Developing a roadmap for cancer patient experience initiatives in Saudi Arabia: lessons from health care settings in the United States and England

Saleh Alessy, Ali Asery, Ali Al-Zahrani, Elizabeth Davies

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Abstract

Patient experience is now widely used as a measure of healthcare quality. In Saudi Arabia, the public healthcare system is being transformed at a national level to improve the health care services provided. Patient experience assessment initiatives have started across many care settings including cancer care. Gathering data on cancer patients’ experiences of care has been introduced nationally in the United States (US) and England and continued to be used for over two decades. This resulted in a considerable amount of literature on what patient experience is, how to measure it, and how it can be applied within cancer care settings. In this paper we aim to set out lessons learned from the US and England in assessing and using cancer patient experience data in order to inform current patient experience initiatives in Saudi Arabia. These lessons include how to define patient experience, explain its different aspects and their measurement, and maximise both the value and use of the data gathered. Several methodological and implementation challenges have been found in the US and English literature that need to be taken into account in order to meet the patient experience goals in Saudi Arabia. These include developing specific patient experience definition and its different aspects, using the appropriate data collection methods, gathering representative patient perspectives, and overcoming resistance among health professionals.
Original languageEnglish
JournalEuropean Journal for Person Centered Healthcare
Early online date17 Jun 2020
Publication statusE-pub ahead of print - 17 Jun 2020

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