COVID-19 and UK family carers: policy implications

Juliana Onwumere; Cathy Creswell; Gill Livingston; David Shiers; Kate Tchanturia; Tony Charman; Alisa Russell; Janet Treasure; Marta Di Forti; Emilie Wildman; Helen Minnis; Allan Young; Annette Davis; Elizabeth Kuipers

doi:10.1016/S2215-0366(21)00206-6

COVID-19 and UK family carers: policy implications

Juliana Onwumere^*, Cathy Creswell, Gill Livingston, David Shiers, Kate Tchanturia, Tony Charman, Alisa Russell, Janet Treasure, Marta Di Forti, Emilie Wildman, Helen Minnis, Allan Young, Annette Davis, Elizabeth Kuipers

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

19 Citations (Scopus)

Abstract

Informal (unpaid) carers are an integral part of all societies and the health and social care systems in the UK depend on them. Despite the valuable contributions and key worker status of informal carers, their lived experiences, wellbeing, and needs have been neglected during the COVID-19 pandemic. In this Health Policy, we bring together a broad range of clinicians, researchers, and people with lived experience as informal carers to share their thoughts on the impact of the COVID-19 pandemic on UK carers, many of whom have felt abandoned as services closed. We focus on the carers of children and young people and adults and older adults with mental health diagnoses, and carers of people with intellectual disability or neurodevelopmental conditions across different care settings over the lifespan. We provide policy recommendations with the aim of improving outcomes for all carers.

Original language	English
Pages (from-to)	929-936
Number of pages	8
Journal	The Lancet Psychiatry
Volume	8
Issue number	10
DOIs	https://doi.org/10.1016/S2215-0366(21)00206-6
Publication status	Published - Oct 2021

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title = "COVID-19 and UK family carers: policy implications",

abstract = "Informal (unpaid) carers are an integral part of all societies and the health and social care systems in the UK depend on them. Despite the valuable contributions and key worker status of informal carers, their lived experiences, wellbeing, and needs have been neglected during the COVID-19 pandemic. In this Health Policy, we bring together a broad range of clinicians, researchers, and people with lived experience as informal carers to share their thoughts on the impact of the COVID-19 pandemic on UK carers, many of whom have felt abandoned as services closed. We focus on the carers of children and young people and adults and older adults with mental health diagnoses, and carers of people with intellectual disability or neurodevelopmental conditions across different care settings over the lifespan. We provide policy recommendations with the aim of improving outcomes for all carers.",

author = "Juliana Onwumere and Cathy Creswell and Gill Livingston and David Shiers and Kate Tchanturia and Tony Charman and Alisa Russell and Janet Treasure and {Di Forti}, Marta and Emilie Wildman and Helen Minnis and Allan Young and Annette Davis and Elizabeth Kuipers",

note = "Funding Information: GL is supported by University College London Hospitals? National Institute for Health Research (NIHR) Biomedical Research Centre (North Thames NIHR Applied Research Collaboration) as an NIHR senior investigator. This Health Policy is partly funded by the NIHR Biomedical Research Centre at South London and Maudsley National Health Service (NHS) Foundation Trust, King's College London; the views expressed are the authors? own and are not necessarily those of the NHS, the NIHR, or the UK Department of Health. CC thanks the NIHR Applied Research Collaboration Oxford and Thames Valley. Funding Information: GL is supported by University College London Hospitals{\textquoteright} National Institute for Health Research (NIHR) Biomedical Research Centre (North Thames NIHR Applied Research Collaboration) as an NIHR senior investigator. This Health Policy is partly funded by the NIHR Biomedical Research Centre at South London and Maudsley National Health Service (NHS) Foundation Trust, King's College London; the views expressed are the authors{\textquoteright} own and are not necessarily those of the NHS, the NIHR, or the UK Department of Health. CC thanks the NIHR Applied Research Collaboration Oxford and Thames Valley. Publisher Copyright: {\textcopyright} 2021 Elsevier Ltd Copyright: Copyright 2021 Elsevier B.V., All rights reserved.",

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AU - Creswell, Cathy

AU - Livingston, Gill

AU - Shiers, David

AU - Tchanturia, Kate

AU - Charman, Tony

AU - Russell, Alisa

AU - Treasure, Janet

AU - Di Forti, Marta

AU - Wildman, Emilie

AU - Minnis, Helen

AU - Young, Allan

AU - Davis, Annette

AU - Kuipers, Elizabeth

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ER -

COVID-19 and UK family carers: policy implications

Abstract

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