Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines

The Eating Disorder and Autism Collaborative Network (EDAC)

doi:10.1080/10640266.2024.2441540

Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines

The Eating Disorder and Autism Collaborative Network (EDAC)

Research output: Contribution to journal › Comment/debate › peer-review

Abstract

There is a notable overlap between autism and eating disorders (EDs), and autistic individuals may experience poorer ED treatment outcomes than non-autistic peers. To make meaningful change in this field, it is imperative that we actively engage in co-production of research, however there are currently no guidelines to support co-production with autistic people with eating disorders. This paper reports on best practice guidelines that were co-produced across a series of workshops bringing together autistic people with EDs, researchers, clinicians, third-sector organisations, and parents/carers. The guidelines are intended to be used as a foundation for future co-produced autism and ED research. By creating a trusted, ethical co-production relationship, we hope to generate more clinically meaningful and translatable research.

Original language	English
Journal	Eating Disorders
DOIs	https://doi.org/10.1080/10640266.2024.2441540
Publication status	Accepted/In press - 2024

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10.1080/10640266.2024.2441540

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title = "Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines",

abstract = "There is a notable overlap between autism and eating disorders (EDs), and autistic individuals may experience poorer ED treatment outcomes than non-autistic peers. To make meaningful change in this field, it is imperative that we actively engage in co-production of research, however there are currently no guidelines to support co-production with autistic people with eating disorders. This paper reports on best practice guidelines that were co-produced across a series of workshops bringing together autistic people with EDs, researchers, clinicians, third-sector organisations, and parents/carers. The guidelines are intended to be used as a foundation for future co-produced autism and ED research. By creating a trusted, ethical co-production relationship, we hope to generate more clinically meaningful and translatable research.",

author = "{The Eating Disorder and Autism Collaborative Network (EDAC)} and Emy Nimbley and Ellen Maloney and Karri Gillespie-Smith and Helen Sharpe and Kyle Buchan and Sarah Kettley and Jessica Bragg and Alison Shepherd and Becky Choat and Joseph Long and Isla Whateley and Ollie Booth and Baker, {Julie Anne} and Nix Renton and Emily Nuttal and Harriet Darling and Lin Fidgin and Laura Campbell and Tasha Suratwala and Casper Temple and Kayleigh MacDonald and Sammi Carden and Bryanna Lazich and Jess Kerr-Gaffney and Michelle Sader and Gordon Waiter and Kate Tchanturia and Fiona Duffy",

note = "Publisher Copyright: {\textcopyright} 2024 The Author(s). Published with license by Taylor & Francis Group, LLC.",

year = "2024",

doi = "10.1080/10640266.2024.2441540",

language = "English",

journal = "Eating Disorders",

issn = "1064-0266",

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AU - The Eating Disorder and Autism Collaborative Network (EDAC)

AU - Nimbley, Emy

AU - Maloney, Ellen

AU - Gillespie-Smith, Karri

AU - Sharpe, Helen

AU - Buchan, Kyle

AU - Kettley, Sarah

AU - Bragg, Jessica

AU - Shepherd, Alison

AU - Choat, Becky

AU - Long, Joseph

AU - Whateley, Isla

AU - Booth, Ollie

AU - Baker, Julie Anne

AU - Renton, Nix

AU - Nuttal, Emily

AU - Darling, Harriet

AU - Fidgin, Lin

AU - Campbell, Laura

AU - Suratwala, Tasha

AU - Temple, Casper

AU - MacDonald, Kayleigh

AU - Carden, Sammi

AU - Lazich, Bryanna

AU - Kerr-Gaffney, Jess

AU - Sader, Michelle

AU - Waiter, Gordon

AU - Tchanturia, Kate

AU - Duffy, Fiona

PY - 2024

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AB - There is a notable overlap between autism and eating disorders (EDs), and autistic individuals may experience poorer ED treatment outcomes than non-autistic peers. To make meaningful change in this field, it is imperative that we actively engage in co-production of research, however there are currently no guidelines to support co-production with autistic people with eating disorders. This paper reports on best practice guidelines that were co-produced across a series of workshops bringing together autistic people with EDs, researchers, clinicians, third-sector organisations, and parents/carers. The guidelines are intended to be used as a foundation for future co-produced autism and ED research. By creating a trusted, ethical co-production relationship, we hope to generate more clinically meaningful and translatable research.

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DO - 10.1080/10640266.2024.2441540

M3 - Comment/debate

AN - SCOPUS:85212970566

SN - 1064-0266

JO - Eating Disorders

JF - Eating Disorders

ER -

Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines

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