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An RCT of self-management education in epilepsy: participants at baseline: Poster presentation: ABN 2016

Research output: Contribution to journalPoster abstract

Original languageEnglish
JournalJournal of Neurology, Neurosurgery and Psychiatry
StatePublished - May 2016
EventAssociation of British Neurologists Annual meeting - Brighton, United Kingdom

King's Authors

Abstract

Background: We are doing a multicentre, randomised controlled trial evaluating the effectiveness and cost-effectiveness of a two-day Self-Management education course for epILEpsy (SMILE (UK)), which was developed in Germany (MOSES).

Methods: We recruited participants attending epilepsy clinics in SE England, reporting 2 or more seizures in the prior year. The primary outcome is patient-reported quality of life. Secondary outcomes include seizure frequency, psychological distress, and stigma among other variables. This presentation describes important characteristics of participants at baseline.

Results: Of 404 participants recruited, mean age was 42 years, 75% were of white ethnicity, and 46% were male. Epilepsy had been diagnosed a median of 18 years previously, 72% reported one or more seizures in the prior month, and 46% reported another significant medical and/or psychological condition. Psychological distress symptoms endorsed on the Hospital Anxiety and Depression Scale suggest case or borderline case rates of Anxiety of 54%, and of Depression of 28%. The average epilepsy-specific quality-of-life (QOLIE-31) score was 66 (maximum 100).

Discussion: This group of participants recruited via epilepsy clinics had chronic, poorly controlled epilepsy. About half reported other significant conditions and borderline or case-level symptoms of anxiety. The relationship between these and other characteristics will be presented.

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