo, R., Moine, S., Iyayi-Igbinovia, A., Evans, C., Higginson, I. & Murray, S., 3 Feb 2021, In: BMJ Open. 11, 2, e041317.Research output: Contribution to journal › Article › peer-review
Open Access22 Citations (Scopus) -
Influences on emergency department attendance among frail older people with deteriorating health: a multicentre prospective cohort study
Bone, A., Evans, C., Henson, L., Etkind, S. N. & Higginson, I., 23 Feb 2021, (Accepted/In press) In: Public Health.Research output: Contribution to journal › Article › peer-review
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Integrating Comprehensive Geriatric Assessment for people with COPD and frailty starting pulmonary rehabilitation: the Breathe Plus feasibility trial protocol
Brighton, L. J., Evans, C., Farquhar, M., Bristowe, K., Kata, A., Higman, J., Ogden, M., Nolan, C. M., Yi, D. H., Gao, W., Koulopoulou, M., Hasan, S., Steves, C., Man, W. DC. & Maddocks, M., 29 Mar 2021, In: ERJ Open Research. 7Research output: Contribution to journal › Article › peer-review
Open AccessFile32 Downloads (Pure) -
Managing clinical uncertainty in older people towards the end of life: a systematic review of person-centred tools
Ellis-Smith, C., Tunnard, I., Dawkins, M., Gao, W., Higginson, I. & Evans, C., 22 Oct 2021, In: BMC Palliative Care. 20, 1, p. 168 1 p., 10.1186/s12904-021-00845-9.Research output: Contribution to journal › Article › peer-review
Open Access11 Citations (Scopus) -
Preferences and priorities to manage clinical uncertainty for older people with frailty and multimorbidity: a discrete choice experiment and stakeholder consultations
Tunnard, I., Yi, D., Ellis-Smith, C., Dawkins, M., Higginson, I. J. & Evans, C. J., 14 Oct 2021, In: BMC Geriatrics . 21, 1, 553.Research output: Contribution to journal › Article › peer-review
Open Access5 Citations (Scopus) -
Priorities and opportunities for palliative and end of life care in United Kingdom health policies: a national documentary analysis
Sleeman, K. E., Timms, A., Gillam, J., Anderson, J. E., Harding, R., Sampson, E. L. & Evans, C. J., 14 Jul 2021, (E-pub ahead of print) In: BMC Palliative Care. 20, 1, 108.Research output: Contribution to journal › Article › peer-review
Open AccessFile19 Citations (Scopus)91 Downloads (Pure) -
Timely short-term specialized palliative care service intervention for older people with frailty and their family carers in primary care: Development and modelling of the frailty+ intervention using theory of change
de Nooijer, K., Pivodic, L., Van Den Noortgate, N., Pype, P., Evans, C. & Van den Block, L., 22 Aug 2021, In: Palliative Medicine. 35, 10, p. 1961-1974 14 p.Research output: Contribution to journal › Article › peer-review
Open Access6 Citations (Scopus) -
2020
Effect of Short-term Integrated Palliative Care on Patient-Reported Outcomes Among Patients Severely Affected With Long-term Neurological Conditions: A Randomized Clinical Trial
OPTCARE Neuro Trial Investigators, Gao, W., Wilson, R., Hepgul, N., Yi, D., Evans, C., Bajwah, S., Crosby, V., Wilcock, A., Lindsay, F., Byrne, A., Young, C., Groves, K., Smith, C., Burman, R., Chaudhuri, K. R., Silber, E. & Higginson, I. J., 28 Aug 2020, In: JAMA Network open. 3, 8, p. e2015061Research output: Contribution to journal › Article › peer-review
Open Access30 Citations (Scopus) -
Feasibility and acceptability of a culturally adapted advance care planning intervention for people living with advanced cancer and their families: A mixed methods study
Lin, C-P., Evans, C. J., Koffman, J., Chen, P-J., Hou, M-F. & Harding, R., 1 May 2020, In: Palliative Medicine. 34, 5, p. 651-666 16 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile19 Citations (Scopus)196 Downloads (Pure) -
Immediate versus delayed short-term integrated palliative care for advanced long-term neurological conditions: the OPTCARE Neuro RCT
Hepgul, N., Wilson, R., Yi, D. H., Evans, C., Bajwah, S., Higginson, I. & Gao, W., Sept 2020, In: Health Services And Delivery Research.Research output: Contribution to journal › Article › peer-review
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Implementation of a complex intervention to improve care for patients whose situations are clinically uncertain in hospital settings: a multi-method study using normalisation process theory
Johnson, H., Yorganci, E., Evans, C., Barclay, S., Murtagh, F. E. M., Yi, D. H., Gao, W., Sampson, E. L., Droney, J., Farquhar, M. & Koffman, J., 16 Sept 2020, In: PloS one. 15, 9 September, p. e0239181 e0239181.Research output: Contribution to journal › Article › peer-review
Open AccessFile4 Citations (Scopus)30 Downloads (Pure) -
Palliative care and the management of common distressing symptoms in advanced cancer: Pain, breathlessness, nausea and vomiting, and fatigue
Henson, L., Maddocks, M., Evans, C., Davidson, M., Hicks, S. & Higginson, I., 20 Mar 2020, In: Journal of Clinical Oncology. 38, 9, p. 905-914 10 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile159 Citations (Scopus)135 Downloads (Pure) -
Palliative Long-Term Abdominal Drains Versus Large Volume Paracentesis in Refractory Ascites Due to Cirrhosis (REDUCe Study): Qualitative Outcomes
Cooper, M., Pollard, A., Pandey, A., Bremner, S., Macken, L., Evans, C. J., Austin, M., Parnell, N., Steer, S., Thomson, S., Hashim, A., Mason, L. & Verma, S., 18 Dec 2020, (E-pub ahead of print) In: Journal of pain and symptom management.Research output: Contribution to journal › Article › peer-review
15 Citations (Scopus) -
Patient and public involvement in palliative care research: What works, and why? A qualitative evaluation
Johnson, H., Ogden, M., Brighton, L. J., Etkind, S. N., Oluyase, A. O., Chukwusa, E., Yu, P., de Wolf-Linder, S., Smith, P., Bailey, S., Koffman, J. & Evans, C. J., 11 Sept 2020, (E-pub ahead of print) In: Palliative medicine. p. 269216320956819Research output: Contribution to journal › Article › peer-review
Open AccessFile30 Citations (Scopus)71 Downloads (Pure) -
Processes of consent in research for adults with impaired mental capacity nearing the end of life: systematic review and transparent expert consultation (MORECare_Capacity statement)
MORECare_Capacity, Evans, C. J., Yorganci, E., Lewis, P., Koffman, J., Stone, K., Tunnard, I., Wee, B., Bernal, W., Hotopf, M. & Higginson, I. J., Jul 2020, In: BMC Medicine. 18, 1, 221.Research output: Contribution to journal › Article › peer-review
Open AccessFile23 Citations (Scopus)141 Downloads (Pure) -
Randomised clinical trial: palliative long-term abdominal drains vs large-volume paracentesis in refractory ascites due to cirrhosis
Macken, L., Bremner, S., Gage, H., Touray, M., Williams, P., Crook, D., Mason, L., Lambert, D., Evans, C. J., Cooper, M., Timeyin, J., Steer, S., Austin, M., Parnell, N., Thomson, S. J., Sheridan, D., Wright, M., Isaacs, P., Hashim, A. & Verma, S., 1 Jul 2020, In: Alimentary Pharmacology & Therapeutics. 52, 1, p. 107-122 16 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile44 Citations (Scopus)143 Downloads (Pure) -
The Efficacy of Psychological Interventions on Health-Related Quality of Life for Patients with Heart Failure and Depression: A Systematic Review
Helal, S. I., Lee, G., Evans, C. & Grealish, A., 29 Dec 2020, (E-pub ahead of print) In: Journal of Cardiovascular Nursing. Publish Ahead of PrintResearch output: Contribution to journal › Article › peer-review
8 Citations (Scopus) -
Understanding usual care in randomised controlled trials of complex interventions: A multi-method approach
Yorganci, E., Evans, C. J., Johnson, H., Barclay, S., Murtagh, F. E., Yi, D., Gao, W., Pickles, A. & Koffman, J., 1 May 2020, In: Palliative Medicine. 34, 5, p. 667-679 13 p., 269216320905064.Research output: Contribution to journal › Article › peer-review
Open AccessFile19 Citations (Scopus)186 Downloads (Pure) -
2019
A collaborative approach in dementia care to improve clinical effectiveness and priorities for research through audit
Kinley, J., Ellis-Smith, C., Hurt, M., McIvor, K. & Evans, C. J., Dec 2019, In: International Journal of Palliative Nursing. 25, 12, p. 588-595 8 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Citation (Scopus)227 Downloads (Pure) -
Effects of an advance care planning educational programme intervention on the end-of-life care attitudes of multidisciplinary practitioners at an acute hospital: A pre- and post-study
Hamayoshi, M., Goto, S., Matsuoka, C., Kono, A., Miwa, K., Tanizawa, K., Evans, C. & Ikenaga, M., 1 Oct 2019, In: Palliative Medicine. 33, 9, p. 1158-1165 8 p.Research output: Contribution to journal › Article › peer-review
12 Citations (Scopus) -
Emotional labour in palliative and end-of-life care communication: A qualitative study with generalist palliative care providers
Brighton, L. J., Selman, L. E., Bristowe, K., Edwards, B., Koffman, J. & Evans, C. J., Mar 2019, In: Patient Education and Counseling. 102, 3, p. 494-502 9 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile34 Citations (Scopus)1179 Downloads (Pure) -
Empowering Better End-of-Life Dementia Care (EMBED-Care): A mixed methods protocol to achieve integrated person-centred care across settings
Sampson, E. L., Anderson, J., Candy, B., Davies, N., Ellis-Smith, C., Gola, A., Harding, R., Kenten, C., Kupeli, N., Mead, S., Moore, K. J., Omar, R. Z., Sleeman, K. E., Stewart, R., Ward, J., Warren, J. & Evans, C. J., 18 Dec 2019, (E-pub ahead of print) In: International Journal of Geriatric Psychiatry.Research output: Contribution to journal › Article › peer-review
Open AccessFile17 Citations (Scopus)103 Downloads (Pure) -
Managing uncertain recovery for patients nearing the end of life in hospital: a mixed-methods feasibility cluster randomised controlled trial of the AMBER care bundle
Koffman, J., Yorganci, E., Yi, D., Gao, W., Murtagh, F., Pickles, A., Barclay, S., Johnson, H., Wilson, R., Sampson, L., Droney, J., Farquhar, M., Prevost, T. & Evans, C. J., 16 Aug 2019, In: Trials. 20, 1, p. 506 506.Research output: Contribution to journal › Article › peer-review
Open Access18 Citations (Scopus) -
Patterns of emergency department attendance among older people in the last three months of life and factors associated with frequent attendance: a mortality follow-back survey
BUILDCARE study, 1 Sept 2019, In: Age and Ageing. 48, 5, p. 676-683 8 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile11 Citations (Scopus)149 Downloads (Pure) -
The impact of population ageing on end-of-life care in Scotland: projections of place of death and recommendations for future service provision
Finucane, A., Bone, A. E., Evans, C. J., Gomes Da Silva, B. O., Meade, R., Higginson, I. J. & Murray, S., 12 Dec 2019, In: BMC Palliative Care. 18, 1, 112.Research output: Contribution to journal › Article › peer-review
Open Access35 Citations (Scopus) -
What influences patients' decisions regarding palliative care in advance care planning discussions? Perspectives from a qualitative study conducted with advanced cancer patients, families and healthcare professionals
Lin, C-P., Evans, C. J., Koffman, J., Sheu, S-J., Hsu, S-H. & Harding, R., 1 Dec 2019, In: Palliative Medicine. 33, 10, p. 1299-1309 11 p., 269216319866641.Research output: Contribution to journal › Article › peer-review
40 Citations (Scopus) -
Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique
de Wolf-Linder, S., Dawkins, M., Wicks, F., Pask, S., Eagar, K., Evans, C. J., Higginson, I. J. & Murtagh, F. E. M., 1 Sept 2019, In: Palliative Medicine. 33, 8, p. 1058-1068 11 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile24 Citations (Scopus)184 Downloads (Pure) -
2018
A framework for complexity in palliative care: A qualitative study with patients, family carers and professionals
Pask, S., Pinto, C., Bristowe, K., Van Vliet, L., Nicholson, C., Evans, C. J., George, R., Bailey, K., Davies, J. M., Guo, P., Daveson, B. A., Higginson, I. J. & Murtagh, F. E., 19 Feb 2018, (E-pub ahead of print) In: Palliative Medicine. 026921631875762.Research output: Contribution to journal › Article › peer-review
Open AccessFile89 Citations (Scopus)417 Downloads (Pure)