@article{a340d0df2293414fb0aea99118de1865,
title = "Exploring the use of individualised patient-reported outcome measures in eating disorders: Validation of the Psychological Outcome Profiles",
abstract = "Rationale: Psychotherapies for eating disorders (EDs) are routinely assessed using standardised patient-reported outcome measures (PROMs). PROMs have been criticised for their lack of patient centeredness and clinical utility. The Psychological Outcome Profiles (PSYCHLOPS) is an individualised PROM that allows patients to specify their own outcomes. Aims: (1) To validate the use of the PSYCHLOPS in ED treatment, and (2) to identify patient concerns beyond those measured by common ED PROMs. Methods: Two hundred and seventy-eight emerging adult patients, presenting with a first-episode ED (aged 16–25, illness duration <3 years) completed the PSYCHLOPS and two standardised ED PROMs (the EatingDisorder Examination Questionnaire [EDE-Q] and the Clinical Impairment Assessment Questionnaire [CIA]) at four time points across 12 months. Psychometrics of the PSYCHLOPS were assessed quantitatively against the EDE-Q and CIA. Content analysis assessed unique patient concerns identified by PSYCHLOPS. Results: The PSYCHLOPS had adequate to good psychometric properties. A total of 53.3% of participants reported a concern not addressed by the EDE-Q or the CIA, the most common being depression/anxiety, academic problems, treatment concerns and disturbed sleep. Discussion: PROMs can be complemented by the PSYCHLOPS to identify problems specific to an individual's context. As ED patients are typically ambivalent about change, understanding their concerns is vital in building motivation for change.",
keywords = "eating disorders, emerging adults, outcome measures, PROMS, psychometrics",
author = "Amelia Austin and Rachel Potterton and Michaela Flynn and Katie Richards and Karina Allen and Nina Grant and Danielle Glennon and Mountford, {Victoria A.} and Mary Franklin-Smith and Monique Schelhase and Jones, {William R.} and Lucy Serpell and Kate Mahoney and Gaby Brady and Nicole Nunes and Kuda Kali and Frances Connan and Ulrike Schmidt",
note = "Funding Information: The authors would like to thank Rachel Egan for her feedback on the manuscript. The authors would also like to thank all the participants from the FREED-Up Cohort. This work was supported by a Health Foundation Scaling Up Award. US receives salary support from the National Institute for Health Research (NIHR) Biomedical Research Centre for Mental Health, South London and Maudsley NHS Foundation Trust and Institute of Psychiatry, Psychology and Neuroscience, King's College London. US is supported by an NIHR Senior Investigator Award. K. R. is funded by the Health Foundation, R. P. is funded by a PhD studentship from the NIHR Biomedical Research Centre for Mental Health, South London and Maudsley NHS Foundation Trust, and A. A. and M. F. are supported by the King's College London International Postgraduate Research Scholarship. The views expressed in this publication are those of the authors and not necessarily those of the National Health Service, the NIHR or the UK Department of Health. Funding Information: The authors would like to thank Rachel Egan for her feedback on the manuscript. The authors would also like to thank all the participants from the FREED‐Up Cohort. This work was supported by a Health Foundation Scaling Up Award. US receives salary support from the National Institute for Health Research (NIHR) Biomedical Research Centre for Mental Health, South London and Maudsley NHS Foundation Trust and Institute of Psychiatry, Psychology and Neuroscience, King's College London. US is supported by an NIHR Senior Investigator Award. K. R. is funded by the Health Foundation, R. P. is funded by a PhD studentship from the NIHR Biomedical Research Centre for Mental Health, South London and Maudsley NHS Foundation Trust, and A. A. and M. F. are supported by the King's College London International Postgraduate Research Scholarship. The views expressed in this publication are those of the authors and not necessarily those of the National Health Service, the NIHR or the UK Department of Health. Publisher Copyright: {\textcopyright} 2021 Eating Disorders Association and John Wiley & Sons Ltd.",
year = "2021",
month = mar,
doi = "10.1002/erv.2819",
language = "English",
volume = "29",
pages = "281--291",
journal = "European Eating Disorders Review",
issn = "1072-4133",
number = "2",
}