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A Qualitative Study of Health Care Professionals’ Views on Bowel Care in Multiple Sclerosis: Whose Job Is It Anyway?

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Sue Woodward, Maureen Coggrave, Lesley Dibley, Doreen McClurg, Christine Norton

Original languageEnglish
JournalInternational Journal of MS Care
E-pub ahead of print15 Jun 2021


King's Authors


Bowel dysfunction, including constipation and fecal incontinence, is prevalent in people with multiple sclerosis (MS), adversely affecting quality of life and increasing caregiver burden. How health care professionals (HCPs) identify, assess, and manage people with MS with bowel dysfunction is understudied. This study explored how HCPs think about, assess, and manage bowel dysfunction in people with MS.

Semistructured interviews were conducted with 18 HCPs from different professional disciplines and clinical specialities recruited from UK National Health Service primary, secondary, and tertiary care services using purposive and chain referral sampling through professional networks. One participant worked for a bladder and bowel charity. Data were analyzed using thematic analysis.

Views differed regarding responsibilities for providing bowel care. Participants thought people with MS should notify HCPs of bowel symptoms and take responsibility for self-management where possible, with family caregivers required to help with bowel care. Although people with MS were often referred to bladder and bowel specialists when a crisis point was reached, earlier referral was called for by these HCPs. There were variations in assessment processes, treatment options offered, and service provision. Participants thought HCPs needed more education on bowel dysfunction, bowel care should take a high priority, and evidence-based clinical guidelines and referral pathways would improve service delivery.

The HCPs caring for people with MS see many with bowel dysfunction, and there is variation in care and service provision; HCPs require more education, evidence-based clinical guidelines, and referral pathways to improve case finding, assessment, and management of these symptoms for people with MS.

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