Attention-deficit/hyperactivity disorder: parent/carer perceptions of barriers to healthcare access

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Abstract

Background: Children and young people (CYP) with attention-deficit/hyperactivity disorder (ADHD) face delays in diagnosis and barriers to accessing appropriate interventions. Evidence is limited on how these barriers are perceived by their parents and carers. Methods: Focus group in South London with parents/carers of CYP with ADHD. Data were thematically analysed using an inductive/deductive hybrid approach. Results: Participants (n=8) described the challenge of accessing services within a disjointed, multiagency system for their CYP's ADHD and broader health needs. They described feeling judged and overlooked by healthcare professionals, which could negatively impact the health, relationships and educational progress of their children. Pragmatic solutions were proposed, including providing parents with information on navigating services at an early stage of ADHD symptom recognition. Conclusions: Parents/carers sought improved continuity of care within and between services. They are a key group for consultation on the development of interventions to improve access for CYP with ADHD.

Original languageEnglish
Article number321362
Pages (from-to)1125-1128
Number of pages4
JournalArchives of Disease in Childhood
Volume106
Issue number11
Early online date19 Mar 2021
DOIs
Publication statusPublished - 1 Nov 2021

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