Bereaved donor families' experiences of organ and tissue donation, and perceived influences on their decision making

TY - JOUR

T1 - Bereaved donor families' experiences of organ and tissue donation, and perceived influences on their decision making

AU - Sque, Magi

AU - Walker, Wendy

AU - Long-Sutehall, Tracy

AU - Morgan, Myfanwy

AU - Randhawa, Gurch

AU - Rodney, Amanda

PY - 2018/6

Y1 - 2018/6

N2 - PurposeTo elicit bereaved families' experiences of organ and tissue donation. A specific objective was to determine families' perceptions of how their experiences influenced donation decision-making.MethodsRetrospective, qualitative interviews were undertaken with 43 participants of 31 donor families to generate rich, informative data. Participant recruitment was via 10 National Health Service Trusts, representative of five regional organ donation services in the UK. Twelve families agreed to DBD, 18 agreed to DCD, 1 unknown. Participants' responses were contextualised using a temporal framework of ‘The Past’, which represented families' prior knowledge, experience, attitudes, beliefs, and intentions toward organ donation; ‘The Present’, which incorporated the moment in time when families experienced the potential for donation; and ‘The Future’, which corresponded to expectations and outcomes arising from the donation decision.ResultsTemporally interwoven experiences appeared to influence families' decisions to donate the organs of their deceased relative for transplantation.ConclusionsThe influence of temporality on donation-decision making is worthy of consideration in the planning of future education, policy, practice, and research for improved rates of family consent to donation.

AB - PurposeTo elicit bereaved families' experiences of organ and tissue donation. A specific objective was to determine families' perceptions of how their experiences influenced donation decision-making.MethodsRetrospective, qualitative interviews were undertaken with 43 participants of 31 donor families to generate rich, informative data. Participant recruitment was via 10 National Health Service Trusts, representative of five regional organ donation services in the UK. Twelve families agreed to DBD, 18 agreed to DCD, 1 unknown. Participants' responses were contextualised using a temporal framework of ‘The Past’, which represented families' prior knowledge, experience, attitudes, beliefs, and intentions toward organ donation; ‘The Present’, which incorporated the moment in time when families experienced the potential for donation; and ‘The Future’, which corresponded to expectations and outcomes arising from the donation decision.ResultsTemporally interwoven experiences appeared to influence families' decisions to donate the organs of their deceased relative for transplantation.ConclusionsThe influence of temporality on donation-decision making is worthy of consideration in the planning of future education, policy, practice, and research for improved rates of family consent to donation.

U2 - 10.1016/j.jcrc.2018.01.002

DO - 10.1016/j.jcrc.2018.01.002

M3 - Article

SN - 0883-9441

VL - 45

SP - 82

EP - 89

JO - Journal of Critical Care

JF - Journal of Critical Care

ER -