Identifying barriers to help-seeking for non-motor symptoms in people with Parkinson’s disease

C. S. Hurt; Lorna Rixon; Kallol Ray Chaudhuri; Rona Moss-Morris; Michael Samuel; Richard Gerard Brown

doi:10.1177/1359105316683239

Identifying barriers to help-seeking for non-motor symptoms in people with Parkinson’s disease

C. S. Hurt, Lorna Rixon, Kallol Ray Chaudhuri, Rona Moss-Morris, Michael Samuel, Richard Gerard Brown

Research output: Contribution to journal › Article › peer-review

19 Citations (Scopus)

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Abstract

Non-motor symptoms of Parkinson’s disease have a significant impact on quality of life. Despite this, many non-motor symptoms remain unreported by patients and consequently untreated. This study explored barriers to help-seeking using two theoretical frameworks, the Common Sense Model of illness perception and Theoretical Domains Framework. A total of 20 participants completed semi-structured interviews to explore symptom beliefs and help-seeking behaviour. Uncertainty about the relationship of non-motor symptoms to Parkinson’s disease and lack of clarity around treatments were common. Embarrassment and communication difficulties were common for potentially sensitive symptoms such as sexual dysfunction. Symptom perceptions and beliefs about help-seeking acted as barriers to reporting non-motor symptoms.

Original language	English
Pages (from-to)	561-571
Number of pages	11
Journal	Journal of Health Psychology
Volume	24
Issue number	5
Early online date	1 Dec 2016
DOIs	https://doi.org/10.1177/1359105316683239
Publication status	Published - 1 Apr 2019

Keywords

beliefs
chronic illness
health behaviour
health psychology
illness perceptions
theories

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10.1177/1359105316683239

Identifying barriers to help seeking_HURT_Accepted16Nov2016_GREEN AAMAccepted author manuscript, 532 KB

Cite this

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Identifying barriers to help-seeking for non-motor symptoms in people with Parkinson’s disease

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