Being assigned a clinical nurse specialist is associated with better experiences of cancer care: English population-based study using the linked National Cancer Patient Experience Survey and Cancer Registration Dataset

TY - JOUR

T1 - Being assigned a clinical nurse specialist is associated with better experiences of cancer care: English population-based study using the linked National Cancer Patient Experience Survey and Cancer Registration Dataset

AU - Alessy, Saleh A.

AU - Lüchtenborg, Margreet

AU - Rawlinson, Janette

AU - Baker, Matthew

AU - Davies, Elizabeth A.

N1 - Funding Information: This research received no specific grant from any funding agency in the public, commercial or not‐for‐profit sectors. This work is part of Saleh Alessy's PhD project, which is fully sponsored by Ministry of Education, Riyadh, Saudi Arabia. Funding Information: This work uses data that have been provided by patients, the NHS and other healthcare organisations as part of patient care and support. The data are collated, maintained and quality assured by the National Congenital Anomaly and Rare Disease Registration Service, which is part of Public Health England (PHE). We thank Gabrielle Emanuel, Dr Joanna Pethick and Bukky Juwa from Public Health England for their help in extracting the data. We also thank Dr Jo Armes and Professor Henrik M?ller for their helpful comments and suggestions on this analysis. This research received no specific grant from any funding agency in the public, commercial or not-for-profit sectors. This work is part of Saleh Alessy's PhD project, which is fully sponsored by Ministry of Education, Riyadh, Saudi Arabia. Publisher Copyright: © 2021 The Authors. European Journal of Cancer Care published by John Wiley & Sons Ltd.

PY - 2021/11

Y1 - 2021/11

N2 - Objective: This study aimed to examine whether being given the name of a clinical nurse specialist (CNS) is associated with better cancer patients' experiences across different points along their cancer care pathway. Methods: We identified 100,885 colorectal, lung, breast and prostate cancer patients who responded to the National Cancer Patient Experience Survey between 2010 and 2014. We compared experiences of four key aspects of cancer care among patients who reported being given a CNS name with those who did not, adjusting for age, sex, socio-economic deprivation, ethnicity, route to diagnosis and disease stage. Results: Across all cancers, patients who reported being given the name of a CNS reported better experiences with involvement in treatment decisions, care coordination, treatment with more respect and dignity, and overall care experience. Experience of being involved in treatment decisions was the aspect of care most strongly associated with being given a CNS name (colorectal: OR 2.69, 95% CI: 2.45–2.96; lung: OR 2.41, 95% CI: 2.07–2.78; breast: OR 2.68, 95% CI: 2.47–2.92; and prostate: OR 2.11, 95% CI: 1.92–2.32). Conclusion: These findings may provide new evidence of the vital contribution CNS make to cancer care and suggest their input and support should be available to all patients after the diagnosis.

AB - Objective: This study aimed to examine whether being given the name of a clinical nurse specialist (CNS) is associated with better cancer patients' experiences across different points along their cancer care pathway. Methods: We identified 100,885 colorectal, lung, breast and prostate cancer patients who responded to the National Cancer Patient Experience Survey between 2010 and 2014. We compared experiences of four key aspects of cancer care among patients who reported being given a CNS name with those who did not, adjusting for age, sex, socio-economic deprivation, ethnicity, route to diagnosis and disease stage. Results: Across all cancers, patients who reported being given the name of a CNS reported better experiences with involvement in treatment decisions, care coordination, treatment with more respect and dignity, and overall care experience. Experience of being involved in treatment decisions was the aspect of care most strongly associated with being given a CNS name (colorectal: OR 2.69, 95% CI: 2.45–2.96; lung: OR 2.41, 95% CI: 2.07–2.78; breast: OR 2.68, 95% CI: 2.47–2.92; and prostate: OR 2.11, 95% CI: 1.92–2.32). Conclusion: These findings may provide new evidence of the vital contribution CNS make to cancer care and suggest their input and support should be available to all patients after the diagnosis.

UR - http://www.scopus.com/inward/record.url?scp=85111139937&partnerID=8YFLogxK

U2 - 10.1111/ecc.13490

DO - 10.1111/ecc.13490

M3 - Article

SN - 1365-2354

VL - 30

JO - EUROPEAN JOURNAL OF CANCER CARE

JF - EUROPEAN JOURNAL OF CANCER CARE

IS - 6

M1 - e13490

ER -