Dementia wellbeing and COVID-19: Review and expert consensus on current research and knowledge gaps

Kathy Y. Liu*, Robert Howard, Sube Banerjee, Adelina Comas-Herrera, Joanne Goddard, Martin Knapp, Gill Livingston, Jill Manthorpe, John T. O'Brien, Ross W. Paterson, Louise Robinson, Martin Rossor, James B. Rowe, David J. Sharp, Andrew Sommerlad, Aida Suárez-González, Alistair Burns

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

45 Citations (Scopus)

Abstract

Objectives

In response to a commissioned research update on dementia during the COVID-19 pandemic, a UK-based working group, comprising dementia researchers from a range of fields and disciplines, aimed to describe the impact of the pandemic on dementia wellbeing and identify priorities for future research.

Methods

We supplemented a rapid literature search (including unpublished, non-peer reviewed and ongoing studies/reports) on dementia wellbeing in the context of COVID-19 with expert group members' consensus about future research needs. From this we generated potential research questions the group judged to be relevant that were not covered by the existing literature.

Results

Themes emerged from 141 studies within the six domains of the NHS England COVID-19 Dementia Wellbeing Pathway: Preventing Well, Diagnosing Well, Treating Well, Supporting Well, Living Well and Dying Well. We describe current research findings and knowledge gaps relating to the impact on people affected by dementia (individuals with a diagnosis, their carers and social contacts, health and social care practitioners and volunteers), services, research activities and organisations. Broad themes included the potential benefits and risks of new models of working including remote healthcare, the need for population-representative longitudinal studies to monitor longer-term impacts, and the importance of reporting dementia-related findings within broader health and care studies.

Conclusions

The COVID-19 pandemic has had a disproportionately negative impact on people affected by dementia. Researchers and funding organisations have responded rapidly to try to understand the impacts. Future research should highlight and resolve outstanding questions to develop evidence-based measures to improve the quality of life of people affected by dementia.

Original languageEnglish
Pages (from-to)1597-1639
Number of pages43
JournalInternational Journal of Geriatric Psychiatry
Volume36
Issue number11
Early online date27 May 2021
DOIs
Publication statusPublished - Nov 2021

Keywords

  • COVID-19
  • dementia
  • research
  • wellbeing

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