Acceptability of the Long-Term In-Home Ventilator Engagement virtual intervention for home mechanical ventilation patients during the COVID-19 pandemic: A qualitative evaluation

Louise Rose

doi:10.1177/20552076241228417

Acceptability of the Long-Term In-Home Ventilator Engagement virtual intervention for home mechanical ventilation patients during the COVID-19 pandemic: A qualitative evaluation

Louise Rose

Digital Health & Applied Tech Assessment

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Abstract

Background: Clinical management of ventilator-assisted individuals (VAIs) was challenged by social distancing rules during the COVID-19 pandemic. In May 2020, the Long-Term In-Home Ventilator Engagement (LIVE) Program was launched in Ontario, Canada to provide intensive digital care case management to VAIs. The purpose of this qualitative study was to explore the acceptability of the LIVE Program hosted via a digital platform during the COVID-19 pandemic from diverse perspectives. Methods: We conducted a qualitative descriptive study (May 2020–April 2021) comprising semi-structured interviews with participants from eight home ventilation specialty centers in Ontario, Canada. We purposively recruited patients, family caregivers, and providers enrolled in LIVE. Content analysis and the theoretical concepts of acceptability, feasibility, and appropriateness were used to interpret findings. Results: A total of 40 individuals (2 VAIs, 18 family caregivers, 20 healthcare providers) participated. Participants described LIVE as acceptable as it addressed a longstanding imperative to improve care access, ease of use, and training provided; feasible for triaging problems and sharing information; and appropriate for timeliness of provider responses, workflows, and perceived value. Negative perceptions of acceptability among healthcare providers concerned digital workload and fit with existing clinical workflows. Perceived benefits accorded to LIVE included enhanced physical and psychological safety in the home, patient–provider relations, and VAI engagement in their own care. Conclusions: Study findings identify factors influencing the LIVE Program's acceptability by patients, family caregivers, and healthcare providers during pandemic conditions including enhanced access to care, ease of case management triage, and VAI safety. Findings may inform the implementation of digital health services to VAIs in non-pandemic circumstances.

Original language	English
Journal	SAGE Open
Volume	10
DOIs	https://doi.org/10.1177/20552076241228417
Publication status	Published - 27 Jan 2024

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@article{2c6262354bb24964af72f4fba2456542,

title = "Acceptability of the Long-Term In-Home Ventilator Engagement virtual intervention for home mechanical ventilation patients during the COVID-19 pandemic: A qualitative evaluation",

abstract = "Background: Clinical management of ventilator-assisted individuals (VAIs) was challenged by social distancing rules during the COVID-19 pandemic. In May 2020, the Long-Term In-Home Ventilator Engagement (LIVE) Program was launched in Ontario, Canada to provide intensive digital care case management to VAIs. The purpose of this qualitative study was to explore the acceptability of the LIVE Program hosted via a digital platform during the COVID-19 pandemic from diverse perspectives. Methods: We conducted a qualitative descriptive study (May 2020–April 2021) comprising semi-structured interviews with participants from eight home ventilation specialty centers in Ontario, Canada. We purposively recruited patients, family caregivers, and providers enrolled in LIVE. Content analysis and the theoretical concepts of acceptability, feasibility, and appropriateness were used to interpret findings. Results: A total of 40 individuals (2 VAIs, 18 family caregivers, 20 healthcare providers) participated. Participants described LIVE as acceptable as it addressed a longstanding imperative to improve care access, ease of use, and training provided; feasible for triaging problems and sharing information; and appropriate for timeliness of provider responses, workflows, and perceived value. Negative perceptions of acceptability among healthcare providers concerned digital workload and fit with existing clinical workflows. Perceived benefits accorded to LIVE included enhanced physical and psychological safety in the home, patient–provider relations, and VAI engagement in their own care. Conclusions: Study findings identify factors influencing the LIVE Program's acceptability by patients, family caregivers, and healthcare providers during pandemic conditions including enhanced access to care, ease of case management triage, and VAI safety. Findings may inform the implementation of digital health services to VAIs in non-pandemic circumstances.",

author = "Louise Rose",

note = "Funding Information: The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This project was supported by the Ontario Ventilator Equipment Pool, operated by the Kingston Health Sciences Centre, funded by the Ontario Ministry of Health Assistive Devices Program. Funding Information: We are grateful to the participation of VAIs, family caregivers, and dedicated clinical teams at LIVE centres. This work was conducted on behalf of the Long-Term In-Home Ventilation Engagement (LIVE) Program group: Reshma Amin, The Hospital for Sick Children; Ms. Regina Pizzuti, Ontario Ventilator Equipment Pool (VEP); Andrea Gershon, Sunnybrook Health Sciences Centre; Francine Buchanan, University of Toronto; Michel Paquet, Aetonix; Jackie Chiang, SickKids; Roger Goldstein, West Park Healthcare Centre; Sherri Katz, Children's Hospital of Eastern Ontario; David Leasa, London Health Sciences Centre; Audrey Lim, McMaster Children's Hospital; Doug McKim, The Ottawa Hospital; Anu Tandon, Sunnybrook Health Sciences Centre; Aaron St Laurent, London Health Sciences Centre; Louise Rose, Kings College London. We wish to acknowledge the contributions of the LIVE Allied Health team: Paula Abelha, Adele Baker, Ashley Benett, Sacha Bhatia, Cindy Brennan, Julia Bokhaut, Ronald Butler, Paul Cameron, Jackie Chiang, Nisha Cithiravel, Jana Collins, Leah Costa, Refika Ersu, Erin Fleischer, Sandy Foley, Janet Hyatt, Ashley Inman, Mary Irven, Joanna Janevski, Raj Kohli, Wilma Koopman, Sarah Kuyntjes, Audrey Lim, Paty Sala Lopez, Denise Martins, Cathy Mawdsley, Sandra McKay, Ramsay McNay, Kevan Mehta, Myla Moretti, Riley Moss, Jodee Naylor, Michelle Overholt, William Reisman, Josee Roy, Madan Roy, Christen Shoesmith, Joanne Smith, Lisa Spooner, Aaron St-Laurent, Faiza Syed, Anu Tandon, Mark Thompson, Tuyen Tran, Melissa Trinh, Robert Varadi, Shannon Venace, and Allison Zweerink. The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This project was supported by the Ontario Ventilator Equipment Pool, operated by the Kingston Health Sciences Centre, funded by the Ontario Ministry of Health Assistive Devices Program. Publisher Copyright: {\textcopyright} The Author(s) 2024.",

year = "2024",

month = jan,

day = "27",

doi = "10.1177/20552076241228417",

language = "English",

volume = "10",

journal = "SAGE Open",

issn = "2158-2440",

publisher = "Sage Publications",

}

TY - JOUR

T1 - Acceptability of the Long-Term In-Home Ventilator Engagement virtual intervention for home mechanical ventilation patients during the COVID-19 pandemic

T2 - A qualitative evaluation

AU - Rose, Louise

N1 - Funding Information: The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This project was supported by the Ontario Ventilator Equipment Pool, operated by the Kingston Health Sciences Centre, funded by the Ontario Ministry of Health Assistive Devices Program. Funding Information: We are grateful to the participation of VAIs, family caregivers, and dedicated clinical teams at LIVE centres. This work was conducted on behalf of the Long-Term In-Home Ventilation Engagement (LIVE) Program group: Reshma Amin, The Hospital for Sick Children; Ms. Regina Pizzuti, Ontario Ventilator Equipment Pool (VEP); Andrea Gershon, Sunnybrook Health Sciences Centre; Francine Buchanan, University of Toronto; Michel Paquet, Aetonix; Jackie Chiang, SickKids; Roger Goldstein, West Park Healthcare Centre; Sherri Katz, Children's Hospital of Eastern Ontario; David Leasa, London Health Sciences Centre; Audrey Lim, McMaster Children's Hospital; Doug McKim, The Ottawa Hospital; Anu Tandon, Sunnybrook Health Sciences Centre; Aaron St Laurent, London Health Sciences Centre; Louise Rose, Kings College London. We wish to acknowledge the contributions of the LIVE Allied Health team: Paula Abelha, Adele Baker, Ashley Benett, Sacha Bhatia, Cindy Brennan, Julia Bokhaut, Ronald Butler, Paul Cameron, Jackie Chiang, Nisha Cithiravel, Jana Collins, Leah Costa, Refika Ersu, Erin Fleischer, Sandy Foley, Janet Hyatt, Ashley Inman, Mary Irven, Joanna Janevski, Raj Kohli, Wilma Koopman, Sarah Kuyntjes, Audrey Lim, Paty Sala Lopez, Denise Martins, Cathy Mawdsley, Sandra McKay, Ramsay McNay, Kevan Mehta, Myla Moretti, Riley Moss, Jodee Naylor, Michelle Overholt, William Reisman, Josee Roy, Madan Roy, Christen Shoesmith, Joanne Smith, Lisa Spooner, Aaron St-Laurent, Faiza Syed, Anu Tandon, Mark Thompson, Tuyen Tran, Melissa Trinh, Robert Varadi, Shannon Venace, and Allison Zweerink. The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This project was supported by the Ontario Ventilator Equipment Pool, operated by the Kingston Health Sciences Centre, funded by the Ontario Ministry of Health Assistive Devices Program. Publisher Copyright: © The Author(s) 2024.

PY - 2024/1/27

Y1 - 2024/1/27

N2 - Background: Clinical management of ventilator-assisted individuals (VAIs) was challenged by social distancing rules during the COVID-19 pandemic. In May 2020, the Long-Term In-Home Ventilator Engagement (LIVE) Program was launched in Ontario, Canada to provide intensive digital care case management to VAIs. The purpose of this qualitative study was to explore the acceptability of the LIVE Program hosted via a digital platform during the COVID-19 pandemic from diverse perspectives. Methods: We conducted a qualitative descriptive study (May 2020–April 2021) comprising semi-structured interviews with participants from eight home ventilation specialty centers in Ontario, Canada. We purposively recruited patients, family caregivers, and providers enrolled in LIVE. Content analysis and the theoretical concepts of acceptability, feasibility, and appropriateness were used to interpret findings. Results: A total of 40 individuals (2 VAIs, 18 family caregivers, 20 healthcare providers) participated. Participants described LIVE as acceptable as it addressed a longstanding imperative to improve care access, ease of use, and training provided; feasible for triaging problems and sharing information; and appropriate for timeliness of provider responses, workflows, and perceived value. Negative perceptions of acceptability among healthcare providers concerned digital workload and fit with existing clinical workflows. Perceived benefits accorded to LIVE included enhanced physical and psychological safety in the home, patient–provider relations, and VAI engagement in their own care. Conclusions: Study findings identify factors influencing the LIVE Program's acceptability by patients, family caregivers, and healthcare providers during pandemic conditions including enhanced access to care, ease of case management triage, and VAI safety. Findings may inform the implementation of digital health services to VAIs in non-pandemic circumstances.

AB - Background: Clinical management of ventilator-assisted individuals (VAIs) was challenged by social distancing rules during the COVID-19 pandemic. In May 2020, the Long-Term In-Home Ventilator Engagement (LIVE) Program was launched in Ontario, Canada to provide intensive digital care case management to VAIs. The purpose of this qualitative study was to explore the acceptability of the LIVE Program hosted via a digital platform during the COVID-19 pandemic from diverse perspectives. Methods: We conducted a qualitative descriptive study (May 2020–April 2021) comprising semi-structured interviews with participants from eight home ventilation specialty centers in Ontario, Canada. We purposively recruited patients, family caregivers, and providers enrolled in LIVE. Content analysis and the theoretical concepts of acceptability, feasibility, and appropriateness were used to interpret findings. Results: A total of 40 individuals (2 VAIs, 18 family caregivers, 20 healthcare providers) participated. Participants described LIVE as acceptable as it addressed a longstanding imperative to improve care access, ease of use, and training provided; feasible for triaging problems and sharing information; and appropriate for timeliness of provider responses, workflows, and perceived value. Negative perceptions of acceptability among healthcare providers concerned digital workload and fit with existing clinical workflows. Perceived benefits accorded to LIVE included enhanced physical and psychological safety in the home, patient–provider relations, and VAI engagement in their own care. Conclusions: Study findings identify factors influencing the LIVE Program's acceptability by patients, family caregivers, and healthcare providers during pandemic conditions including enhanced access to care, ease of case management triage, and VAI safety. Findings may inform the implementation of digital health services to VAIs in non-pandemic circumstances.

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U2 - 10.1177/20552076241228417

DO - 10.1177/20552076241228417

M3 - Article

SN - 2158-2440

VL - 10

JO - SAGE Open

JF - SAGE Open

ER -

Acceptability of the Long-Term In-Home Ventilator Engagement virtual intervention for home mechanical ventilation patients during the COVID-19 pandemic: A qualitative evaluation

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