Evaluating the extent of patient-centred care in a selection of ESC guidelines

Rani Khatib; Geraldine A Lee; Elena Marques-sule; Laila Arnesdatter Hopstock; Sharon O’donnell; Margrét Hrönn Svavarsdóttir; Christina Andreae; Ercole Vellone; Eva Goossens; Anna Strömberg; Barbro Kjellström; Tiny Jaarsma; Chloe Stewart

doi:10.1093/ehjqcco/qcz025

Evaluating the extent of patient-centred care in a selection of ESC guidelines

Rani Khatib, Geraldine A Lee, Elena Marques-sule, Laila Arnesdatter Hopstock, Sharon O’donnell, Margrét Hrönn Svavarsdóttir, Christina Andreae, Ercole Vellone, Eva Goossens, Anna Strömberg, Barbro Kjellström, Tiny Jaarsma, Chloe Stewart

Adult Nursing

Research output: Contribution to journal › Article › peer-review

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Abstract

AIMS: Patient-centred care (PCC) is the cornerstone for healthcare professionals to promote high quality care for patients with cardiovascular conditions. It is defined as 'Providing care that is respectful of, and responsive to, individual patient preferences, needs and values, and ensuring that patient values guide all clinical decisions'. PCC can improve patient outcomes and allow patients and healthcare professionals to manage care collaboratively using best available evidence. However, there is no clear understanding how extensively guidelines incorporate PCC recommendations. The aim of the study was to evaluate the incorporation of PCC into a selection of guidelines published by the European Society of Cardiology (ESC). METHODS AND RESULTS: Using a narrative literature review and expert consensus, the Science Committee within the Association of Cardiovascular Nursing and Allied Professions (ACNAP) developed a checklist to determine PCC incorporation in clinical guidelines. Nine ESC guidelines were reviewed, with committee members independently evaluating five PCC aspects: patient voice and involvement, multidisciplinary involvement, holistic care recommendations, flexibility to meet patients' needs, and provision of patient tools. The level of congruence in item ratings by experts was then compared. The incorporation of PCC using these respective five categories, ranged from 4% (patient tools) to 53% in the 'multidisciplinary involvement' category. CONCLUSION: Overall, the inclusion of PCC was low, indicating that patient perspectives and needs were less likely to be taken into account when developing, endorsing, or formulating recommendations. Future development of guidelines should ensure better incorporation of patients' perspective, in particular, and other PCC aspects highlighted in this study.

Original language	English
Pages (from-to)	55-61
Number of pages	7
Journal	European Heart Journal - Quality of Care and Clinical Outcomes
Volume	6
Issue number	1
Early online date	23 May 2019
DOIs	https://doi.org/10.1093/ehjqcco/qcz025
Publication status	E-pub ahead of print - 23 May 2019

Keywords

Cardiovascular diseases
Evidence-based practice
Guidelines
Patient-centred care

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1093/ehjqcco/qcz025

Evaluating the extent of_KHATIB_Published Online 23 May 2019_ GREEN AAMAccepted author manuscript, 734 KB

https://academic.oup.com/ehjqcco/advance-article/doi/10.1093/ehjqcco/qcz025/5497486

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Khatib, R., Lee, G. A., Marques-sule, E., Hopstock, L. A., O’donnell, S., Svavarsdóttir, M. H., Andreae, C., Vellone, E., Goossens, E., Strömberg, A., Kjellström, B., Jaarsma, T., & Stewart, C. (2019). Evaluating the extent of patient-centred care in a selection of ESC guidelines. European Heart Journal - Quality of Care and Clinical Outcomes, 6(1), 55-61. Advance online publication. https://doi.org/10.1093/ehjqcco/qcz025

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abstract = "AIMS: Patient-centred care (PCC) is the cornerstone for healthcare professionals to promote high quality care for patients with cardiovascular conditions. It is defined as 'Providing care that is respectful of, and responsive to, individual patient preferences, needs and values, and ensuring that patient values guide all clinical decisions'. PCC can improve patient outcomes and allow patients and healthcare professionals to manage care collaboratively using best available evidence. However, there is no clear understanding how extensively guidelines incorporate PCC recommendations. The aim of the study was to evaluate the incorporation of PCC into a selection of guidelines published by the European Society of Cardiology (ESC). METHODS AND RESULTS: Using a narrative literature review and expert consensus, the Science Committee within the Association of Cardiovascular Nursing and Allied Professions (ACNAP) developed a checklist to determine PCC incorporation in clinical guidelines. Nine ESC guidelines were reviewed, with committee members independently evaluating five PCC aspects: patient voice and involvement, multidisciplinary involvement, holistic care recommendations, flexibility to meet patients' needs, and provision of patient tools. The level of congruence in item ratings by experts was then compared. The incorporation of PCC using these respective five categories, ranged from 4% (patient tools) to 53% in the 'multidisciplinary involvement' category. CONCLUSION: Overall, the inclusion of PCC was low, indicating that patient perspectives and needs were less likely to be taken into account when developing, endorsing, or formulating recommendations. Future development of guidelines should ensure better incorporation of patients' perspective, in particular, and other PCC aspects highlighted in this study.",

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Khatib, R, Lee, GA, Marques-sule, E, Hopstock, LA, O’donnell, S, Svavarsdóttir, MH, Andreae, C, Vellone, E, Goossens, E, Strömberg, A, Kjellström, B, Jaarsma, T & Stewart, C 2019, 'Evaluating the extent of patient-centred care in a selection of ESC guidelines', European Heart Journal - Quality of Care and Clinical Outcomes, vol. 6, no. 1, pp. 55-61. https://doi.org/10.1093/ehjqcco/qcz025

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T1 - Evaluating the extent of patient-centred care in a selection of ESC guidelines

AU - Khatib, Rani

AU - Lee, Geraldine A

AU - Marques-sule, Elena

AU - Hopstock, Laila Arnesdatter

AU - O’donnell, Sharon

AU - Svavarsdóttir, Margrét Hrönn

AU - Andreae, Christina

AU - Vellone, Ercole

AU - Goossens, Eva

AU - Strömberg, Anna

AU - Kjellström, Barbro

AU - Jaarsma, Tiny

AU - Stewart, Chloe

PY - 2019/5/23

Y1 - 2019/5/23

N2 - AIMS: Patient-centred care (PCC) is the cornerstone for healthcare professionals to promote high quality care for patients with cardiovascular conditions. It is defined as 'Providing care that is respectful of, and responsive to, individual patient preferences, needs and values, and ensuring that patient values guide all clinical decisions'. PCC can improve patient outcomes and allow patients and healthcare professionals to manage care collaboratively using best available evidence. However, there is no clear understanding how extensively guidelines incorporate PCC recommendations. The aim of the study was to evaluate the incorporation of PCC into a selection of guidelines published by the European Society of Cardiology (ESC). METHODS AND RESULTS: Using a narrative literature review and expert consensus, the Science Committee within the Association of Cardiovascular Nursing and Allied Professions (ACNAP) developed a checklist to determine PCC incorporation in clinical guidelines. Nine ESC guidelines were reviewed, with committee members independently evaluating five PCC aspects: patient voice and involvement, multidisciplinary involvement, holistic care recommendations, flexibility to meet patients' needs, and provision of patient tools. The level of congruence in item ratings by experts was then compared. The incorporation of PCC using these respective five categories, ranged from 4% (patient tools) to 53% in the 'multidisciplinary involvement' category. CONCLUSION: Overall, the inclusion of PCC was low, indicating that patient perspectives and needs were less likely to be taken into account when developing, endorsing, or formulating recommendations. Future development of guidelines should ensure better incorporation of patients' perspective, in particular, and other PCC aspects highlighted in this study.

AB - AIMS: Patient-centred care (PCC) is the cornerstone for healthcare professionals to promote high quality care for patients with cardiovascular conditions. It is defined as 'Providing care that is respectful of, and responsive to, individual patient preferences, needs and values, and ensuring that patient values guide all clinical decisions'. PCC can improve patient outcomes and allow patients and healthcare professionals to manage care collaboratively using best available evidence. However, there is no clear understanding how extensively guidelines incorporate PCC recommendations. The aim of the study was to evaluate the incorporation of PCC into a selection of guidelines published by the European Society of Cardiology (ESC). METHODS AND RESULTS: Using a narrative literature review and expert consensus, the Science Committee within the Association of Cardiovascular Nursing and Allied Professions (ACNAP) developed a checklist to determine PCC incorporation in clinical guidelines. Nine ESC guidelines were reviewed, with committee members independently evaluating five PCC aspects: patient voice and involvement, multidisciplinary involvement, holistic care recommendations, flexibility to meet patients' needs, and provision of patient tools. The level of congruence in item ratings by experts was then compared. The incorporation of PCC using these respective five categories, ranged from 4% (patient tools) to 53% in the 'multidisciplinary involvement' category. CONCLUSION: Overall, the inclusion of PCC was low, indicating that patient perspectives and needs were less likely to be taken into account when developing, endorsing, or formulating recommendations. Future development of guidelines should ensure better incorporation of patients' perspective, in particular, and other PCC aspects highlighted in this study.

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KW - Evidence-based practice

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DO - 10.1093/ehjqcco/qcz025

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Evaluating the extent of patient-centred care in a selection of ESC guidelines

Abstract

Keywords

UN SDGs

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