TY - JOUR
T1 - Evaluation of a community-based performance arts programme for people who have experienced stroke in the UK
T2 - protocol for the SHAPER-Stroke Odysseys study
AU - Estevao, Carolina
AU - Baldellou Lopez, Maria
AU - Davis, Rachel E
AU - Jarret, Lucinda
AU - Soukup, Tayana
AU - Bakolis, Ioannis
AU - Healey, Andy
AU - Harrington, Jean
AU - Woods, Anthony
AU - Crane, Nikki
AU - Jones, Fiona
AU - Pariante, Carmine
AU - Fancourt, Daisy
AU - Sevdalis, Nick
N1 - Funding Information:
grants from the Wellcome Trust, during the conduct of the study; and grants from the National Institute for Health Research (NIHR), NIHR Senior Investigator, Johnson & Johnson, and the Wellcome Trust, outside the submitted work. The other authors have no conflicts of interest to declare.
Funding Information:
Funding This research was funded in whole by the Wellcome Trust [219425/Z/19/Z]. For the purpose of open access, the author has applied a CC BY public copyright licence to any Author Accepted Manuscript version arising from this submission.This trial is part of the SHAPER programme, a Scaling-up Health-Arts Programme to scale up arts programmes. This work is additionally supported by the National Institute for Health Research (NIHR) Biomedical Research Centre at South London and Maudsley NHS Foundation Trust and King’s College London and by an NIHR Senior Investigator to CMP.
Publisher Copyright:
© 2022 BioMed Central Ltd.. All rights reserved.
PY - 2022/3/11
Y1 - 2022/3/11
N2 - INTRODUCTION: Stroke survivors, once in the community, face challenges with their long-term rehabilitation care and present higher levels of loneliness, depression and anxiety than the rest of the population. A community-based performance arts programme, Stroke Odysseys (SO), has been devised to tackle the challenges of living with stroke in the UK. In this study, we aim to evaluate the implementation, impact and experiences of SO for stroke survivors.METHODS AND ANALYSIS: Scaling-up Health Arts Programmes: Implementation and Effectiveness Research (SHAPER)-SO aims to scale-up SO to 75 participants and 47 stakeholders, while simultaneously evaluating the effectiveness and implementation of the programme. The main research aim is to evaluate the implementation, effectiveness, impact and experiences of a community-based performance arts programme (SO for stroke survivors). This mixed-methods study will evaluate the experience and impact of SO on those participating using mixed methods (interviews, observations and surveys) before and after each stage and carry out non-participant observations during a percentage of the workshops, training and tour. Data will be analysed using quantitative and qualitative approaches. This is a study within the SHAPER programme.ETHICS AND DISSEMINATION: Ethical approval has been granted by the King's College London PNM Research Ethics Panel, REC reference: LRS/DP-20/21-21549. Written informed consent will be sought for participants and stakeholders. The results of the study will be reported and disseminated at international conferences and in peer-reviewed scientific journals.TRIAL REGISTRATION NUMBER: NCT04864470.
AB - INTRODUCTION: Stroke survivors, once in the community, face challenges with their long-term rehabilitation care and present higher levels of loneliness, depression and anxiety than the rest of the population. A community-based performance arts programme, Stroke Odysseys (SO), has been devised to tackle the challenges of living with stroke in the UK. In this study, we aim to evaluate the implementation, impact and experiences of SO for stroke survivors.METHODS AND ANALYSIS: Scaling-up Health Arts Programmes: Implementation and Effectiveness Research (SHAPER)-SO aims to scale-up SO to 75 participants and 47 stakeholders, while simultaneously evaluating the effectiveness and implementation of the programme. The main research aim is to evaluate the implementation, effectiveness, impact and experiences of a community-based performance arts programme (SO for stroke survivors). This mixed-methods study will evaluate the experience and impact of SO on those participating using mixed methods (interviews, observations and surveys) before and after each stage and carry out non-participant observations during a percentage of the workshops, training and tour. Data will be analysed using quantitative and qualitative approaches. This is a study within the SHAPER programme.ETHICS AND DISSEMINATION: Ethical approval has been granted by the King's College London PNM Research Ethics Panel, REC reference: LRS/DP-20/21-21549. Written informed consent will be sought for participants and stakeholders. The results of the study will be reported and disseminated at international conferences and in peer-reviewed scientific journals.TRIAL REGISTRATION NUMBER: NCT04864470.
UR - http://www.scopus.com/inward/record.url?scp=85126389972&partnerID=8YFLogxK
U2 - 10.1136/bmjopen-2021-057805
DO - 10.1136/bmjopen-2021-057805
M3 - Article
C2 - 35277410
SN - 2044-6055
VL - 12
SP - e057805
JO - BMJ Open
JF - BMJ Open
IS - 3
M1 - e057805
ER -