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Identifying barriers to help-seeking for non-motor symptoms in people with Parkinson’s disease

Research output: Contribution to journalArticle

C. S. Hurt, Lorna Rixon, Kallol Ray Chaudhuri, Rona Moss-Morris, Michael Samuel, Richard Gerard Brown

Original languageEnglish
Pages (from-to)561-571
Number of pages11
JournalJournal of Health Psychology
Volume24
Issue number5
Early online date1 Dec 2016
DOIs
Publication statusPublished - 1 Apr 2019

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Abstract

Non-motor symptoms of Parkinson’s disease have a significant impact on quality of life. Despite this, many non-motor symptoms remain unreported by patients and consequently untreated. This study explored barriers to help-seeking using two theoretical frameworks, the Common Sense Model of illness perception and Theoretical Domains Framework. A total of 20 participants completed semi-structured interviews to explore symptom beliefs and help-seeking behaviour. Uncertainty about the relationship of non-motor symptoms to Parkinson’s disease and lack of clarity around treatments were common. Embarrassment and communication difficulties were common for potentially sensitive symptoms such as sexual dysfunction. Symptom perceptions and beliefs about help-seeking acted as barriers to reporting non-motor symptoms.

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