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Co-producing novel wound care products for Epidermolysis bullosa; an empirical case study of the use of surrogates in the design and prototype development process

Research output: Contribution to journalArticle

Patricia Grocott, Rebecca Blackwell, Conchita Currie, Elizabeth Pillay, Glenn Robert

Original languageEnglish
Pages (from-to)265-273
Number of pages9
JournalInternational Wound Journal
Volume10
Issue number3
DOIs
Publication statusE-pub ahead of print - Jun 2013

King's Authors

Abstract

The Woundcare for Epidermolysis bullosa (WEB) project aims to generate wound care products that are tailored to the needs of people with Epidermolysis bullosa (EB). EB is an inherited disorder causing extensive, painful skin blistering and wounds. The experiences of adults with EB, their carers and specialist nurses were explored in a series of workshops. Significant unmet needs were revealed in relation to the performance of wound care products, which led to the design, development and manufacture of a novel dressing retention garment. The intention in WEB was to develop the novel products based principally on the experiences and input of the people with EB. However certain obstacles arose which necessitated the use of surrogates to review and refine prototype designs .This paper gives an account of the process, presenting the arguments for and against the use of surrogates, and offers suggestions for incorporating surrogate input into medical device development, without damaging the integrity of patient experiences and participation.

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