Skip to main navigation Skip to search Skip to main content

Adapting eating disorder focused family therapy for Autistic children and young people with anorexia nervosa: evidence informed, co-produced clinical guidelines

  • Fiona Duffy*
  • , Saffron M. Baldoza
  • , Julian Baudinet
  • , Ian Birch
  • , Emma Broadhurst
  • , Gina Dimitropoulos
  • , Clare Ellison
  • , Karri Gillespie-Smith
  • , Rachel Loomes
  • , Umairah Malik
  • , Ellen Maloney
  • , Lorraine Small
  • , Kate Tchanturia
  • , Iona Thomas Yates
  • , Freya Nash
  • , Amelia Austin
  • *Corresponding author for this work
  • Royal Edinburgh Hospital
  • University of Edinburgh
  • University of Calgary
  • Cumbria Northumbria Tyne and Wear NHS Foundation Trust
  • University College London
  • Beat
  • King’s College London
  • Ilia State University
  • Glasgow Caledonian University

Research output: Contribution to journalArticlepeer-review

4 Downloads (Pure)

Abstract

Autistic children and young people receiving eating disorder focused family therapy (FT-ED) for anorexia nervosa (AN) are more likely than their non-Autistic peers to require longer and more intensive treatment. Qualitative evidence suggests that Autistic young people and their parents struggle with a perceived inflexible delivery of FT-ED that can be mis-attuned to autistic needs. Clinicians delivering this care report a lack of confidence when adapting FT-ED to this population, and there is limited guidance on how to do this. This paper describes evidence‑informed and coproduced guidelines, developed via a series of workshops with Autistic people with lived experience of an eating disorder, parents and carers, clinicians, researchers, and third‑sector representatives. The intention of these guidelines is to support clinicians in the adaptation of FT-ED for Autistic young people with AN and their families, with the aim of delivering more appropriate and effective care. Young people and their parents or carers may also find these guidelines helpful when advocating for autism-affirming care within FT-ED.
Original languageEnglish
Pages (from-to)1-17
Number of pages17
JournalEating Disorders
Early online date29 Jul 2026
DOIs
Publication statusE-pub ahead of print - 29 Jul 2026

Fingerprint

Dive into the research topics of 'Adapting eating disorder focused family therapy for Autistic children and young people with anorexia nervosa: evidence informed, co-produced clinical guidelines'. Together they form a unique fingerprint.

Cite this