Abstract
Background/aims: To successfully integrate a newly developed measure into clinical practice, the challenges and incentives for implementation must be understood, and these are specific to each measure. Previous research has focused on disease-specific measures, or the use of outcome measures in adult palliative care. Evidence is needed to ensure successful integration of new person-centred outcome measures (PCOMs) in the paediatric palliative care context.
Aim: To identify health and social care professionals (HSCP), and paediatric palliative care service commissioners’ perspectives on the challenges and incentives to integrating PCOMs into routine paediatric palliative care practice.
Methods: Semi-structured interviews with purposively sampled HSCPs (caring for children <18 with life-limiting or life-threatening conditions) recruited from 9 UK sites; and commissioners of UK paediatric palliative care services recruited via a non-governmental organisation or direct recommendations. Verbatim transcripts were analysed using a framework approach and inductive coding in NVivo. 15 HSCPs and 12 commissioners were interviewed.
Results: Potential incentives for the use of a new PCOM included: (1) the measure helping HSCPs better understand what matters to children and families, (2) enabling better allocation of resources and services, and (3) enabling joined up working across teams and services. Potential challenges included: (1) gatekeeping by family members and (2) added workload for already stretched clinical services.
Conclusions: Understanding the perspectives of HSCPs and commissioners is essential for successfully integrating a new PCOM into paediatric healthcare practice. Identification of the potential challenges and incentives form the outset, with concomitant strategies for implementation, will help to ensure uptake into routine practice.
CPOS was funded by the European Research Council’s Horizon 2020 programme [Grant ID: 772635]
Aim: To identify health and social care professionals (HSCP), and paediatric palliative care service commissioners’ perspectives on the challenges and incentives to integrating PCOMs into routine paediatric palliative care practice.
Methods: Semi-structured interviews with purposively sampled HSCPs (caring for children <18 with life-limiting or life-threatening conditions) recruited from 9 UK sites; and commissioners of UK paediatric palliative care services recruited via a non-governmental organisation or direct recommendations. Verbatim transcripts were analysed using a framework approach and inductive coding in NVivo. 15 HSCPs and 12 commissioners were interviewed.
Results: Potential incentives for the use of a new PCOM included: (1) the measure helping HSCPs better understand what matters to children and families, (2) enabling better allocation of resources and services, and (3) enabling joined up working across teams and services. Potential challenges included: (1) gatekeeping by family members and (2) added workload for already stretched clinical services.
Conclusions: Understanding the perspectives of HSCPs and commissioners is essential for successfully integrating a new PCOM into paediatric healthcare practice. Identification of the potential challenges and incentives form the outset, with concomitant strategies for implementation, will help to ensure uptake into routine practice.
CPOS was funded by the European Research Council’s Horizon 2020 programme [Grant ID: 772635]
| Original language | English |
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| Publication status | Published - 2022 |
| Event | 12th World Research Congress of the European Association for Palliative Care - Virtual Duration: 18 May 2022 → 20 Aug 2022 |
Conference
| Conference | 12th World Research Congress of the European Association for Palliative Care |
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| Period | 18/05/2022 → 20/08/2022 |