Parents' and children's communication about inherited genetic conditions and the associated genetic risk

Project: Research

Project Details


In families affected by inherited genetic conditions (IGCs), many parents struggle to explain and discuss the risk
implications with their children. This has serious repercussions for parents’, children’s and young people’s mental
health and their family relationship. However, little work has focused on the social psychological impacts of IGCs
on families. The programme grant will undertake the first comprehensive set of large-scale studies to examine
the outcomes of children’s and young people’s learning about IGC, and provide the opportunity to develop and
test the effectiveness of new interventions to improve family communication.
Effective start/end date1/01/201330/11/2014

Collaborative partners

  • King's College London (lead)
  • Cardiff University
  • Central Manchester University Hospitals NHS Foundation Trust
  • Genetic Alliance
  • GSTT Guy's and St Thomas' NHS Foundation Trust
  • University of Manchester


  • NIHR National Institute For Health & Care Research: £2,130.00
  • NIHR National Institute For Health & Care Research: £74,337.00


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