Eating-derived pleasure in amyotrophic lateral sclerosis as a predictor of non-oral feeding

Julia Johnson, P. Nigel Leigh, Christopher E. Shaw, Cathy Ellis, Rachel Burman, Ammar Al-Chalabi

Research output: Contribution to journalArticlepeer-review

17 Citations (Scopus)


Our objective was to examine the pleasure derived from eating in patients with advanced ALS and how this affects advice to have a gastrostomy. Patients with advanced ALS completed a visual analogue scale indicating the pleasure they derived from eating. Data were also collected on the severity of swallow using the Hillel scale, the independent feeding status, and on whether gastrostomy was accepted or not. The findings from 38 consecutive patients indicate that pleasure derived from eating is a powerful indicator of a person's acceptance of gastrostomy. In conclusion, the study showed that a simple analogue scale is quick and practical in a clinical setting even in severely compromised people with ALS and that the eating pleasure score was a strong predictor of the final decision to accept gastrostomy placement (p = 12.2 x 10(-4)).

Original languageEnglish
Pages (from-to)555-559
Number of pages5
JournalAmyotrophic Lateral Sclerosis (United Kingdom)
Issue number6
Publication statusPublished - Oct 2012


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