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A co-design study to develop supportive interventions to improve psychological and social adaptation among adults with new-onset type 1 diabetes in Denmark and the UK

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Mette Due-Christensen, Lene Eide Joensen, Sophie Sarre, Ewa Romanczuk, Julie Lindberg Wad, Rita Forde, Glenn Robert, Ingrid Willaing, Angus Forbes

Original languageEnglish
Article numbere051430
Number of pages23
JournalBMJ Open
Volume11
Issue number11
Early online date2 Nov 2021
DOIs
Accepted/In press30 Sep 2021
E-pub ahead of print2 Nov 2021
Published2 Nov 2021

Bibliographical note

Funding Information: Funding This project is funded by the National Institute for Health Research (NIHR) under its Research for Patient Benefit (RfPB) Programme (Grant Reference Number PB-PG-0317-20012). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care. The work presented in this article is also supported by Novo Nordisk Foundation. Grant numbers NNF17OC0028274 and NNF18OC0052083. Foundation of European Nurses in Europe (FEND) has also supported the work. Grant number N/A. Funding Information: This project is funded by the National Institute for Health Research (NIHR) under its Research for Patient Benefit (RfPB) Programme (Grant Reference Number PB-PG-0317-20012). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care. The work presented in this article is also supported by Novo Nordisk Foundation. Grant numbers NNF17OC0028274 and NNF18OC0052083. Foundation of European Nurses in Europe (FEND) has also supported the work. Grant number N/A. Publisher Copyright: ©

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King's Authors

Abstract

Objective To develop supportive interventions for adults with new-onset type 1 diabetes (T1D) to facilitate positive adaptive strategies during their transition into a life with diabetes. Design The study used a co-design approach informed by Design Thinking to stimulate participants' reflections on their experiences of current care and generate ideas for new supportive interventions. Visual illustrations were used to depict support needs and challenges. Initial discussions of these needs and challenges were facilitated by researchers and people with diabetes in workshops. Data comprising transcribed audio recordings of the workshop discussions and materials generated during the workshops were analysed thematically. Settings Specialised diabetes centres in Denmark and the United Kingdom. Participants Adults with new-onset T1D (n=24) and healthcare professionals (HCPs) (n=56) participated in six parallel workshops followed by four joint workshops with adults (n=29) and HCPs (n=24) together. Results The common solution prioritised by both adults with new-onset T1D and HCP participants was the development of an integrated model of care addressing the psychological and social elements of the diagnosis, alongside information on diabetes self-management. Participants also indicated a need to develop the organisation, provision and content of care, along with the skills HCPs need to optimally deliver that care. The co-designed interventions included three visual conversation tools that could be used flexibly in the care of adults with new-onset T1D to support physical, psychological and social adaptation to T1D. Conclusion This co-design study has identified the care priorities for adults who develop T1D, along with some practical conversational tools that may help guide HCPs in attending to the disruptive experience of the diagnosis and support adults in adjusting into a life with diabetes.

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