King's College London

Research portal

Carer subjective burden after first episode psychosis: Types and predictors. A multilevel statistical approach

Research output: Contribution to journalArticle

Standard

Carer subjective burden after first episode psychosis: Types and predictors. A multilevel statistical approach. / Charles, Shereen; Kirkbride, James B; Onwumere, Juliana; Lyons, Natasha ; Man, Lai Chu; Floyd, Caroline ; Widuch, Kaja ; Brown, Lucy ; James, Gareth ; Afsharzadegan, Roya ; Souray, Jonathan ; Raune, David.

In: International Journal of Social Psychiatry, 10.06.2020.

Research output: Contribution to journalArticle

Harvard

Charles, S, Kirkbride, JB, Onwumere, J, Lyons, N, Man, LC, Floyd, C, Widuch, K, Brown, L, James, G, Afsharzadegan, R, Souray, J & Raune, D 2020, 'Carer subjective burden after first episode psychosis: Types and predictors. A multilevel statistical approach', International Journal of Social Psychiatry. https://doi.org/10.1177/0020764020930041

APA

Charles, S., Kirkbride, J. B., Onwumere, J., Lyons, N., Man, L. C., Floyd, C., Widuch, K., Brown, L., James, G., Afsharzadegan, R., Souray, J., & Raune, D. (2020). Carer subjective burden after first episode psychosis: Types and predictors. A multilevel statistical approach. International Journal of Social Psychiatry. https://doi.org/10.1177/0020764020930041

Vancouver

Charles S, Kirkbride JB, Onwumere J, Lyons N, Man LC, Floyd C et al. Carer subjective burden after first episode psychosis: Types and predictors. A multilevel statistical approach. International Journal of Social Psychiatry. 2020 Jun 10. https://doi.org/10.1177/0020764020930041

Author

Charles, Shereen ; Kirkbride, James B ; Onwumere, Juliana ; Lyons, Natasha ; Man, Lai Chu ; Floyd, Caroline ; Widuch, Kaja ; Brown, Lucy ; James, Gareth ; Afsharzadegan, Roya ; Souray, Jonathan ; Raune, David. / Carer subjective burden after first episode psychosis: Types and predictors. A multilevel statistical approach. In: International Journal of Social Psychiatry. 2020.

Bibtex Download

@article{ca654c20049f42a38d5f1002228a4c8e,
title = "Carer subjective burden after first episode psychosis: Types and predictors. A multilevel statistical approach",
abstract = "Background: Carer burden at first-episode psychosis is common and adds to the multiple other psychiatric and psychological problems that beset new carers; yet, knowledge of the factors that predict carer burden is limited. Aim: This study sought to investigate the types and predictors of carer burden at first-episode psychosis in the largest, most ethnically diverse and comprehensively characterised sample to date. Method: This study involved a cross-sectional survey of carers of people with first-episode psychosis presenting to Harrow and Hillingdon Early Intervention in Psychosis service between 2011 and 2017. Carers completed self-report measures assessing their illness beliefs, coping styles and caregiving experiences (i.e. burden). Thirty carer and patient sociodemographic and clinical factors were also collected. Mixed effects linear regression modelling was conducted to account for clustering of carers by patient, with carer burden (and its 8 subtypes) investigated as dependent variables. Results: The sample included data on 254 carers (aged 18–74 years) and 198 patients (aged 14–36 years). Regression modelling identified 35 significant predictors of carer burden and its subtypes at first-episode psychosis. Higher total burden was independently predicted by perceiving greater negative consequences of the illness for the patient (B =.014, p <.001, 95% CI: [.010–.018]) and the carer (B =.008, p =.002, 95% CI: [.003–.013]), and engaging in avoidant-focussed coping (B =.010, p =.006, 95% CI: [.003–.016]). Lower burden was independently predicted by patients being in a relationship (B = −.075, p =.047, 95% CI: [−.149 to −.001]). Predictors of the eight burden subtypes (difficult behaviours, negative symptoms, stigma, problems with services, effects on family, dependency, loss and need to backup) are also included in the article. Conclusion: Findings can be used to inform the identification of carers {\textquoteleft}at-risk{\textquoteright} of experiencing burden and highlight potential targets for theraputic intervention to lower carer buden.",
keywords = "Carer burden, coping styles, first-episode psychosis, illness beliefs, psychosis, subjective burden",
author = "Shereen Charles and Kirkbride, {James B} and Juliana Onwumere and Natasha Lyons and Man, {Lai Chu} and Caroline Floyd and Kaja Widuch and Lucy Brown and Gareth James and Roya Afsharzadegan and Jonathan Souray and David Raune",
year = "2020",
month = jun,
day = "10",
doi = "https://doi.org/10.1177/0020764020930041",
language = "English",
journal = "The International journal of social psychiatry",
issn = "0020-7640",
publisher = "SAGE Publications Ltd",

}

RIS (suitable for import to EndNote) Download

TY - JOUR

T1 - Carer subjective burden after first episode psychosis: Types and predictors. A multilevel statistical approach

AU - Charles, Shereen

AU - Kirkbride, James B

AU - Onwumere, Juliana

AU - Lyons, Natasha

AU - Man, Lai Chu

AU - Floyd, Caroline

AU - Widuch, Kaja

AU - Brown, Lucy

AU - James, Gareth

AU - Afsharzadegan, Roya

AU - Souray, Jonathan

AU - Raune, David

PY - 2020/6/10

Y1 - 2020/6/10

N2 - Background: Carer burden at first-episode psychosis is common and adds to the multiple other psychiatric and psychological problems that beset new carers; yet, knowledge of the factors that predict carer burden is limited. Aim: This study sought to investigate the types and predictors of carer burden at first-episode psychosis in the largest, most ethnically diverse and comprehensively characterised sample to date. Method: This study involved a cross-sectional survey of carers of people with first-episode psychosis presenting to Harrow and Hillingdon Early Intervention in Psychosis service between 2011 and 2017. Carers completed self-report measures assessing their illness beliefs, coping styles and caregiving experiences (i.e. burden). Thirty carer and patient sociodemographic and clinical factors were also collected. Mixed effects linear regression modelling was conducted to account for clustering of carers by patient, with carer burden (and its 8 subtypes) investigated as dependent variables. Results: The sample included data on 254 carers (aged 18–74 years) and 198 patients (aged 14–36 years). Regression modelling identified 35 significant predictors of carer burden and its subtypes at first-episode psychosis. Higher total burden was independently predicted by perceiving greater negative consequences of the illness for the patient (B =.014, p <.001, 95% CI: [.010–.018]) and the carer (B =.008, p =.002, 95% CI: [.003–.013]), and engaging in avoidant-focussed coping (B =.010, p =.006, 95% CI: [.003–.016]). Lower burden was independently predicted by patients being in a relationship (B = −.075, p =.047, 95% CI: [−.149 to −.001]). Predictors of the eight burden subtypes (difficult behaviours, negative symptoms, stigma, problems with services, effects on family, dependency, loss and need to backup) are also included in the article. Conclusion: Findings can be used to inform the identification of carers ‘at-risk’ of experiencing burden and highlight potential targets for theraputic intervention to lower carer buden.

AB - Background: Carer burden at first-episode psychosis is common and adds to the multiple other psychiatric and psychological problems that beset new carers; yet, knowledge of the factors that predict carer burden is limited. Aim: This study sought to investigate the types and predictors of carer burden at first-episode psychosis in the largest, most ethnically diverse and comprehensively characterised sample to date. Method: This study involved a cross-sectional survey of carers of people with first-episode psychosis presenting to Harrow and Hillingdon Early Intervention in Psychosis service between 2011 and 2017. Carers completed self-report measures assessing their illness beliefs, coping styles and caregiving experiences (i.e. burden). Thirty carer and patient sociodemographic and clinical factors were also collected. Mixed effects linear regression modelling was conducted to account for clustering of carers by patient, with carer burden (and its 8 subtypes) investigated as dependent variables. Results: The sample included data on 254 carers (aged 18–74 years) and 198 patients (aged 14–36 years). Regression modelling identified 35 significant predictors of carer burden and its subtypes at first-episode psychosis. Higher total burden was independently predicted by perceiving greater negative consequences of the illness for the patient (B =.014, p <.001, 95% CI: [.010–.018]) and the carer (B =.008, p =.002, 95% CI: [.003–.013]), and engaging in avoidant-focussed coping (B =.010, p =.006, 95% CI: [.003–.016]). Lower burden was independently predicted by patients being in a relationship (B = −.075, p =.047, 95% CI: [−.149 to −.001]). Predictors of the eight burden subtypes (difficult behaviours, negative symptoms, stigma, problems with services, effects on family, dependency, loss and need to backup) are also included in the article. Conclusion: Findings can be used to inform the identification of carers ‘at-risk’ of experiencing burden and highlight potential targets for theraputic intervention to lower carer buden.

KW - Carer burden

KW - coping styles

KW - first-episode psychosis

KW - illness beliefs

KW - psychosis

KW - subjective burden

UR - http://www.scopus.com/inward/record.url?scp=85086324593&partnerID=8YFLogxK

U2 - https://doi.org/10.1177/0020764020930041

DO - https://doi.org/10.1177/0020764020930041

M3 - Article

JO - The International journal of social psychiatry

JF - The International journal of social psychiatry

SN - 0020-7640

ER -

View graph of relations

© 2018 King's College London | Strand | London WC2R 2LS | England | United Kingdom | Tel +44 (0)20 7836 5454