A framework for remotely enabled co-design with young people: its development and application with neurodiverse children and their caregivers

Anna Charlotte Morris; Stephen Douch; Teodora Popnikolova; Chris McGinley; Faith Matcham; Edmund Sonuga-Barke; Johnny Downs

doi:10.3389/fpsyt.2024.1432620

A framework for remotely enabled co-design with young people: its development and application with neurodiverse children and their caregivers

Anna Charlotte Morris^*, Stephen Douch, Teodora Popnikolova, Chris McGinley, Faith Matcham, Edmund Sonuga-Barke, Johnny Downs

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

1 Citation (Scopus)

Abstract

Introduction: This paper describes an innovative Framework for Remotely Enabled Co-Design with Young people (FREDY), which details an adaptable four-stage process for generating design concepts with children and other key stakeholders in a naturalistic and inclusive way. Methods: Recommendations from existing patient engagement and design methodologies were combined to provide research teams with procedures to capture and analyse end-user requirements rapidly. Resulting insights were applied through iterative design cycles to achieve accelerated and user-driven innovation. Results: Applying this framework with neurodiverse children within the context of healthcare, shows how creative design methods can give rise to new opportunities for co-creating across diverse geographies, abilities, and backgrounds as well as strengthen co-designer approval of the co-design process and resulting product. Discussion: We summarise key learnings and principles for fostering trust and sustaining participation with remote activities, and facilitating stakeholder design input through continuous collaboration, as well as highlight the potential benefits and challenges of utilising FREDY with neurotypical populations.

Original language	English
Article number	1432620
Journal	Frontiers in Psychiatry
Volume	15
DOIs	https://doi.org/10.3389/fpsyt.2024.1432620
Publication status	Published - 2024

Keywords

ADHD
inclusive design
neurodevelopmental conditions
qualitative methods
remote co-design
young people

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10.3389/fpsyt.2024.1432620

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title = "A framework for remotely enabled co-design with young people: its development and application with neurodiverse children and their caregivers",

abstract = "Introduction: This paper describes an innovative Framework for Remotely Enabled Co-Design with Young people (FREDY), which details an adaptable four-stage process for generating design concepts with children and other key stakeholders in a naturalistic and inclusive way. Methods: Recommendations from existing patient engagement and design methodologies were combined to provide research teams with procedures to capture and analyse end-user requirements rapidly. Resulting insights were applied through iterative design cycles to achieve accelerated and user-driven innovation. Results: Applying this framework with neurodiverse children within the context of healthcare, shows how creative design methods can give rise to new opportunities for co-creating across diverse geographies, abilities, and backgrounds as well as strengthen co-designer approval of the co-design process and resulting product. Discussion: We summarise key learnings and principles for fostering trust and sustaining participation with remote activities, and facilitating stakeholder design input through continuous collaboration, as well as highlight the potential benefits and challenges of utilising FREDY with neurotypical populations.",

keywords = "ADHD, inclusive design, neurodevelopmental conditions, qualitative methods, remote co-design, young people",

author = "Morris, {Anna Charlotte} and Stephen Douch and Teodora Popnikolova and Chris McGinley and Faith Matcham and Edmund Sonuga-Barke and Johnny Downs",

note = "Publisher Copyright: Copyright {\textcopyright} 2024 Morris, Douch, Popnikolova, McGinley, Matcham, Sonuga-Barke and Downs.",

year = "2024",

doi = "10.3389/fpsyt.2024.1432620",

language = "English",

volume = "15",

journal = "Frontiers in Psychiatry",

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AU - Morris, Anna Charlotte

AU - Douch, Stephen

AU - Popnikolova, Teodora

AU - McGinley, Chris

AU - Matcham, Faith

AU - Sonuga-Barke, Edmund

AU - Downs, Johnny

PY - 2024

Y1 - 2024

N2 - Introduction: This paper describes an innovative Framework for Remotely Enabled Co-Design with Young people (FREDY), which details an adaptable four-stage process for generating design concepts with children and other key stakeholders in a naturalistic and inclusive way. Methods: Recommendations from existing patient engagement and design methodologies were combined to provide research teams with procedures to capture and analyse end-user requirements rapidly. Resulting insights were applied through iterative design cycles to achieve accelerated and user-driven innovation. Results: Applying this framework with neurodiverse children within the context of healthcare, shows how creative design methods can give rise to new opportunities for co-creating across diverse geographies, abilities, and backgrounds as well as strengthen co-designer approval of the co-design process and resulting product. Discussion: We summarise key learnings and principles for fostering trust and sustaining participation with remote activities, and facilitating stakeholder design input through continuous collaboration, as well as highlight the potential benefits and challenges of utilising FREDY with neurotypical populations.

AB - Introduction: This paper describes an innovative Framework for Remotely Enabled Co-Design with Young people (FREDY), which details an adaptable four-stage process for generating design concepts with children and other key stakeholders in a naturalistic and inclusive way. Methods: Recommendations from existing patient engagement and design methodologies were combined to provide research teams with procedures to capture and analyse end-user requirements rapidly. Resulting insights were applied through iterative design cycles to achieve accelerated and user-driven innovation. Results: Applying this framework with neurodiverse children within the context of healthcare, shows how creative design methods can give rise to new opportunities for co-creating across diverse geographies, abilities, and backgrounds as well as strengthen co-designer approval of the co-design process and resulting product. Discussion: We summarise key learnings and principles for fostering trust and sustaining participation with remote activities, and facilitating stakeholder design input through continuous collaboration, as well as highlight the potential benefits and challenges of utilising FREDY with neurotypical populations.

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KW - inclusive design

KW - neurodevelopmental conditions

KW - qualitative methods

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A framework for remotely enabled co-design with young people: its development and application with neurodiverse children and their caregivers

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Keywords

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