Cystic fibrosis carrier screening in Veneto (Italy): an ethical analysis

Tommaso Bruni; Matteo Mameli; Gabriella Pravettoni; Giovanni Boniolo

doi:10.1007/s11019-011-9347-7

Cystic fibrosis carrier screening in Veneto (Italy): an ethical analysis

Tommaso Bruni
, Matteo Mameli
, Gabriella Pravettoni
, Giovanni Boniolo

Philosophy

Research output: Contribution to journal › Article › peer-review

7 Citations (Scopus)

Abstract

A recent study by Castellani et al. (JAMA 302(23): 2573-2579, 2009) describes the population-level effects of the choices of individuals who underwent molecular carrier screening for cystic fibrosis (CF) in Veneto, in the northeastern part of Italy, between 1993 and 2007. We discuss some of the ethical issues raised by the policies and individual choices that are the subject of this study. In particular, (1) we discuss the ethical issues raised by the acquisition of genetic information through antenatal carrier testing; (2) we consider whether by choosing to procreate naturally these couples can harm the resulting child and/or other members of society, and what the moral implications of such harm would be; (3) we consider whether by choosing to avoid natural procreation carrier couples can harm current or future individuals affected by cystic fibrosis; (4) we discuss whether programs that make carrier testing available can be considered eugenic programs.

Original language	English
Pages (from-to)	321-328
Number of pages	8
Journal	Medicine Health Care And Philosophy
Volume	15
Issue number	3
DOIs	https://doi.org/10.1007/s11019-011-9347-7
Publication status	Published - Aug 2012

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This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

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10.1007/s11019-011-9347-7

Cite this

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abstract = "A recent study by Castellani et al. (JAMA 302(23): 2573-2579, 2009) describes the population-level effects of the choices of individuals who underwent molecular carrier screening for cystic fibrosis (CF) in Veneto, in the northeastern part of Italy, between 1993 and 2007. We discuss some of the ethical issues raised by the policies and individual choices that are the subject of this study. In particular, (1) we discuss the ethical issues raised by the acquisition of genetic information through antenatal carrier testing; (2) we consider whether by choosing to procreate naturally these couples can harm the resulting child and/or other members of society, and what the moral implications of such harm would be; (3) we consider whether by choosing to avoid natural procreation carrier couples can harm current or future individuals affected by cystic fibrosis; (4) we discuss whether programs that make carrier testing available can be considered eugenic programs.",

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AU - Bruni, Tommaso

AU - Mameli, Matteo

AU - Pravettoni, Gabriella

AU - Boniolo, Giovanni

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AB - A recent study by Castellani et al. (JAMA 302(23): 2573-2579, 2009) describes the population-level effects of the choices of individuals who underwent molecular carrier screening for cystic fibrosis (CF) in Veneto, in the northeastern part of Italy, between 1993 and 2007. We discuss some of the ethical issues raised by the policies and individual choices that are the subject of this study. In particular, (1) we discuss the ethical issues raised by the acquisition of genetic information through antenatal carrier testing; (2) we consider whether by choosing to procreate naturally these couples can harm the resulting child and/or other members of society, and what the moral implications of such harm would be; (3) we consider whether by choosing to avoid natural procreation carrier couples can harm current or future individuals affected by cystic fibrosis; (4) we discuss whether programs that make carrier testing available can be considered eugenic programs.

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JO - Medicine Health Care And Philosophy

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ER -

Cystic fibrosis carrier screening in Veneto (Italy): an ethical analysis

Abstract

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