Early impacts of the COVID-19 pandemic on mental health care and on people with mental health conditions: framework synthesis of international experiences and responses

Luke Sheridan Rains; Sonia Johnson; Phoebe Barnett; Thomas Steare; Justin J. Needle; Sarah Carr; Billie Lever Taylor; Francesca Bentivegna; Julian Edbrooke-Childs; Hannah Rachel Scott; Jessica Rees; Prisha Shah; Jo Lomani; Beverley Chipp; Nick Barber; Zainab Dedat; Sian Oram; Nicola Morant; Alan Simpson; The COVID-19 Mental Health Policy Research Unit Group; Alexia Papamichail; Anna Moore; Annie Jeffery; Blanca Sanz Magallón Duque De Estrada; Brendan Hallam; Brynmor Lloyd-Evans; Carolina Yanez Contreras; Celia Esteban Serna; Chukwuma Ntephe; Daphne Lamirel; Eleanor Cooke; Eiluned Pearce; Frederike Lemmel; Freya Koutsoubelis; Guendalina Cragnolini; Jasmine Harju-Seppänen; Jingyi Wang; Joseph Botham; Karima Abdou; Karolin Krause; Kati Jane Turner; Konstantina Poursanidou; Lisa Gruenwald; Louisa Jagmetti; Lucia Mazzocchi; Magdalena Tomaskova; Marcella Montagnese; Mélanie Mahé; Qian Gao; Una Foye; Vasiliki Tzouvara

doi:10.1007/s00127-020-01924-7

Early impacts of the COVID-19 pandemic on mental health care and on people with mental health conditions: framework synthesis of international experiences and responses

Luke Sheridan Rains, Sonia Johnson^*, Phoebe Barnett, Thomas Steare, Justin J. Needle, Sarah Carr, Billie Lever Taylor, Francesca Bentivegna, Julian Edbrooke-Childs, Hannah Rachel Scott, Jessica Rees, Prisha Shah, Jo Lomani, Beverley Chipp, Nick Barber, Zainab Dedat, Sian Oram, Nicola Morant, Alan Simpson, The COVID-19 Mental Health Policy Research Unit GroupAlexia Papamichail, Anna Moore, Annie Jeffery, Blanca Sanz Magallón Duque De Estrada, Brendan Hallam, Brynmor Lloyd-Evans, Carolina Yanez Contreras, Celia Esteban Serna, Chukwuma Ntephe, Daphne Lamirel, Eleanor Cooke, Eiluned Pearce, Frederike Lemmel, Freya Koutsoubelis, Guendalina Cragnolini, Jasmine Harju-Seppänen, Jingyi Wang, Joseph Botham, Karima Abdou, Karolin Krause, Kati Jane Turner, Konstantina Poursanidou, Lisa Gruenwald, Louisa Jagmetti, Lucia Mazzocchi, Magdalena Tomaskova, Marcella Montagnese, Mélanie Mahé, Qian Gao, Una Foye, Vasiliki Tzouvara

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

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Abstract

Purpose: The COVID-19 pandemic has many potential impacts on people with mental health conditions and on mental health care, including direct consequences of infection, effects of infection control measures and subsequent societal changes. We aimed to map early impacts of the pandemic on people with pre-existing mental health conditions and services they use, and to identify individual and service-level strategies adopted to manage these.

Methods: We searched for relevant material in the public domain published before 30 April 2020, including papers in scientific and professional journals, published first person accounts, media articles, and publications by governments, charities and professional associations. Search languages were English, French, German, Italian, Spanish, and Mandarin Chinese. Relevant content was retrieved and summarised via a rapid qualitative framework synthesis approach.

Results: We found 872 eligible sources from 28 countries. Most documented observations and experiences rather than reporting research data. We found many reports of deteriorations in symptoms, and of impacts of loneliness and social isolation and of lack of access to services and resources, but sometimes also of resilience, effective self-management and peer support. Immediate service challenges related to controlling infection, especially in inpatient and residential settings, and establishing remote working, especially in the community. We summarise reports of swiftly implemented adaptations and innovations, but also of pressing ethical challenges and concerns for the future.

Conclusion: Our analysis captures the range of stakeholder perspectives and experiences publicly reported in the early stages of the COVID-19 pandemic in several countries. We identify potential foci for service planning and research.

Original language	English
Pages (from-to)	13-24
Number of pages	12
Journal	Social Psychiatry and Psychiatric Epidemiology
Volume	56
Issue number	1
Early online date	17 Aug 2020
DOIs	https://doi.org/10.1007/s00127-020-01924-7
Publication status	Published - 1 Jan 2021

Keywords

Coronavirus
COVID-19
Framework synthesis mental health services
Mental health
Pandemic
Service user experiences

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1007/s00127-020-01924-7Licence: CC BY

Early impacts of the COVID-19 pandemic_WHITAKER_Publishedonline17August2020_GOLD VoR (CC BY)Final published version, 627 KBLicence: CC BY

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Sheridan Rains, L., Johnson, S., Barnett, P., Steare, T., Needle, J. J., Carr, S., Lever Taylor, B., Bentivegna, F., Edbrooke-Childs, J., Scott, H. R., Rees, J., Shah, P., Lomani, J., Chipp, B., Barber, N., Dedat, Z., Oram, S., Morant, N., Simpson, A., ... Tzouvara, V. (2021). Early impacts of the COVID-19 pandemic on mental health care and on people with mental health conditions: framework synthesis of international experiences and responses. Social Psychiatry and Psychiatric Epidemiology, 56(1), 13-24. https://doi.org/10.1007/s00127-020-01924-7

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title = "Early impacts of the COVID-19 pandemic on mental health care and on people with mental health conditions: framework synthesis of international experiences and responses",

abstract = "Purpose: The COVID-19 pandemic has many potential impacts on people with mental health conditions and on mental health care, including direct consequences of infection, effects of infection control measures and subsequent societal changes. We aimed to map early impacts of the pandemic on people with pre-existing mental health conditions and services they use, and to identify individual and service-level strategies adopted to manage these. Methods: We searched for relevant material in the public domain published before 30 April 2020, including papers in scientific and professional journals, published first person accounts, media articles, and publications by governments, charities and professional associations. Search languages were English, French, German, Italian, Spanish, and Mandarin Chinese. Relevant content was retrieved and summarised via a rapid qualitative framework synthesis approach. Results: We found 872 eligible sources from 28 countries. Most documented observations and experiences rather than reporting research data. We found many reports of deteriorations in symptoms, and of impacts of loneliness and social isolation and of lack of access to services and resources, but sometimes also of resilience, effective self-management and peer support. Immediate service challenges related to controlling infection, especially in inpatient and residential settings, and establishing remote working, especially in the community. We summarise reports of swiftly implemented adaptations and innovations, but also of pressing ethical challenges and concerns for the future. Conclusion: Our analysis captures the range of stakeholder perspectives and experiences publicly reported in the early stages of the COVID-19 pandemic in several countries. We identify potential foci for service planning and research.",

keywords = "Coronavirus, COVID-19, Framework synthesis mental health services, Mental health, Pandemic, Service user experiences",

author = "{Sheridan Rains}, Luke and Sonia Johnson and Phoebe Barnett and Thomas Steare and Needle, {Justin J.} and Sarah Carr and {Lever Taylor}, Billie and Francesca Bentivegna and Julian Edbrooke-Childs and Scott, {Hannah Rachel} and Jessica Rees and Prisha Shah and Jo Lomani and Beverley Chipp and Nick Barber and Zainab Dedat and Sian Oram and Nicola Morant and Alan Simpson and {The COVID-19 Mental Health Policy Research Unit Group} and Alexia Papamichail and Anna Moore and Annie Jeffery and {De Estrada}, {Blanca Sanz Magall{\'o}n Duque} and Brendan Hallam and Brynmor Lloyd-Evans and Contreras, {Carolina Yanez} and Serna, {Celia Esteban} and Chukwuma Ntephe and Daphne Lamirel and Eleanor Cooke and Eiluned Pearce and Frederike Lemmel and Freya Koutsoubelis and Guendalina Cragnolini and Jasmine Harju-Sepp{\"a}nen and Jingyi Wang and Joseph Botham and Karima Abdou and Karolin Krause and Turner, {Kati Jane} and Konstantina Poursanidou and Lisa Gruenwald and Louisa Jagmetti and Lucia Mazzocchi and Magdalena Tomaskova and Marcella Montagnese and M{\'e}lanie Mah{\'e} and Qian Gao and Una Foye and Vasiliki Tzouvara",

note = "Funding Information: This paper presents independent research commissioned and funded by the National Institute for Health Research (NIHR) Policy Research Programme, conducted by the NIHR Policy Research Unit (PRU) in Mental Health. The views expressed are those of the authors and not necessarily those of the NIHR, the Department of Health and Social Care or its arm's length bodies, or other government departments. Acknowledgements Funding Information: This paper presents independent research commissioned and funded by the National Institute for Health Research (NIHR) Policy Research Programme, conducted by the NIHR Policy Research Unit (PRU) in Mental Health. The views expressed are those of the authors and not necessarily those of the NIHR, the Department of Health and Social Care or its arm's length bodies, or other government departments. The COVID-19 Mental Health Policy Research Unit Group: Annie Jeffery, Brynmor Lloyd-Evans, Chukwuma Ntephe, Daphne Lamirel, Eleanor Cooke, Eiluned Pearce, Frederike Lemmel, Freya Koutsoubelis, Jasmine Harju-Sepp?nen, Karima Abdou, Lisa Gruenwald, Louisa Jagmetti, Magdalena Tomaskova, Merle Schlief, Monica Leverton, Natasha Lyons, Sarah Ledden, Sofia Orlando, Tamara Ondru?kov?, Theodora Stefanidou: NIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, London, UK; Camden and Islington NHS Foundation Trust; Celia Esteban Serna, Jasmine Harju-Sepp?nen: Division of Psychology and Language Sciences, University College London, London, UK; Centre for Health Services Research, School of Health Sciences, City, University of London, London, UK; School of Social Policy/Institute for Mental Health, University of Birmingham, Birmingham, UK; Raza Griffiths, Tamar Jeynes: Division of Psychiatry (NIHR Mental Health Policy Research Unit Covid-19 Co-Production Group), University College London, London, UK; Anna Moore, Karolin Krause, Rebecca Lane: Evidence-Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, London, UK; Kati Jane Turner, Marcella Montagnese, Steve Gillard: Population Health Research Institute, St George?s, University of London, London, UK; Alexia Papamichail, Carolina Yanez Contreras, Joseph Botham, Norha Vera, Qian Gao, Scarlett Mac-Ginty, Selina Hardt, Una Foye, Victoria Cavero: NIHR Mental Health Policy Research Unit, Institute of Psychiatry, Psychology and Neuroscience, King?s College London, London, UK; Vasiliki Tzouvara: Department of Mental Health Nursing, Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, London, UK; Blanca Sanz-Magall?n Duque De Estrada: UCL Medical School, University College London, London, UK; Brendan Hallam: Department of Primary Care & Population Health, University College London, London, UK; Jingyi Wang: Department of Social Medicine, School of Public Health, Fudan University, Shanghai 200032, China; Konstantina Poursanidou: Independent Service User Researcher; Lucia Mazzocchi, M?lanie Mah?, Riccardo Busato: Independent Researcher; Mia Maria G?nak: Institute of Psychology, Clinical Psychology Unit, Leiden University, Leiden, Netherlands; Guendalina Cragnolini Publisher Copyright: {\textcopyright} 2020, The Author(s). Copyright: Copyright 2021 Elsevier B.V., All rights reserved.",

year = "2021",

month = jan,

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doi = "10.1007/s00127-020-01924-7",

language = "English",

volume = "56",

pages = "13--24",

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Sheridan Rains, L, Johnson, S, Barnett, P, Steare, T, Needle, JJ, Carr, S, Lever Taylor, B, Bentivegna, F, Edbrooke-Childs, J, Scott, HR, Rees, J, Shah, P, Lomani, J, Chipp, B, Barber, N, Dedat, Z, Oram, S, Morant, N, Simpson, A, The COVID-19 Mental Health Policy Research Unit Group, Papamichail, A, Moore, A, Jeffery, A, De Estrada, BSMD, Hallam, B, Lloyd-Evans, B, Contreras, CY, Serna, CE, Ntephe, C, Lamirel, D, Cooke, E, Pearce, E, Lemmel, F, Koutsoubelis, F, Cragnolini, G, Harju-Seppänen, J, Wang, J, Botham, J, Abdou, K, Krause, K, Turner, KJ, Poursanidou, K, Gruenwald, L, Jagmetti, L, Mazzocchi, L, Tomaskova, M, Montagnese, M, Mahé, M, Gao, Q , Foye, U & Tzouvara, V 2021, 'Early impacts of the COVID-19 pandemic on mental health care and on people with mental health conditions: framework synthesis of international experiences and responses', Social Psychiatry and Psychiatric Epidemiology, vol. 56, no. 1, pp. 13-24. https://doi.org/10.1007/s00127-020-01924-7

Early impacts of the COVID-19 pandemic on mental health care and on people with mental health conditions : framework synthesis of international experiences and responses. / Sheridan Rains, Luke; Johnson, Sonia; Barnett, Phoebe et al.

In: Social Psychiatry and Psychiatric Epidemiology, Vol. 56, No. 1, 01.01.2021, p. 13-24.

Research output: Contribution to journal › Article › peer-review

TY - JOUR

T1 - Early impacts of the COVID-19 pandemic on mental health care and on people with mental health conditions

T2 - framework synthesis of international experiences and responses

AU - Sheridan Rains, Luke

AU - Johnson, Sonia

AU - Barnett, Phoebe

AU - Steare, Thomas

AU - Needle, Justin J.

AU - Carr, Sarah

AU - Lever Taylor, Billie

AU - Bentivegna, Francesca

AU - Edbrooke-Childs, Julian

AU - Scott, Hannah Rachel

AU - Rees, Jessica

AU - Shah, Prisha

AU - Lomani, Jo

AU - Chipp, Beverley

AU - Barber, Nick

AU - Dedat, Zainab

AU - Oram, Sian

AU - Morant, Nicola

AU - Simpson, Alan

AU - The COVID-19 Mental Health Policy Research Unit Group

AU - Papamichail, Alexia

AU - Moore, Anna

AU - Jeffery, Annie

AU - De Estrada, Blanca Sanz Magallón Duque

AU - Hallam, Brendan

AU - Lloyd-Evans, Brynmor

AU - Contreras, Carolina Yanez

AU - Serna, Celia Esteban

AU - Ntephe, Chukwuma

AU - Lamirel, Daphne

AU - Cooke, Eleanor

AU - Pearce, Eiluned

AU - Lemmel, Frederike

AU - Koutsoubelis, Freya

AU - Cragnolini, Guendalina

AU - Harju-Seppänen, Jasmine

AU - Wang, Jingyi

AU - Botham, Joseph

AU - Abdou, Karima

AU - Krause, Karolin

AU - Turner, Kati Jane

AU - Poursanidou, Konstantina

AU - Gruenwald, Lisa

AU - Jagmetti, Louisa

AU - Mazzocchi, Lucia

AU - Tomaskova, Magdalena

AU - Montagnese, Marcella

AU - Mahé, Mélanie

AU - Gao, Qian

AU - Foye, Una

AU - Tzouvara, Vasiliki

N1 - Funding Information: This paper presents independent research commissioned and funded by the National Institute for Health Research (NIHR) Policy Research Programme, conducted by the NIHR Policy Research Unit (PRU) in Mental Health. The views expressed are those of the authors and not necessarily those of the NIHR, the Department of Health and Social Care or its arm's length bodies, or other government departments. Acknowledgements Funding Information: This paper presents independent research commissioned and funded by the National Institute for Health Research (NIHR) Policy Research Programme, conducted by the NIHR Policy Research Unit (PRU) in Mental Health. The views expressed are those of the authors and not necessarily those of the NIHR, the Department of Health and Social Care or its arm's length bodies, or other government departments. The COVID-19 Mental Health Policy Research Unit Group: Annie Jeffery, Brynmor Lloyd-Evans, Chukwuma Ntephe, Daphne Lamirel, Eleanor Cooke, Eiluned Pearce, Frederike Lemmel, Freya Koutsoubelis, Jasmine Harju-Sepp?nen, Karima Abdou, Lisa Gruenwald, Louisa Jagmetti, Magdalena Tomaskova, Merle Schlief, Monica Leverton, Natasha Lyons, Sarah Ledden, Sofia Orlando, Tamara Ondru?kov?, Theodora Stefanidou: NIHR Mental Health Policy Research Unit, Division of Psychiatry, University College London, London, UK; Camden and Islington NHS Foundation Trust; Celia Esteban Serna, Jasmine Harju-Sepp?nen: Division of Psychology and Language Sciences, University College London, London, UK; Centre for Health Services Research, School of Health Sciences, City, University of London, London, UK; School of Social Policy/Institute for Mental Health, University of Birmingham, Birmingham, UK; Raza Griffiths, Tamar Jeynes: Division of Psychiatry (NIHR Mental Health Policy Research Unit Covid-19 Co-Production Group), University College London, London, UK; Anna Moore, Karolin Krause, Rebecca Lane: Evidence-Based Practice Unit, University College London and Anna Freud National Centre for Children and Families, London, UK; Kati Jane Turner, Marcella Montagnese, Steve Gillard: Population Health Research Institute, St George?s, University of London, London, UK; Alexia Papamichail, Carolina Yanez Contreras, Joseph Botham, Norha Vera, Qian Gao, Scarlett Mac-Ginty, Selina Hardt, Una Foye, Victoria Cavero: NIHR Mental Health Policy Research Unit, Institute of Psychiatry, Psychology and Neuroscience, King?s College London, London, UK; Vasiliki Tzouvara: Department of Mental Health Nursing, Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, London, UK; Blanca Sanz-Magall?n Duque De Estrada: UCL Medical School, University College London, London, UK; Brendan Hallam: Department of Primary Care & Population Health, University College London, London, UK; Jingyi Wang: Department of Social Medicine, School of Public Health, Fudan University, Shanghai 200032, China; Konstantina Poursanidou: Independent Service User Researcher; Lucia Mazzocchi, M?lanie Mah?, Riccardo Busato: Independent Researcher; Mia Maria G?nak: Institute of Psychology, Clinical Psychology Unit, Leiden University, Leiden, Netherlands; Guendalina Cragnolini Publisher Copyright: © 2020, The Author(s). Copyright: Copyright 2021 Elsevier B.V., All rights reserved.

PY - 2021/1/1

Y1 - 2021/1/1

N2 - Purpose: The COVID-19 pandemic has many potential impacts on people with mental health conditions and on mental health care, including direct consequences of infection, effects of infection control measures and subsequent societal changes. We aimed to map early impacts of the pandemic on people with pre-existing mental health conditions and services they use, and to identify individual and service-level strategies adopted to manage these. Methods: We searched for relevant material in the public domain published before 30 April 2020, including papers in scientific and professional journals, published first person accounts, media articles, and publications by governments, charities and professional associations. Search languages were English, French, German, Italian, Spanish, and Mandarin Chinese. Relevant content was retrieved and summarised via a rapid qualitative framework synthesis approach. Results: We found 872 eligible sources from 28 countries. Most documented observations and experiences rather than reporting research data. We found many reports of deteriorations in symptoms, and of impacts of loneliness and social isolation and of lack of access to services and resources, but sometimes also of resilience, effective self-management and peer support. Immediate service challenges related to controlling infection, especially in inpatient and residential settings, and establishing remote working, especially in the community. We summarise reports of swiftly implemented adaptations and innovations, but also of pressing ethical challenges and concerns for the future. Conclusion: Our analysis captures the range of stakeholder perspectives and experiences publicly reported in the early stages of the COVID-19 pandemic in several countries. We identify potential foci for service planning and research.

AB - Purpose: The COVID-19 pandemic has many potential impacts on people with mental health conditions and on mental health care, including direct consequences of infection, effects of infection control measures and subsequent societal changes. We aimed to map early impacts of the pandemic on people with pre-existing mental health conditions and services they use, and to identify individual and service-level strategies adopted to manage these. Methods: We searched for relevant material in the public domain published before 30 April 2020, including papers in scientific and professional journals, published first person accounts, media articles, and publications by governments, charities and professional associations. Search languages were English, French, German, Italian, Spanish, and Mandarin Chinese. Relevant content was retrieved and summarised via a rapid qualitative framework synthesis approach. Results: We found 872 eligible sources from 28 countries. Most documented observations and experiences rather than reporting research data. We found many reports of deteriorations in symptoms, and of impacts of loneliness and social isolation and of lack of access to services and resources, but sometimes also of resilience, effective self-management and peer support. Immediate service challenges related to controlling infection, especially in inpatient and residential settings, and establishing remote working, especially in the community. We summarise reports of swiftly implemented adaptations and innovations, but also of pressing ethical challenges and concerns for the future. Conclusion: Our analysis captures the range of stakeholder perspectives and experiences publicly reported in the early stages of the COVID-19 pandemic in several countries. We identify potential foci for service planning and research.

KW - Coronavirus

KW - COVID-19

KW - Framework synthesis mental health services

KW - Mental health

KW - Pandemic

KW - Service user experiences

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U2 - 10.1007/s00127-020-01924-7

DO - 10.1007/s00127-020-01924-7

M3 - Article

AN - SCOPUS:85089520891

SN - 0933-7954

VL - 56

SP - 13

EP - 24

JO - Social Psychiatry and Psychiatric Epidemiology

JF - Social Psychiatry and Psychiatric Epidemiology

IS - 1

ER -

Early impacts of the COVID-19 pandemic on mental health care and on people with mental health conditions: framework synthesis of international experiences and responses

Abstract

Keywords

UN SDGs

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