Building user participation to reshape services for people affected by motor neurone disease

K Down, A Sinha, R Hughes, I Higginson, N Leigh, C Shaw

Research output: Contribution to journalArticlepeer-review

4 Citations (Scopus)

Abstract

Report discusses the user participation to reshape services for people affected by motor neurone disease. Motor neurone disease is one of the most common fatal neurological diseases that hits active, self-sufficient people and within 2 years can leave them dependent and unable to take part in work or community activity. It demands that interprofessional services respond rapidly to meet the complex physical, psychological, social and spiritual needs of patients and their carers. Severe mobility and communication disability can leave people with motor neurone disease socially isolated and invisible to service providers and commissioners. The two approaches used in this project is the formation of a local community user in London and development of a website. The forums evaluated in this study will enable all those concerned to work together in reshaping interprofessional services for those vulnerable people affected by motor neurone disease. (PsycINFO Database Record (c) 2003 APA, all rights reserved)
Original languageEnglish
Pages (from-to)289 - 290
Number of pages2
JournalJOURNAL OF INTERPROFESSIONAL CARE
Volume16
Issue number3
Publication statusPublished - Aug 2002

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