A Preliminary Case Study of Developing a Web-Based Digital Portal for Stroke Survivors Using Synthetic Personal Health Data

TY - CHAP

T1 - A Preliminary Case Study of Developing a Web-Based Digital Portal for Stroke Survivors Using Synthetic Personal Health Data

AU - Huo, Zhiqiang

AU - Chapman, Martin

AU - Neate, Timothy

AU - Wyatt, David

AU - Rowland-Coomber, Sophie

AU - Wolfe, Charles

AU - O'Connell, Matt

AU - Marshall, Iain

AU - Curcin, Vasa

PY - 2024/7

Y1 - 2024/7

N2 - Stroke survivors often encounter numerous challenges in managing their health in a long term, primarily due to the complexities of the stroke disease and the presence of multiple comorbidities. Patient portals are recognised as a promising solution, offering stroke survivors a centralised platform with access to their personal health records, support resources, and tools for managing their health status. In this study, we present a co-designed patient portal system using web technology through stakeholder involvement. This portal uses data from the South London Stroke Register (SLSR) data centre, and a synthetic database was created to simulate the access of personal health records. Featuring user-friendly interfaces (UIs), this portal provides self-management tools such as blood pressure monitoring, risk assessment for stroke recurrence, and quality of life questionnaires to facilitate self-assessment in home settings. Future work will focus on this patient portal interactions, usability test and pilot feasibility study.

AB - Stroke survivors often encounter numerous challenges in managing their health in a long term, primarily due to the complexities of the stroke disease and the presence of multiple comorbidities. Patient portals are recognised as a promising solution, offering stroke survivors a centralised platform with access to their personal health records, support resources, and tools for managing their health status. In this study, we present a co-designed patient portal system using web technology through stakeholder involvement. This portal uses data from the South London Stroke Register (SLSR) data centre, and a synthetic database was created to simulate the access of personal health records. Featuring user-friendly interfaces (UIs), this portal provides self-management tools such as blood pressure monitoring, risk assessment for stroke recurrence, and quality of life questionnaires to facilitate self-assessment in home settings. Future work will focus on this patient portal interactions, usability test and pilot feasibility study.

M3 - Conference paper

BT - 2024 IEEE 12th International Conference on Healthcare Informatics (ICHI)

ER -