TY - JOUR
T1 - Identification of Research Priorities for Inflammatory Bowel Disease Nursing in Europe
T2 - a Nurses-European Crohn's and Colitis Organisation Delphi Survey
AU - Dibley, Lesley
AU - Bager, Palle
AU - Czuber-Dochan, Wladyslawa
AU - Farrell, Dawn
AU - Jelsness-Jørgensen, Lars Petter
AU - Kemp, Karen
AU - Norton, Christine
N1 - © European Crohn’s and Colitis Organistion (ECCO) 2016.
PY - 2017/3/1
Y1 - 2017/3/1
N2 - Background: Robust research evidence should inform clinical practice of inflammatory bowel disease [IBD] specialist nurses, but such research is currently very limited. With no current agreement on research priorities for IBD nursing, this survey aimed to establish topics to guide future IBD nursing research across Europe.Methods: An online modified Delphi survey with nurse and allied health professional members of the Nurses European Crohn's and Colitis Organisation [n = 303] was conducted. In Round One, participants proposed topics for research. In Round Two, research topics were rated on a 1-9 scale and subsequently synthesised to create composite research questions. In Round Three, participants selected their top five research questions, rating these on a 1-5 scale.Results: Representing 13 European countries, 88, 90 and 58 non-medical professionals, predominantly nurses, responded to Rounds One, Two and Three, respectively. In Round One, 173 potential research topics were suggested. In Rounds Two And Three, responders voted for and prioritised 125 and 44 questions, respectively. Round Three votes were weighted [rank of 1 = score of 5], reflecting rank order. The top five research priorities were: interventions to improve self-management of IBD; interventions for symptoms of frequency, urgency and incontinence; the role of the IBD nurse in improving patient outcomes and quality of life; interventions to improve IBD fatigue; and care pathways to optimise clinical outcomes and patient satisfaction.Conclusions: The prioritised list of topics gives clear direction for future IBD nursing research. Conducting this research has potential to improve clinical practice and patient-reported outcomes.
AB - Background: Robust research evidence should inform clinical practice of inflammatory bowel disease [IBD] specialist nurses, but such research is currently very limited. With no current agreement on research priorities for IBD nursing, this survey aimed to establish topics to guide future IBD nursing research across Europe.Methods: An online modified Delphi survey with nurse and allied health professional members of the Nurses European Crohn's and Colitis Organisation [n = 303] was conducted. In Round One, participants proposed topics for research. In Round Two, research topics were rated on a 1-9 scale and subsequently synthesised to create composite research questions. In Round Three, participants selected their top five research questions, rating these on a 1-5 scale.Results: Representing 13 European countries, 88, 90 and 58 non-medical professionals, predominantly nurses, responded to Rounds One, Two and Three, respectively. In Round One, 173 potential research topics were suggested. In Rounds Two And Three, responders voted for and prioritised 125 and 44 questions, respectively. Round Three votes were weighted [rank of 1 = score of 5], reflecting rank order. The top five research priorities were: interventions to improve self-management of IBD; interventions for symptoms of frequency, urgency and incontinence; the role of the IBD nurse in improving patient outcomes and quality of life; interventions to improve IBD fatigue; and care pathways to optimise clinical outcomes and patient satisfaction.Conclusions: The prioritised list of topics gives clear direction for future IBD nursing research. Conducting this research has potential to improve clinical practice and patient-reported outcomes.
KW - Delphi
KW - IBD nursing
KW - inflammatory bowel disease
KW - research priorities
UR - http://www.scopus.com/inward/record.url?scp=85032940923&partnerID=8YFLogxK
U2 - 10.1093/ecco-jcc/jjw164
DO - 10.1093/ecco-jcc/jjw164
M3 - Article
C2 - 27664273
SN - 1873-9946
VL - 11
SP - 353
EP - 359
JO - Journal Of Crohns & Colitis
JF - Journal Of Crohns & Colitis
IS - 3
ER -