Addressing the psychosocial needs of young people with thalassaemia undergoing bone marrow transplantation

Louise Fyfe-Taylor, Andrea Cockett

Research output: Contribution to journalArticlepeer-review

Abstract

Beta thalassaemia major is an inherited condition that causes severe anaemia. Patients with the condition require regular blood transfusions. One curative treatment option available is bone marrow transplantation, but a bone marrow transplant is a high-risk, painful procedure requiring prolonged hospitalisation. Undergoing such a disruptive treatment can be a source of great anxiety for young people and their families, who will need honest, sensitive and empathetic communication, person-centred care, support to socialise and access education, involvement in decision-making and signposting to financial support. This article discusses the role of children's nurses in addressing the psychosocial needs of young people with thalassaemia who undergo bone marrow transplantation and in supporting young people's families.

Original languageEnglish
Pages (from-to)19-24
Number of pages6
JournalNursing children and young people
Volume33
Issue number2
DOIs
Publication statusPublished - 4 Mar 2021

Keywords

  • adolescents
  • blood
  • bone marrow
  • child health
  • clinical
  • haematology
  • mental health
  • organ transplantation
  • patient
  • patient psychology
  • psychological care
  • psychosocial
  • surgical

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