Abstract
Background: We are doing a multicentre, randomised controlled trial evaluating the effectiveness and cost-effectiveness of a two-day Self-Management education course for epILEpsy (SMILE (UK)), which was developed in Germany (MOSES).
Methods: We recruited participants attending epilepsy clinics in SE England, reporting 2 or more seizures in the prior year. The primary outcome is patient-reported quality of life. Secondary outcomes include seizure frequency, psychological distress, and stigma among other variables. This presentation describes important characteristics of participants at baseline.
Results: Of 404 participants recruited, mean age was 42 years, 75% were of white ethnicity, and 46% were male. Epilepsy had been diagnosed a median of 18 years previously, 72% reported one or more seizures in the prior month, and 46% reported another significant medical and/or psychological condition. Psychological distress symptoms endorsed on the Hospital Anxiety and Depression Scale suggest case or borderline case rates of Anxiety of 54%, and of Depression of 28%. The average epilepsy-specific quality-of-life (QOLIE-31) score was 66 (maximum 100).
Discussion: This group of participants recruited via epilepsy clinics had chronic, poorly controlled epilepsy. About half reported other significant conditions and borderline or case-level symptoms of anxiety. The relationship between these and other characteristics will be presented.
Methods: We recruited participants attending epilepsy clinics in SE England, reporting 2 or more seizures in the prior year. The primary outcome is patient-reported quality of life. Secondary outcomes include seizure frequency, psychological distress, and stigma among other variables. This presentation describes important characteristics of participants at baseline.
Results: Of 404 participants recruited, mean age was 42 years, 75% were of white ethnicity, and 46% were male. Epilepsy had been diagnosed a median of 18 years previously, 72% reported one or more seizures in the prior month, and 46% reported another significant medical and/or psychological condition. Psychological distress symptoms endorsed on the Hospital Anxiety and Depression Scale suggest case or borderline case rates of Anxiety of 54%, and of Depression of 28%. The average epilepsy-specific quality-of-life (QOLIE-31) score was 66 (maximum 100).
Discussion: This group of participants recruited via epilepsy clinics had chronic, poorly controlled epilepsy. About half reported other significant conditions and borderline or case-level symptoms of anxiety. The relationship between these and other characteristics will be presented.
| Original language | English |
|---|---|
| Journal | Journal of Neurology, Neurosurgery and Psychiatry |
| Early online date | 15 Nov 2016 |
| Publication status | Published - 2016 |
| Event | Association of British Neurologists Annual meeting: ‘The Seven Ages of Man’ - Brighton, United Kingdom Duration: 17 May 2016 → 19 May 2016 |
Keywords
- Epilepsy