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Developing a model of short-term integrated palliative and supportive care for frail older people in community settings: perspectives of older people, carers and other key stakeholders

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Developing a model of short-term integrated palliative and supportive care for frail older people in community settings: perspectives of older people, carers and other key stakeholders. / Bone, Anna E.; Morgan, Myfanwy; Maddocks, Matthew; Sleeman, Katherine E.; Wright, Juliet ; Taherzadeh, Shamim; Ellis-Smith, Alexandra; Higginson, Irene J.; Evans, Catherine J.

In: Age and Ageing, Vol. 45, No. 6, 02.11.2016, p. 863-873.

Research output: Contribution to journalArticle

Harvard

Bone, AE, Morgan, M, Maddocks, M, Sleeman, KE, Wright, J, Taherzadeh, S, Ellis-Smith, A, Higginson, IJ & Evans, CJ 2016, 'Developing a model of short-term integrated palliative and supportive care for frail older people in community settings: perspectives of older people, carers and other key stakeholders', Age and Ageing, vol. 45, no. 6, pp. 863-873. https://doi.org/10.1093/ageing/afw124

APA

Bone, A. E., Morgan, M., Maddocks, M., Sleeman, K. E., Wright, J., Taherzadeh, S., Ellis-Smith, A., Higginson, I. J., & Evans, C. J. (2016). Developing a model of short-term integrated palliative and supportive care for frail older people in community settings: perspectives of older people, carers and other key stakeholders. Age and Ageing, 45(6), 863-873. https://doi.org/10.1093/ageing/afw124

Vancouver

Bone AE, Morgan M, Maddocks M, Sleeman KE, Wright J, Taherzadeh S et al. Developing a model of short-term integrated palliative and supportive care for frail older people in community settings: perspectives of older people, carers and other key stakeholders. Age and Ageing. 2016 Nov 2;45(6):863-873. https://doi.org/10.1093/ageing/afw124

Author

Bone, Anna E. ; Morgan, Myfanwy ; Maddocks, Matthew ; Sleeman, Katherine E. ; Wright, Juliet ; Taherzadeh, Shamim ; Ellis-Smith, Alexandra ; Higginson, Irene J. ; Evans, Catherine J. / Developing a model of short-term integrated palliative and supportive care for frail older people in community settings: perspectives of older people, carers and other key stakeholders. In: Age and Ageing. 2016 ; Vol. 45, No. 6. pp. 863-873.

Bibtex Download

@article{e018aa1ffc1941db9d4329b9d4b5574e,
title = "Developing a model of short-term integrated palliative and supportive care for frail older people in community settings: perspectives of older people, carers and other key stakeholders",
abstract = "Background: Understanding how best to provide palliative care for frail older people with non-malignant conditions is an international priority. We aimed to develop a community-based episodic model of short-term integrated palliative and supportive care (SIPS) based on the views of service users and other key stakeholders in the United Kingdom.Method: Transparent expert consultations with health professionals, voluntary sector and carer representatives including a consensus survey; and focus groups with older people and carers were used to generate recommendations for the SIPS model. Discussions focused on three key components of the model: potential benefit of SIPS; timing of delivery; and processes of integrated working between specialist palliative care and generalist practitioners. Content and descriptive analysis was employed and findings integrated across the data sources. Findings: We conducted two expert consultations (n=63), a consensus survey (n=42) and three focus groups (n=17). Potential benefits of SIPS included holistic assessment, opportunity for end of life discussion, symptom management, and carer reassurance. Older people and carers advocated early access to SIPS, while other stakeholders proposed delivery based on complex symptom burden. A priority for integrated working was the assignment of a key worker to coordinate care, but the assignment criteria remain uncertain.Interpretation: Key stakeholders agree that a model of SIPS for frail older people with non-malignant conditions has potential benefits within community settings, but differ in opinion on the optimal timing and indications for this service. Our findings highlight the importance of consulting all key stakeholders in model development prior to feasibility evaluation.",
keywords = "Frail Elderly, Palliative Care, Primary Health Care, Qualitative Research, Consensus",
author = "Bone, {Anna E.} and Myfanwy Morgan and Matthew Maddocks and Sleeman, {Katherine E.} and Juliet Wright and Shamim Taherzadeh and Alexandra Ellis-Smith and Higginson, {Irene J.} and Evans, {Catherine J.}",
year = "2016",
month = nov,
day = "2",
doi = "10.1093/ageing/afw124",
language = "English",
volume = "45",
pages = "863--873",
journal = "Age and Ageing",
issn = "0002-0729",
publisher = "Oxford University Press",
number = "6",

}

RIS (suitable for import to EndNote) Download

TY - JOUR

T1 - Developing a model of short-term integrated palliative and supportive care for frail older people in community settings: perspectives of older people, carers and other key stakeholders

AU - Bone, Anna E.

AU - Morgan, Myfanwy

AU - Maddocks, Matthew

AU - Sleeman, Katherine E.

AU - Wright, Juliet

AU - Taherzadeh, Shamim

AU - Ellis-Smith, Alexandra

AU - Higginson, Irene J.

AU - Evans, Catherine J.

PY - 2016/11/2

Y1 - 2016/11/2

N2 - Background: Understanding how best to provide palliative care for frail older people with non-malignant conditions is an international priority. We aimed to develop a community-based episodic model of short-term integrated palliative and supportive care (SIPS) based on the views of service users and other key stakeholders in the United Kingdom.Method: Transparent expert consultations with health professionals, voluntary sector and carer representatives including a consensus survey; and focus groups with older people and carers were used to generate recommendations for the SIPS model. Discussions focused on three key components of the model: potential benefit of SIPS; timing of delivery; and processes of integrated working between specialist palliative care and generalist practitioners. Content and descriptive analysis was employed and findings integrated across the data sources. Findings: We conducted two expert consultations (n=63), a consensus survey (n=42) and three focus groups (n=17). Potential benefits of SIPS included holistic assessment, opportunity for end of life discussion, symptom management, and carer reassurance. Older people and carers advocated early access to SIPS, while other stakeholders proposed delivery based on complex symptom burden. A priority for integrated working was the assignment of a key worker to coordinate care, but the assignment criteria remain uncertain.Interpretation: Key stakeholders agree that a model of SIPS for frail older people with non-malignant conditions has potential benefits within community settings, but differ in opinion on the optimal timing and indications for this service. Our findings highlight the importance of consulting all key stakeholders in model development prior to feasibility evaluation.

AB - Background: Understanding how best to provide palliative care for frail older people with non-malignant conditions is an international priority. We aimed to develop a community-based episodic model of short-term integrated palliative and supportive care (SIPS) based on the views of service users and other key stakeholders in the United Kingdom.Method: Transparent expert consultations with health professionals, voluntary sector and carer representatives including a consensus survey; and focus groups with older people and carers were used to generate recommendations for the SIPS model. Discussions focused on three key components of the model: potential benefit of SIPS; timing of delivery; and processes of integrated working between specialist palliative care and generalist practitioners. Content and descriptive analysis was employed and findings integrated across the data sources. Findings: We conducted two expert consultations (n=63), a consensus survey (n=42) and three focus groups (n=17). Potential benefits of SIPS included holistic assessment, opportunity for end of life discussion, symptom management, and carer reassurance. Older people and carers advocated early access to SIPS, while other stakeholders proposed delivery based on complex symptom burden. A priority for integrated working was the assignment of a key worker to coordinate care, but the assignment criteria remain uncertain.Interpretation: Key stakeholders agree that a model of SIPS for frail older people with non-malignant conditions has potential benefits within community settings, but differ in opinion on the optimal timing and indications for this service. Our findings highlight the importance of consulting all key stakeholders in model development prior to feasibility evaluation.

KW - Frail Elderly

KW - Palliative Care

KW - Primary Health Care

KW - Qualitative Research

KW - Consensus

UR - http://www.scopus.com/inward/record.url?scp=85019559450&partnerID=8YFLogxK

U2 - 10.1093/ageing/afw124

DO - 10.1093/ageing/afw124

M3 - Article

VL - 45

SP - 863

EP - 873

JO - Age and Ageing

JF - Age and Ageing

SN - 0002-0729

IS - 6

ER -

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