Carers' assessment, skills and information sharing (CASIS) trial: A qualitative study of the experiential perspective of caregivers and patients

Pam Macdonald*, Charlotte Rhind, Rebecca Hibbs, Elizabeth Goddard, Simone Raenker, Gill Todd, Ulrike Schmidt, Janet Treasure

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

18 Citations (Scopus)

Abstract

Background 

Families express a need for guidance in helping their loved ones with anorexia nervosa (AN). Guided self-help interventions can offer support to caregivers. 

Methods 

One hundred seventy-eight adult AN patients and their caregivers were recruited from 15 UK treatment centres. Families were randomized to carers' assessment, skills and information sharing (C) intervention + treatment as usual (TAU) or TAU alone. Feedback forms were sent at 6 months post-discharge and, if not returned, at 12 months. One hundred two (57%) patient forms (n = 50TAU; n = 52C) and 115 (65%) caregiver forms (n = 60TAU; n = 55C) were returned. Two researchers coded data blind, using thematic analysis. 

Results 

(i) Caregivers and patients express a need for post-discharge support. (ii) Patients identify helpful and unhelpful support strategies, useful for developing future interventions. (iii) Patients could identify positive caregiver behaviour changes targeted in intervention. (iv) Guided self-help may benefit caregiver and sufferer, post-discharge. 

Conclusion 

Caregiver interventions can be a useful tool that will improve the cost effectiveness of inpatient treatment by enhancing the well-being of caregivers and patients.

Original languageEnglish
Pages (from-to)430-438
Number of pages9
JournalEuropean Eating Disorders Review
Volume22
Issue number6
Early online date29 Sept 2014
DOIs
Publication statusPublished - 1 Nov 2014

Keywords

  • anorexia nervosa
  • caregiver
  • eating disorders
  • qualitative research
  • skills training intervention

Fingerprint

Dive into the research topics of 'Carers' assessment, skills and information sharing (CASIS) trial: A qualitative study of the experiential perspective of caregivers and patients'. Together they form a unique fingerprint.

Cite this