Care participation and burden among informal caregivers of older adults with care needs and associations with dementia

Janhavi Ajit Vaingankar; Siow Ann Chong; Edimansyah Abdin; Louisa Picco; Anitha Jeyagurunathan; Yun Jue Zhang; Rajeswari Sambasivam; Boon Yiang Chua; Li Ling Ng; Martin Prince; Mythily Subramaniam

doi:10.1017/S104161021500160X

Care participation and burden among informal caregivers of older adults with care needs and associations with dementia

Janhavi Ajit Vaingankar^*, Siow Ann Chong, Edimansyah Abdin, Louisa Picco, Anitha Jeyagurunathan, Yun Jue Zhang, Rajeswari Sambasivam, Boon Yiang Chua, Li Ling Ng, Martin Prince, Mythily Subramaniam

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

75 Citations (Scopus)

Abstract

Background: Few studies have estimated care burden in large, representative, multi-ethnic Asian population-based informal caregivers of older adults with care needs. This study describes informal caregivers' care participation for a population-based sample of older adults with care needs in Singapore, investigates differences by dementia status, and examines correlates of caregivers' burden. Methods: Data collected from 693 pairs of older adults, aged 60 to 100 years, having any care needs, and their informal caregivers, who were aged 21 to 88 years, closely involved in their care and "knew the older resident best," and were interviewed during a cross-sectional national survey, were used. Clinical characteristics of older adults, including behavioral and psychological symptoms of dementia (BPSD) and dementia diagnosis, care needs, and socio-demographic characteristics of participants were obtained. Care burden was assessed with the Zarit Burden Interview. Results: Informal caregivers' participation was highest in activities related to communication (35.1%), feeding (32%), and bathing (21.1%). Among the older adults with any care need, 356 (51.4%) had dementia. Care burden was significantly associated with married caregivers (odds ratio (OR) 2.4 vs. never married), when their relative belonged to a younger cohort (OR 2.5 vs. >84 years), needed care much of the time (OR 2.5 vs. no care needed), exhibited BPSD (OR 3.5 vs. no BPSD), and had dementia (OR 2.52 vs. no dementia). Conclusions: Factors related to older adults - more care needs, presence of BPSD, and dementia - were significant contributors to informal caregivers' burden, and these should be considered while planning interventions to alleviate care burden.

Original language	English
Pages (from-to)	221-231
Number of pages	11
Journal	International psychogeriatrics / IPA
Volume	28
Issue number	2
DOIs	https://doi.org/10.1017/S104161021500160X
Publication status	Published - 1 Feb 2016

Keywords

behavioral and psychological symptoms of dementia
care need
correlates of care burden
Zarit Burden Interview

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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Cite this

Vaingankar, J. A., Chong, S. A., Abdin, E., Picco, L., Jeyagurunathan, A., Zhang, Y. J., Sambasivam, R., Chua, B. Y., Ng, L. L., Prince, M., & Subramaniam, M. (2016). Care participation and burden among informal caregivers of older adults with care needs and associations with dementia. International psychogeriatrics / IPA, 28(2), 221-231. https://doi.org/10.1017/S104161021500160X

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title = "Care participation and burden among informal caregivers of older adults with care needs and associations with dementia",

abstract = "Background: Few studies have estimated care burden in large, representative, multi-ethnic Asian population-based informal caregivers of older adults with care needs. This study describes informal caregivers' care participation for a population-based sample of older adults with care needs in Singapore, investigates differences by dementia status, and examines correlates of caregivers' burden. Methods: Data collected from 693 pairs of older adults, aged 60 to 100 years, having any care needs, and their informal caregivers, who were aged 21 to 88 years, closely involved in their care and {"}knew the older resident best,{"} and were interviewed during a cross-sectional national survey, were used. Clinical characteristics of older adults, including behavioral and psychological symptoms of dementia (BPSD) and dementia diagnosis, care needs, and socio-demographic characteristics of participants were obtained. Care burden was assessed with the Zarit Burden Interview. Results: Informal caregivers' participation was highest in activities related to communication (35.1%), feeding (32%), and bathing (21.1%). Among the older adults with any care need, 356 (51.4%) had dementia. Care burden was significantly associated with married caregivers (odds ratio (OR) 2.4 vs. never married), when their relative belonged to a younger cohort (OR 2.5 vs. >84 years), needed care much of the time (OR 2.5 vs. no care needed), exhibited BPSD (OR 3.5 vs. no BPSD), and had dementia (OR 2.52 vs. no dementia). Conclusions: Factors related to older adults - more care needs, presence of BPSD, and dementia - were significant contributors to informal caregivers' burden, and these should be considered while planning interventions to alleviate care burden.",

keywords = "behavioral and psychological symptoms of dementia, care need, correlates of care burden, Zarit Burden Interview",

author = "Vaingankar, {Janhavi Ajit} and Chong, {Siow Ann} and Edimansyah Abdin and Louisa Picco and Anitha Jeyagurunathan and Zhang, {Yun Jue} and Rajeswari Sambasivam and Chua, {Boon Yiang} and Ng, {Li Ling} and Martin Prince and Mythily Subramaniam",

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Vaingankar, JA, Chong, SA, Abdin, E, Picco, L, Jeyagurunathan, A, Zhang, YJ, Sambasivam, R, Chua, BY, Ng, LL, Prince, M & Subramaniam, M 2016, 'Care participation and burden among informal caregivers of older adults with care needs and associations with dementia', International psychogeriatrics / IPA, vol. 28, no. 2, pp. 221-231. https://doi.org/10.1017/S104161021500160X

TY - JOUR

T1 - Care participation and burden among informal caregivers of older adults with care needs and associations with dementia

AU - Vaingankar, Janhavi Ajit

AU - Chong, Siow Ann

AU - Abdin, Edimansyah

AU - Picco, Louisa

AU - Jeyagurunathan, Anitha

AU - Zhang, Yun Jue

AU - Sambasivam, Rajeswari

AU - Chua, Boon Yiang

AU - Ng, Li Ling

AU - Prince, Martin

AU - Subramaniam, Mythily

PY - 2016/2/1

Y1 - 2016/2/1

N2 - Background: Few studies have estimated care burden in large, representative, multi-ethnic Asian population-based informal caregivers of older adults with care needs. This study describes informal caregivers' care participation for a population-based sample of older adults with care needs in Singapore, investigates differences by dementia status, and examines correlates of caregivers' burden. Methods: Data collected from 693 pairs of older adults, aged 60 to 100 years, having any care needs, and their informal caregivers, who were aged 21 to 88 years, closely involved in their care and "knew the older resident best," and were interviewed during a cross-sectional national survey, were used. Clinical characteristics of older adults, including behavioral and psychological symptoms of dementia (BPSD) and dementia diagnosis, care needs, and socio-demographic characteristics of participants were obtained. Care burden was assessed with the Zarit Burden Interview. Results: Informal caregivers' participation was highest in activities related to communication (35.1%), feeding (32%), and bathing (21.1%). Among the older adults with any care need, 356 (51.4%) had dementia. Care burden was significantly associated with married caregivers (odds ratio (OR) 2.4 vs. never married), when their relative belonged to a younger cohort (OR 2.5 vs. >84 years), needed care much of the time (OR 2.5 vs. no care needed), exhibited BPSD (OR 3.5 vs. no BPSD), and had dementia (OR 2.52 vs. no dementia). Conclusions: Factors related to older adults - more care needs, presence of BPSD, and dementia - were significant contributors to informal caregivers' burden, and these should be considered while planning interventions to alleviate care burden.

AB - Background: Few studies have estimated care burden in large, representative, multi-ethnic Asian population-based informal caregivers of older adults with care needs. This study describes informal caregivers' care participation for a population-based sample of older adults with care needs in Singapore, investigates differences by dementia status, and examines correlates of caregivers' burden. Methods: Data collected from 693 pairs of older adults, aged 60 to 100 years, having any care needs, and their informal caregivers, who were aged 21 to 88 years, closely involved in their care and "knew the older resident best," and were interviewed during a cross-sectional national survey, were used. Clinical characteristics of older adults, including behavioral and psychological symptoms of dementia (BPSD) and dementia diagnosis, care needs, and socio-demographic characteristics of participants were obtained. Care burden was assessed with the Zarit Burden Interview. Results: Informal caregivers' participation was highest in activities related to communication (35.1%), feeding (32%), and bathing (21.1%). Among the older adults with any care need, 356 (51.4%) had dementia. Care burden was significantly associated with married caregivers (odds ratio (OR) 2.4 vs. never married), when their relative belonged to a younger cohort (OR 2.5 vs. >84 years), needed care much of the time (OR 2.5 vs. no care needed), exhibited BPSD (OR 3.5 vs. no BPSD), and had dementia (OR 2.52 vs. no dementia). Conclusions: Factors related to older adults - more care needs, presence of BPSD, and dementia - were significant contributors to informal caregivers' burden, and these should be considered while planning interventions to alleviate care burden.

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KW - care need

KW - correlates of care burden

KW - Zarit Burden Interview

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AN - SCOPUS:84955193269

SN - 1041-6102

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JO - International psychogeriatrics / IPA

JF - International psychogeriatrics / IPA

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Care participation and burden among informal caregivers of older adults with care needs and associations with dementia

Abstract

Keywords

UN SDGs

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