TY - JOUR
T1 - Exploring the experiences of stroke survivors, informal caregivers and healthcare providers in Sierra Leone
T2 - A qualitative study protocol
AU - O'Hara, Jessica
AU - Thompson, Melvina
AU - Deen, Gibrilla
AU - Leather, Andrew J.M.
AU - Youkee, Daniel
AU - Wall, Jurate
AU - Sackley, Catherine
AU - Parmar, Divya
AU - McKevitt, Christopher
N1 - Funding Information:
Acknowledgements The authors acknowledge support from the SISLE Stroke Survivor’s Group, Israel Johnson, Sahr Pessima, Albert Sidikie Sama and Edward Barrett who have helped with designing the interview guides.
Funding Information:
This research was funded by the National Institute for Health Research (NIHR) (GHRG 17/63/66) using UK aid from the UK Government to support global health research. The views expressed in this publication are those of the author(s) and not necessarily those of the NIHR or the UK Department of Health and Social Care.
Funding Information:
Funding This research was funded by the National Institute for Health Research (NIHR) (GHRG 17/63/66) using UK aid from the UK Government to support global health research. The views expressed in this publication are those of the author(s) and not necessarily those of the NIHR or the UK Department of Health and Social Care.
Publisher Copyright:
©
PY - 2021/12/30
Y1 - 2021/12/30
N2 - Introduction Stroke is now the second leading cause of adult death in Sub-Saharan Africa. Developed in dialogue with stroke survivors and caregivers in Sierra Leone, this will be the first study to explore the experience of stroke as well as the perceptions of the barriers and facilitators to accessing stroke care among stroke survivors, informal caregivers and healthcare providers. Findings will inform future stroke research and care in Sierra Leone. Methods and analysis A cross-sectional qualitative study employing semistructured interviews that will be audiorecorded, translated, transcribed and coded. Setting Freetown, Sierra Leone. Participants Interviews with a purposive sample of stroke survivors, informal caregivers and healthcare providers. Analysis Interviews will be coded by two authors and inductively analysed using thematic analysis. Ethics and dissemination This study has received ethical approval from the Sierra Leone Ethics and Scientific Review Committee (8 December 2020) and the KCL Biomedical & Health Sciences, Dentistry, Medicine and Natural & Mathematical Sciences Research Ethics Subcommittee (reference: HR-20/21-21050). The findings of the study and learning in terms of the process of coproduction and involvement of stroke survivors will be disseminated via peer-reviewed publications, conferences, media and lay reports.
AB - Introduction Stroke is now the second leading cause of adult death in Sub-Saharan Africa. Developed in dialogue with stroke survivors and caregivers in Sierra Leone, this will be the first study to explore the experience of stroke as well as the perceptions of the barriers and facilitators to accessing stroke care among stroke survivors, informal caregivers and healthcare providers. Findings will inform future stroke research and care in Sierra Leone. Methods and analysis A cross-sectional qualitative study employing semistructured interviews that will be audiorecorded, translated, transcribed and coded. Setting Freetown, Sierra Leone. Participants Interviews with a purposive sample of stroke survivors, informal caregivers and healthcare providers. Analysis Interviews will be coded by two authors and inductively analysed using thematic analysis. Ethics and dissemination This study has received ethical approval from the Sierra Leone Ethics and Scientific Review Committee (8 December 2020) and the KCL Biomedical & Health Sciences, Dentistry, Medicine and Natural & Mathematical Sciences Research Ethics Subcommittee (reference: HR-20/21-21050). The findings of the study and learning in terms of the process of coproduction and involvement of stroke survivors will be disseminated via peer-reviewed publications, conferences, media and lay reports.
KW - public health
KW - qualitative research
KW - social medicine
KW - stroke medicine
UR - https://www.scopus.com/pages/publications/85122612446
U2 - 10.1136/bmjopen-2021-051276
DO - 10.1136/bmjopen-2021-051276
M3 - Article
AN - SCOPUS:85122612446
SN - 2044-6055
VL - 11
JO - BMJ Open
JF - BMJ Open
IS - 12
M1 - e051276
ER -
SDG 3 Good Health and Well-being