European Competence Network on Mastocytosis (ECNM): 10-year jubilee, update, and future perspectives

Peter Valent; Michel Arock; Patrizia Bonadonna; Knut Brockow; Sigurd Broesby-Olsen; Luis Escribano; Karoline V. Gleixner; Clive Grattan; Emir Hadzijusufovic; Hans Hagglund; Olivier Hermine; Hans-Peter Horny; Hanneke C. Kluin-Nelemans; Marcus Maurer; Marek Niedoszytko; Boguslaw Nedoszytko; Gunnar Nilsson; Hanneke N. G. Oude-Elberink; Alberto Orfao; Deepti Radia; Andreas Reiter; Frank Siebenhaar; Karl Sotlar; Wolfgang R. Sperr; Massimo Triggiani; Jaap J. VanDoormaal; Judit Varkonyi; Selim Yavuz; Karin Hartmann

doi:10.1007/s00508-012-0293-z

European Competence Network on Mastocytosis (ECNM): 10-year jubilee, update, and future perspectives

Peter Valent^*, Michel Arock, Patrizia Bonadonna, Knut Brockow, Sigurd Broesby-Olsen, Luis Escribano, Karoline V. Gleixner, Clive Grattan, Emir Hadzijusufovic, Hans Hagglund, Olivier Hermine, Hans-Peter Horny, Hanneke C. Kluin-Nelemans, Marcus Maurer, Marek Niedoszytko, Boguslaw Nedoszytko, Gunnar Nilsson, Hanneke N. G. Oude-Elberink, Alberto Orfao, Deepti RadiaAndreas Reiter, Frank Siebenhaar, Karl Sotlar, Wolfgang R. Sperr, Massimo Triggiani, Jaap J. VanDoormaal, Judit Varkonyi, Selim Yavuz, Karin Hartmann

^*Corresponding author for this work

Research output: Contribution to journal › Literature review › peer-review

27 Citations (Scopus)

Abstract

The European Competence Network on Mastocytosis (ECNM) was initiated in 2002 as a multidisciplinary and multinational cooperative approach to increase awareness and to improve diagnosis and therapy of mastocytosis. The network is composed of local centers, physicians, and scientists who have dedicated their work to patients with mastocytosis. A strategic goal of the ECNM is to provide the best available information about the disease to patients and physicians. During the past 10 years, the ECNM has expanded to various countries and contributed successfully to the development of markers, definitions, and standards in the field of mastocytosis. Members of the ECNM organized Annual Meetings in Europe and two Working Conferences on Mastocytosis in Vienna (in 2005 and 2010), and initiated and supported several preclinical and clinical trials. In all these activities, representatives of the ECNM cooperate closely with their US colleagues, with patient-organizations in Europe and in the USA, and with other scientific networks. The ECNM also launched a mastocytosis registry that has been activated in 2012. Using the central database of this registry, cooperative multicenter studies, which should include sufficient numbers of patients and robust evaluations, will be conducted. These studies will increase our knowledge about optimal management and therapy of patients with mastocytosis in the future.

Original language	English
Pages (from-to)	807-814
Number of pages	8
Journal	Wiener Klinische Wochenschrift
Volume	124
Issue number	23-24
DOIs	https://doi.org/10.1007/s00508-012-0293-z
Publication status	Published - Dec 2012

Keywords

Mast cells
Mastocytosis
Classification
Criteria
Standardization
Competence network
ECNM
MAST-CELL DISORDERS
OF-THE-ART
SYSTEMIC MASTOCYTOSIS
C-KIT
PROLIFERATIVE DISORDERS
CONSENSUS PROPOSAL
CONSECUTIVE ADULTS
RESPONSE CRITERIA
BONE-MARROW
CLASSIFICATION

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Valent, P., Arock, M., Bonadonna, P., Brockow, K., Broesby-Olsen, S., Escribano, L., Gleixner, K. V., Grattan, C., Hadzijusufovic, E., Hagglund, H., Hermine, O., Horny, H.-P., Kluin-Nelemans, H. C., Maurer, M., Niedoszytko, M., Nedoszytko, B., Nilsson, G., Oude-Elberink, H. N. G., Orfao, A., ... Hartmann, K. (2012). European Competence Network on Mastocytosis (ECNM): 10-year jubilee, update, and future perspectives. Wiener Klinische Wochenschrift, 124(23-24), 807-814. https://doi.org/10.1007/s00508-012-0293-z

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title = "European Competence Network on Mastocytosis (ECNM): 10-year jubilee, update, and future perspectives",

abstract = "The European Competence Network on Mastocytosis (ECNM) was initiated in 2002 as a multidisciplinary and multinational cooperative approach to increase awareness and to improve diagnosis and therapy of mastocytosis. The network is composed of local centers, physicians, and scientists who have dedicated their work to patients with mastocytosis. A strategic goal of the ECNM is to provide the best available information about the disease to patients and physicians. During the past 10 years, the ECNM has expanded to various countries and contributed successfully to the development of markers, definitions, and standards in the field of mastocytosis. Members of the ECNM organized Annual Meetings in Europe and two Working Conferences on Mastocytosis in Vienna (in 2005 and 2010), and initiated and supported several preclinical and clinical trials. In all these activities, representatives of the ECNM cooperate closely with their US colleagues, with patient-organizations in Europe and in the USA, and with other scientific networks. The ECNM also launched a mastocytosis registry that has been activated in 2012. Using the central database of this registry, cooperative multicenter studies, which should include sufficient numbers of patients and robust evaluations, will be conducted. These studies will increase our knowledge about optimal management and therapy of patients with mastocytosis in the future.",

keywords = "Mast cells, Mastocytosis, Classification, Criteria, Standardization, Competence network, ECNM, MAST-CELL DISORDERS, OF-THE-ART, SYSTEMIC MASTOCYTOSIS, C-KIT, PROLIFERATIVE DISORDERS, CONSENSUS PROPOSAL, CONSECUTIVE ADULTS, RESPONSE CRITERIA, BONE-MARROW, CLASSIFICATION",

author = "Peter Valent and Michel Arock and Patrizia Bonadonna and Knut Brockow and Sigurd Broesby-Olsen and Luis Escribano and Gleixner, {Karoline V.} and Clive Grattan and Emir Hadzijusufovic and Hans Hagglund and Olivier Hermine and Hans-Peter Horny and Kluin-Nelemans, {Hanneke C.} and Marcus Maurer and Marek Niedoszytko and Boguslaw Nedoszytko and Gunnar Nilsson and Oude-Elberink, {Hanneke N. G.} and Alberto Orfao and Deepti Radia and Andreas Reiter and Frank Siebenhaar and Karl Sotlar and Sperr, {Wolfgang R.} and Massimo Triggiani and VanDoormaal, {Jaap J.} and Judit Varkonyi and Selim Yavuz and Karin Hartmann",

year = "2012",

month = dec,

doi = "10.1007/s00508-012-0293-z",

language = "English",

volume = "124",

pages = "807--814",

journal = "Wiener Klinische Wochenschrift",

issn = "0043-5325",

publisher = "Springer",

number = "23-24",

}

Valent, P, Arock, M, Bonadonna, P, Brockow, K, Broesby-Olsen, S, Escribano, L, Gleixner, KV, Grattan, C, Hadzijusufovic, E, Hagglund, H, Hermine, O, Horny, H-P, Kluin-Nelemans, HC, Maurer, M, Niedoszytko, M, Nedoszytko, B, Nilsson, G, Oude-Elberink, HNG, Orfao, A, Radia, D, Reiter, A, Siebenhaar, F, Sotlar, K, Sperr, WR, Triggiani, M, VanDoormaal, JJ, Varkonyi, J, Yavuz, S & Hartmann, K 2012, 'European Competence Network on Mastocytosis (ECNM): 10-year jubilee, update, and future perspectives', Wiener Klinische Wochenschrift, vol. 124, no. 23-24, pp. 807-814. https://doi.org/10.1007/s00508-012-0293-z

TY - JOUR

T1 - European Competence Network on Mastocytosis (ECNM)

T2 - 10-year jubilee, update, and future perspectives

AU - Valent, Peter

AU - Arock, Michel

AU - Bonadonna, Patrizia

AU - Brockow, Knut

AU - Broesby-Olsen, Sigurd

AU - Escribano, Luis

AU - Gleixner, Karoline V.

AU - Grattan, Clive

AU - Hadzijusufovic, Emir

AU - Hagglund, Hans

AU - Hermine, Olivier

AU - Horny, Hans-Peter

AU - Kluin-Nelemans, Hanneke C.

AU - Maurer, Marcus

AU - Niedoszytko, Marek

AU - Nedoszytko, Boguslaw

AU - Nilsson, Gunnar

AU - Oude-Elberink, Hanneke N. G.

AU - Orfao, Alberto

AU - Radia, Deepti

AU - Reiter, Andreas

AU - Siebenhaar, Frank

AU - Sotlar, Karl

AU - Sperr, Wolfgang R.

AU - Triggiani, Massimo

AU - VanDoormaal, Jaap J.

AU - Varkonyi, Judit

AU - Yavuz, Selim

AU - Hartmann, Karin

PY - 2012/12

Y1 - 2012/12

N2 - The European Competence Network on Mastocytosis (ECNM) was initiated in 2002 as a multidisciplinary and multinational cooperative approach to increase awareness and to improve diagnosis and therapy of mastocytosis. The network is composed of local centers, physicians, and scientists who have dedicated their work to patients with mastocytosis. A strategic goal of the ECNM is to provide the best available information about the disease to patients and physicians. During the past 10 years, the ECNM has expanded to various countries and contributed successfully to the development of markers, definitions, and standards in the field of mastocytosis. Members of the ECNM organized Annual Meetings in Europe and two Working Conferences on Mastocytosis in Vienna (in 2005 and 2010), and initiated and supported several preclinical and clinical trials. In all these activities, representatives of the ECNM cooperate closely with their US colleagues, with patient-organizations in Europe and in the USA, and with other scientific networks. The ECNM also launched a mastocytosis registry that has been activated in 2012. Using the central database of this registry, cooperative multicenter studies, which should include sufficient numbers of patients and robust evaluations, will be conducted. These studies will increase our knowledge about optimal management and therapy of patients with mastocytosis in the future.

AB - The European Competence Network on Mastocytosis (ECNM) was initiated in 2002 as a multidisciplinary and multinational cooperative approach to increase awareness and to improve diagnosis and therapy of mastocytosis. The network is composed of local centers, physicians, and scientists who have dedicated their work to patients with mastocytosis. A strategic goal of the ECNM is to provide the best available information about the disease to patients and physicians. During the past 10 years, the ECNM has expanded to various countries and contributed successfully to the development of markers, definitions, and standards in the field of mastocytosis. Members of the ECNM organized Annual Meetings in Europe and two Working Conferences on Mastocytosis in Vienna (in 2005 and 2010), and initiated and supported several preclinical and clinical trials. In all these activities, representatives of the ECNM cooperate closely with their US colleagues, with patient-organizations in Europe and in the USA, and with other scientific networks. The ECNM also launched a mastocytosis registry that has been activated in 2012. Using the central database of this registry, cooperative multicenter studies, which should include sufficient numbers of patients and robust evaluations, will be conducted. These studies will increase our knowledge about optimal management and therapy of patients with mastocytosis in the future.

KW - Mast cells

KW - Mastocytosis

KW - Classification

KW - Criteria

KW - Standardization

KW - Competence network

KW - ECNM

KW - MAST-CELL DISORDERS

KW - OF-THE-ART

KW - SYSTEMIC MASTOCYTOSIS

KW - C-KIT

KW - PROLIFERATIVE DISORDERS

KW - CONSENSUS PROPOSAL

KW - CONSECUTIVE ADULTS

KW - RESPONSE CRITERIA

KW - BONE-MARROW

KW - CLASSIFICATION

U2 - 10.1007/s00508-012-0293-z

DO - 10.1007/s00508-012-0293-z

M3 - Literature review

SN - 0043-5325

VL - 124

SP - 807

EP - 814

JO - Wiener Klinische Wochenschrift

JF - Wiener Klinische Wochenschrift

IS - 23-24

ER -

European Competence Network on Mastocytosis (ECNM): 10-year jubilee, update, and future perspectives

Abstract

Keywords

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