Exploring the use of individualised patient-reported outcome measures in eating disorders: Validation of the Psychological Outcome Profiles

Amelia Austin*, Rachel Potterton, Michaela Flynn, Katie Richards, Karina Allen, Nina Grant, Danielle Glennon, Victoria A. Mountford, Mary Franklin-Smith, Monique Schelhase, William R. Jones, Lucy Serpell, Kate Mahoney, Gaby Brady, Nicole Nunes, Kuda Kali, Frances Connan, Ulrike Schmidt

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

6 Citations (Scopus)

Abstract

Rationale: Psychotherapies for eating disorders (EDs) are routinely assessed using standardised patient-reported outcome measures (PROMs). PROMs have been criticised for their lack of patient centeredness and clinical utility. The Psychological Outcome Profiles (PSYCHLOPS) is an individualised PROM that allows patients to specify their own outcomes. Aims: (1) To validate the use of the PSYCHLOPS in ED treatment, and (2) to identify patient concerns beyond those measured by common ED PROMs. Methods: Two hundred and seventy-eight emerging adult patients, presenting with a first-episode ED (aged 16–25, illness duration <3 years) completed the PSYCHLOPS and two standardised ED PROMs (the EatingDisorder Examination Questionnaire [EDE-Q] and the Clinical Impairment Assessment Questionnaire [CIA]) at four time points across 12 months. Psychometrics of the PSYCHLOPS were assessed quantitatively against the EDE-Q and CIA. Content analysis assessed unique patient concerns identified by PSYCHLOPS. Results: The PSYCHLOPS had adequate to good psychometric properties. A total of 53.3% of participants reported a concern not addressed by the EDE-Q or the CIA, the most common being depression/anxiety, academic problems, treatment concerns and disturbed sleep. Discussion: PROMs can be complemented by the PSYCHLOPS to identify problems specific to an individual's context. As ED patients are typically ambivalent about change, understanding their concerns is vital in building motivation for change.

Original languageEnglish
Pages (from-to)281-291
Number of pages11
JournalEuropean Eating Disorders Review
Volume29
Issue number2
Early online date9 Jan 2021
DOIs
Publication statusPublished - Mar 2021

Keywords

  • eating disorders
  • emerging adults
  • outcome measures
  • PROMS
  • psychometrics

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