Current collaboration between palliative care and neurology: A survey of clinicians in Europe

David Oliver*, Gian Domenico Borasio, Simone Veronese, Raymond Voltz, Stefan Lorenzl, Nilay Hepgul

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

13 Citations (Scopus)

Abstract

Introduction: The collaboration between palliative care and neurology has developed over the last 25 years and this study aimed to ascertain the collaboration between the specialties across Europe. Methods: This online survey aimed to look at collaboration across Europe, using the links of the European Association for Palliative Care and the European Academy of Neurology. Results: 298 people completed the survey - 178 from palliative care and 120 from neurology from over 20 countries across Europe. They reported that there was good collaboration in the care for people with amyotrophic lateral sclerosis and cerebral tumours but less for other progressive neurological diseases. The collaboration included joint meetings and clinics and telephone contacts. All felt that the collaboration was helpful, particularly for maintaining quality of life, physical symptom management, psychological support and complex decision making, including ethical issues. Discussion: The study shows evidence for collaboration between palliative care and neurology, but with the need to develop this for all neurological illness, and there is a need for increased education of both areas.

Original languageEnglish
Article number002322
JournalBMJ Supportive and Palliative Care
DOIs
Publication statusAccepted/In press - 2020

Keywords

  • education and training
  • neurological conditions
  • quality of life
  • service evaluation

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