@article{81aea61ca7a7406cba069adc06dc6f62,
title = "EDIFY (Eating Disorders: Delineating Illness and Recovery Trajectories to Inform Personalised Prevention and Early Intervention in Young People): project outline: project outline",
abstract = "EDIFY (Eating Disorders: Delineating Illness and Recovery Trajectories to Inform Personalised Prevention and Early Intervention in Young People) is an ambitious research project aiming to revolutionise how eating disorders are perceived, prevented and treated. Six integrated workstreams will address key questions, including: What are young people's experiences of eating disorders and recovery? What are the unique and shared risk factors in different groups? What helps or hinders recovery? How do the brain and behaviour change from early- to later-stage illness? How can we intervene earlier, quicker and in a more personalised way? This 4-year project, involving over 1000 participants, integrates arts, design and humanities with advanced neurobiological, psychosocial and bioinformatics approaches. Young people with lived experience of eating disorders are at the heart of EDIFY, serving as advisors and co-producers throughout. Ultimately, this work will expand public and professional perceptions of eating disorders, uplift under-represented voices and stimulate much-needed advances in policy and practice.",
keywords = "Eating disorders, interdisciplinary working, prevention and early intervention, risk and resilience, youth engagement",
author = "Amelia Hemmings and Helen Sharpe and Karina Allen and Heike Bartel and Campbell, {Iain C.} and Sylvane Desrivi{\`e}res and Dobson, {Richard J.B.} and Folarin, {Amos A.} and Tara French and Jonathan Kelly and Nadia Micali and Sneha Raman and Janet Treasure and Ruby Abbas and Beck Heslop and Tallulah Street and Ulrike Schmidt",
note = "Funding Information: EDIFY (Eating Disorders: Delineating Illness and Recovery Trajectories to Inform Personalised Prevention and Early Intervention in Young People) is funded by UK Research and Innovation (UKRI) under their Adolescence, Mental Health and the Developing Mind programme. This programme supports {\textquoteleft}multi and inter-disciplinary research and innovation that address areas of strategic importance aligned with government policy and research priorities{\textquoteright} so as {\textquoteleft}to better understand how and why mental health problems emerge and what makes some young people more susceptible or resilient than others{\textquoteright}. Specifically, it is recommended that creative arts and visual tools are used {\textquoteleft}to both learn from and support young people{\textquoteright}. This knowledge will be used to generate evidence that can lead to new approaches for improving adolescent mental health. Funding Information: This work is supported by the Medical Research Council/Arts and Humanities Research Council/Economic and Social Research Council Adolescence, Mental Health and the Developing Mind initiative as part of the EDIFY programme (grant number MR/W002418/1). U.S., J.T. and A.A.F. receive salary support from the National Institute of Health Research (NIHR) Biomedical Research Centre (BRC) at the South London and Maudsley (SLaM) NHS Foundation Trust and King's College London (KCL). The views expressed herein are those of the authors and not necessarily those of the NHS, NIHR or Department of Health and Social Care. S.D.'s work is funded by the Medical Research Council and Medical Research Foundation (grants MR/R00465X/1 and MRF-058-0004-RG-DESRI; MR/S020306/1 and MRF-058-0009-RG-DESR-C0759). H.B.'s work on {\textquoteleft}Consider Eating Disorders in Men{\textquoteright} has been funded by the Arts and Humanities Research Council and Wellcome. R.J.B.D. is supported by the following: NIHR BRC at SLaM NHS Foundation Trust and King's College London, UK; Health Data Research UK, which is funded by the UK Medical Research Council, Engineering and Physical Sciences Research Council, Economic and Social Research Council, Department of Health and Social Care (England), Chief Scientist Office of the Scottish Government Health and Social Care Directorates, Health and Social Care Research and Development Division (Welsh Government), Public Health Agency (Northern Ireland), British Heart Foundation and Wellcome Trust; The BigData@Heart Consortium, funded by the Innovative Medicines Initiative-2 Joint Undertaking under grant agreement No. 116074 (this Joint Undertaking receives support from the European Union's Horizon 2020 research and innovation programme and EFPIA); the NIHR University College London Hospitals BRC; the UK Research and Innovation London Medical Imaging & Artificial Intelligence Centre for Value Based Healthcare; and the NIHR Applied Research Collaboration South London (NIHR ARC South London) at King's College Hospital NHS Foundation Trust. Publisher Copyright: Copyright {\textcopyright} The Author(s), 2022. Published by Cambridge University Press on behalf of the Royal College of Psychiatrists.",
year = "2022",
month = dec,
day = "22",
doi = "10.1192/bjb.2022.83",
language = "English",
volume = "47",
pages = "328--336",
journal = "BJPsych Bulletin",
issn = "2056-4694",
publisher = "Royal College of Psychiatrists",
number = "6",
}