A longitudinal cohort study of symptoms and other concerns among Nigerian people with stages 3-5 chronic kidney diseases: study protocol

Andrew T Olagunju; Babatunde Fadipe; Rotimi W Buraimoh; Olagoke K Ale; Theophilus I Umeizudike; Raphael E Ogbolu; Nasur Buyinza; Jonathan Bayuo; Barbara Mutedzi; Kennedy Nkhoma; Eve Namisango; Katherine Bristowe; Deokhee Yi; Julia Downing; Olatunji F Aina; Joseph D Adeyemi; Fliss E M Murtagh; Richard Harding

doi:10.21037/apm.2018.10.03

A longitudinal cohort study of symptoms and other concerns among Nigerian people with stages 3-5 chronic kidney diseases: study protocol

Andrew T Olagunju, Babatunde Fadipe, Rotimi W Buraimoh, Olagoke K Ale, Theophilus I Umeizudike, Raphael E Ogbolu, Nasur Buyinza, Jonathan Bayuo, Barbara Mutedzi, Kennedy Nkhoma, Eve Namisango, Katherine Bristowe, Deokhee Yi, Julia Downing, Olatunji F Aina, Joseph D Adeyemi, Fliss E M Murtagh, Richard Harding

Department of Psychiatry, College of Medicine, University of Lagos, Lagos, Nigeria; Department of Psychiatry, Lagos University Teaching Hospital, Lagos, Nigeria. [email protected]; [email protected].
Department of Psychiatry, Lagos University Teaching Hospital, Lagos, Nigeria.
Department of Physiology; College of Medicine; University of Lagos; Lagos Nigeria
Department of Medicine, Lagos State University Teaching Hospital, Ikeja Lagos, Nigeria.
Hospice Africa Uganda
Department of Nursing, Faculty of Health and Medical Sciences, Presbyterian University College, Abetefi, Ghana.
Island Hospice and Healthcare
King's College London
African Palliative Care Association
Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, King's College London, Cicely Saunders Institute, Department of Palliative Care, Policy & Rehabilitation, London, UK; 0International Children's Palliative Care Network (ICPCN), Bristol, UK.
Department of Psychiatry, College of Medicine, University of Lagos, Lagos, Nigeria; Department of Psychiatry, Lagos University Teaching Hospital, Lagos, Nigeria.
Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, King's College London, Cicely Saunders Institute, Department of Palliative Care, Policy & Rehabilitation, London, UK; Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull, Hull, UK.

Research output: Contribution to journal › Article › peer-review

1 Citation (Scopus)

Abstract

BACKGROUND: The burden of symptoms and other concerns in chronic kidney disease (CKD) is known to be high, adversely affecting the quality of life of the growing number of those with this condition in developing countries. In this paper, we describe the protocol of a longitudinal observational study among people living with CKD. The study is developed to assess the bio-psychosocial factors associated with palliative care symptoms and concerns, and pattern of health services usage among Nigerians with stages 3-5 CKD. The overall objective is to establish the evidence-base for advocacy and policy formulation, treatment guidelines, care and services, and future clinical trial studies.

METHODS: This is a multi-center study to investigate the longitudinal course of symptoms and other concerns among patients with stages 3-5 CKD in Nigeria. Interviewer administered and self-report measures at baseline (T0) and 3-month (T1) address socio-demographic characteristics, clinical-illness related information, palliative care-related symptoms and other concerns, pattern of formal or informal service usage, and bio psychosocial measures including estimated glomerular filtration rate (eGFR), anxiety, depression, quality of life, functioning, social support and spiritual wellbeing.

DISCUSSION: This study represents the first longitudinal investigation of palliative care symptoms and concerns among people with CKD in Nigeria. It includes early stages of CKD in compliance with best practices, and a comprehensive range of bio-psychosocial outcomes to understand how these factors are associated with symptoms. This study will provide evidence for how best to integrate palliative care into management of CKD to improve care and quality of life of people with CKD. The study team welcomes collaborations with both national and international researchers.

Original language	English
Pages (from-to)	190-198
Journal	Annals of Palliative Medicine
DOIs	https://doi.org/10.21037/apm.2018.10.03
Publication status	E-pub ahead of print - 17 Oct 2018

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Olagunju, A. T., Fadipe, B., Buraimoh, R. W., Ale, O. K., Umeizudike, T. I., Ogbolu, R. E., Buyinza, N., Bayuo, J., Mutedzi, B., Nkhoma, K., Namisango, E., Bristowe, K., Yi, D., Downing, J., Aina, O. F., Adeyemi, J. D., Murtagh, F. E. M., & Harding, R. (2018). A longitudinal cohort study of symptoms and other concerns among Nigerian people with stages 3-5 chronic kidney diseases: study protocol. Annals of Palliative Medicine, 190-198. Advance online publication. https://doi.org/10.21037/apm.2018.10.03

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title = "A longitudinal cohort study of symptoms and other concerns among Nigerian people with stages 3-5 chronic kidney diseases: study protocol",

abstract = "BACKGROUND: The burden of symptoms and other concerns in chronic kidney disease (CKD) is known to be high, adversely affecting the quality of life of the growing number of those with this condition in developing countries. In this paper, we describe the protocol of a longitudinal observational study among people living with CKD. The study is developed to assess the bio-psychosocial factors associated with palliative care symptoms and concerns, and pattern of health services usage among Nigerians with stages 3-5 CKD. The overall objective is to establish the evidence-base for advocacy and policy formulation, treatment guidelines, care and services, and future clinical trial studies.METHODS: This is a multi-center study to investigate the longitudinal course of symptoms and other concerns among patients with stages 3-5 CKD in Nigeria. Interviewer administered and self-report measures at baseline (T0) and 3-month (T1) address socio-demographic characteristics, clinical-illness related information, palliative care-related symptoms and other concerns, pattern of formal or informal service usage, and bio psychosocial measures including estimated glomerular filtration rate (eGFR), anxiety, depression, quality of life, functioning, social support and spiritual wellbeing.DISCUSSION: This study represents the first longitudinal investigation of palliative care symptoms and concerns among people with CKD in Nigeria. It includes early stages of CKD in compliance with best practices, and a comprehensive range of bio-psychosocial outcomes to understand how these factors are associated with symptoms. This study will provide evidence for how best to integrate palliative care into management of CKD to improve care and quality of life of people with CKD. The study team welcomes collaborations with both national and international researchers.",

author = "Olagunju, {Andrew T} and Babatunde Fadipe and Buraimoh, {Rotimi W} and Ale, {Olagoke K} and Umeizudike, {Theophilus I} and Ogbolu, {Raphael E} and Nasur Buyinza and Jonathan Bayuo and Barbara Mutedzi and Kennedy Nkhoma and Eve Namisango and Katherine Bristowe and Deokhee Yi and Julia Downing and Aina, {Olatunji F} and Adeyemi, {Joseph D} and Murtagh, {Fliss E M} and Richard Harding",

year = "2018",

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Olagunju, AT, Fadipe, B, Buraimoh, RW, Ale, OK, Umeizudike, TI, Ogbolu, RE, Buyinza, N, Bayuo, J, Mutedzi, B, Nkhoma, K , Namisango, E , Bristowe, K, Yi, D, Downing, J, Aina, OF, Adeyemi, JD, Murtagh, FEM & Harding, R 2018, 'A longitudinal cohort study of symptoms and other concerns among Nigerian people with stages 3-5 chronic kidney diseases: study protocol', Annals of Palliative Medicine, pp. 190-198. https://doi.org/10.21037/apm.2018.10.03

TY - JOUR

T1 - A longitudinal cohort study of symptoms and other concerns among Nigerian people with stages 3-5 chronic kidney diseases

T2 - study protocol

AU - Olagunju, Andrew T

AU - Fadipe, Babatunde

AU - Buraimoh, Rotimi W

AU - Ale, Olagoke K

AU - Umeizudike, Theophilus I

AU - Ogbolu, Raphael E

AU - Buyinza, Nasur

AU - Bayuo, Jonathan

AU - Mutedzi, Barbara

AU - Nkhoma, Kennedy

AU - Namisango, Eve

AU - Bristowe, Katherine

AU - Yi, Deokhee

AU - Downing, Julia

AU - Aina, Olatunji F

AU - Adeyemi, Joseph D

AU - Murtagh, Fliss E M

AU - Harding, Richard

PY - 2018/10/17

Y1 - 2018/10/17

N2 - BACKGROUND: The burden of symptoms and other concerns in chronic kidney disease (CKD) is known to be high, adversely affecting the quality of life of the growing number of those with this condition in developing countries. In this paper, we describe the protocol of a longitudinal observational study among people living with CKD. The study is developed to assess the bio-psychosocial factors associated with palliative care symptoms and concerns, and pattern of health services usage among Nigerians with stages 3-5 CKD. The overall objective is to establish the evidence-base for advocacy and policy formulation, treatment guidelines, care and services, and future clinical trial studies.METHODS: This is a multi-center study to investigate the longitudinal course of symptoms and other concerns among patients with stages 3-5 CKD in Nigeria. Interviewer administered and self-report measures at baseline (T0) and 3-month (T1) address socio-demographic characteristics, clinical-illness related information, palliative care-related symptoms and other concerns, pattern of formal or informal service usage, and bio psychosocial measures including estimated glomerular filtration rate (eGFR), anxiety, depression, quality of life, functioning, social support and spiritual wellbeing.DISCUSSION: This study represents the first longitudinal investigation of palliative care symptoms and concerns among people with CKD in Nigeria. It includes early stages of CKD in compliance with best practices, and a comprehensive range of bio-psychosocial outcomes to understand how these factors are associated with symptoms. This study will provide evidence for how best to integrate palliative care into management of CKD to improve care and quality of life of people with CKD. The study team welcomes collaborations with both national and international researchers.

AB - BACKGROUND: The burden of symptoms and other concerns in chronic kidney disease (CKD) is known to be high, adversely affecting the quality of life of the growing number of those with this condition in developing countries. In this paper, we describe the protocol of a longitudinal observational study among people living with CKD. The study is developed to assess the bio-psychosocial factors associated with palliative care symptoms and concerns, and pattern of health services usage among Nigerians with stages 3-5 CKD. The overall objective is to establish the evidence-base for advocacy and policy formulation, treatment guidelines, care and services, and future clinical trial studies.METHODS: This is a multi-center study to investigate the longitudinal course of symptoms and other concerns among patients with stages 3-5 CKD in Nigeria. Interviewer administered and self-report measures at baseline (T0) and 3-month (T1) address socio-demographic characteristics, clinical-illness related information, palliative care-related symptoms and other concerns, pattern of formal or informal service usage, and bio psychosocial measures including estimated glomerular filtration rate (eGFR), anxiety, depression, quality of life, functioning, social support and spiritual wellbeing.DISCUSSION: This study represents the first longitudinal investigation of palliative care symptoms and concerns among people with CKD in Nigeria. It includes early stages of CKD in compliance with best practices, and a comprehensive range of bio-psychosocial outcomes to understand how these factors are associated with symptoms. This study will provide evidence for how best to integrate palliative care into management of CKD to improve care and quality of life of people with CKD. The study team welcomes collaborations with both national and international researchers.

U2 - 10.21037/apm.2018.10.03

DO - 10.21037/apm.2018.10.03

M3 - Article

C2 - 30525769

SN - 2224-5820

SP - 190

EP - 198

JO - Annals of Palliative Medicine

JF - Annals of Palliative Medicine

ER -

A longitudinal cohort study of symptoms and other concerns among Nigerian people with stages 3-5 chronic kidney diseases: study protocol

Abstract

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