Carers' assessment, skills and information sharing: theoretical framework and trial protocol for a randomised controlled trial evaluating the efficacy of a complex intervention for carers of inpatients with anorexia nervosa

Elizabeth Goddard; Simone Raenker; Pamela Macdonald; Gillian Todd; Jennifer Beecham; Ulrike Naumann; Eva-Maria Bonin; Ulrike Schmidt; Sabine Landau; Janet Treasure

doi:10.1002/erv.2193

Carers' assessment, skills and information sharing: theoretical framework and trial protocol for a randomised controlled trial evaluating the efficacy of a complex intervention for carers of inpatients with anorexia nervosa

Elizabeth Goddard, Simone Raenker, Pamela Macdonald, Gillian Todd, Jennifer Beecham, Ulrike Naumann, Eva-Maria Bonin, Ulrike Schmidt, Sabine Landau, Janet Treasure

Research output: Contribution to journal › Article › peer-review

23 Citations (Scopus)

Abstract

Experienced Carers Helping Others (ECHO) is a guided self-help intervention for carers of people with eating disorders to reduce distress and ameliorate interpersonal maintaining factors to improve patient outcomes. The aim of this paper is to describe the theoretical background and protocol of a randomised controlled trial that will establish whether ECHO has a significant beneficial effect for carers and the person they care for. Individuals with anorexia nervosa and carers will be recruited from eating disorder inpatient/day patient hospital services in the UK. Primary outcomes are time until relapse post-discharge (patient) and distress (carer) at 12 months post-discharge. Secondary outcomes are body mass index, eating disorder symptoms, psychosocial measures and health economic data for patients and carers. Carers will be randomised (stratified by site and illness severity) to receive ECHO (in addition to treatment as usual) or treatment as usual only. Potential difficulties in participant recruitment and delivery of the intervention are discussed.

Original language	English
Pages (from-to)	60-71
Number of pages	12
Journal	European Eating Disorders Review
Volume	21
Issue number	1
DOIs	https://doi.org/10.1002/erv.2193
Publication status	Published - Jan 2013

Keywords

Anorexia Nervosa
Caregivers
Communication
Cost-Benefit Analysis
Humans
Information Dissemination
Motivational Interviewing
Outcome and Process Assessment (Health Care)
Recurrence
Self Efficacy
Stress, Psychological
Acknowledged-BRC
Acknowledged-BRC-13/14

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10.1002/erv.2193

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Goddard, E., Raenker, S., Macdonald, P., Todd, G., Beecham, J., Naumann, U., Bonin, E.-M., Schmidt, U., Landau, S., & Treasure, J. (2013). Carers' assessment, skills and information sharing: theoretical framework and trial protocol for a randomised controlled trial evaluating the efficacy of a complex intervention for carers of inpatients with anorexia nervosa. European Eating Disorders Review, 21(1), 60-71. https://doi.org/10.1002/erv.2193

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abstract = "Experienced Carers Helping Others (ECHO) is a guided self-help intervention for carers of people with eating disorders to reduce distress and ameliorate interpersonal maintaining factors to improve patient outcomes. The aim of this paper is to describe the theoretical background and protocol of a randomised controlled trial that will establish whether ECHO has a significant beneficial effect for carers and the person they care for. Individuals with anorexia nervosa and carers will be recruited from eating disorder inpatient/day patient hospital services in the UK. Primary outcomes are time until relapse post-discharge (patient) and distress (carer) at 12 months post-discharge. Secondary outcomes are body mass index, eating disorder symptoms, psychosocial measures and health economic data for patients and carers. Carers will be randomised (stratified by site and illness severity) to receive ECHO (in addition to treatment as usual) or treatment as usual only. Potential difficulties in participant recruitment and delivery of the intervention are discussed.",

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author = "Elizabeth Goddard and Simone Raenker and Pamela Macdonald and Gillian Todd and Jennifer Beecham and Ulrike Naumann and Eva-Maria Bonin and Ulrike Schmidt and Sabine Landau and Janet Treasure",

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doi = "10.1002/erv.2193",

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Goddard, E , Raenker, S , Macdonald, P, Todd, G, Beecham, J, Naumann, U, Bonin, E-M, Schmidt, U , Landau, S & Treasure, J 2013, 'Carers' assessment, skills and information sharing: theoretical framework and trial protocol for a randomised controlled trial evaluating the efficacy of a complex intervention for carers of inpatients with anorexia nervosa', European Eating Disorders Review, vol. 21, no. 1, pp. 60-71. https://doi.org/10.1002/erv.2193

Carers' assessment, skills and information sharing: theoretical framework and trial protocol for a randomised controlled trial evaluating the efficacy of a complex intervention for carers of inpatients with anorexia nervosa. / Goddard, Elizabeth ; Raenker, Simone ; Macdonald, Pamela et al.
In: European Eating Disorders Review, Vol. 21, No. 1, 01.2013, p. 60-71.

Research output: Contribution to journal › Article › peer-review

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AU - Macdonald, Pamela

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AU - Beecham, Jennifer

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AB - Experienced Carers Helping Others (ECHO) is a guided self-help intervention for carers of people with eating disorders to reduce distress and ameliorate interpersonal maintaining factors to improve patient outcomes. The aim of this paper is to describe the theoretical background and protocol of a randomised controlled trial that will establish whether ECHO has a significant beneficial effect for carers and the person they care for. Individuals with anorexia nervosa and carers will be recruited from eating disorder inpatient/day patient hospital services in the UK. Primary outcomes are time until relapse post-discharge (patient) and distress (carer) at 12 months post-discharge. Secondary outcomes are body mass index, eating disorder symptoms, psychosocial measures and health economic data for patients and carers. Carers will be randomised (stratified by site and illness severity) to receive ECHO (in addition to treatment as usual) or treatment as usual only. Potential difficulties in participant recruitment and delivery of the intervention are discussed.

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Goddard E , Raenker S , Macdonald P, Todd G, Beecham J, Naumann U et al. Carers' assessment, skills and information sharing: theoretical framework and trial protocol for a randomised controlled trial evaluating the efficacy of a complex intervention for carers of inpatients with anorexia nervosa. European Eating Disorders Review. 2013 Jan;21(1):60-71. doi: 10.1002/erv.2193