Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and barriers

Bárbara Antunes; Stephen Barclay; Isla Kuhn; Kathy Eagar; Claudia Bausewein; Fliss Murtagh; Simon Etkind; Ben Bowers; Sarah Dixon; Roberta Lovick; Richard Harding; Irene Higginson; Farhad Shokraneh

doi:10.12688/f1000research.131479.1

Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and barriers

Bárbara Antunes, Stephen Barclay, Isla Kuhn, Kathy Eagar, Claudia Bausewein, Fliss Murtagh, Simon Etkind, Ben Bowers, Sarah Dixon, Roberta Lovick, Richard Harding, Irene Higginson, Farhad Shokraneh^*

^*Corresponding author for this work

Research output: Contribution to journal › Review article › peer-review

Abstract

Background: Despite the development of patient-centred or patient-reported outcome measures (PCOMs or PROMs) in palliative and end-of-life care over recent years, their routine use in practice faces continuing challenges. Objective: To update a highly cited literature review, identify and synthesise new evidence on facilitators, barriers, lessons learned, PCOMs used, models of implementation, implementation outcomes, costs, and consequences of implementing PCOMs in palliative care clinical practice. Methods: We will search MEDLINE, PsycINFO, CINAHL, Embase, Emcare, SCI-Expanded, SSCI, ESCI, and BNI. The database search will be supplemented by a list of studies from the expert advisory committee, hand-searching of reference lists for included articles, and citations of the original review. We will include primary studies using a PCOM during clinical care of adult patients with advanced disease in palliative care settings and extract data on reported models of implementation, PCOMs, facilitators, barriers, lessons learned, costs, and implementation outcomes. Gough’s Weight of Evidence Framework will be used to assess the robustness and relevance of the studies. We will narratively synthesise and tabulate the findings. This review will follow PRISMA, PRISMA-Abstract, PRISMA-P, and PRISMA-Search as the reporting guidelines. Source of funding: Marie Curie. The funder is not involved in designing or conducting this study.

Original language	English
Article number	224
Journal	F1000Research
Volume	12
DOIs	https://doi.org/10.12688/f1000research.131479.1
Publication status	Published - 28 Feb 2023

Keywords

Patient-centred outcome measurement; patient-reported outcome measurement; palliative care; systematic reviews; implementation; barriers; facilitators

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10.12688/f1000research.131479.1

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Antunes, B., Barclay, S., Kuhn, I., Eagar, K., Bausewein, C., Murtagh, F., Etkind, S., Bowers, B., Dixon, S., Lovick, R., Harding, R., Higginson, I., & Shokraneh, F. (2023). Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and barriers. F1000Research, 12, Article 224. https://doi.org/10.12688/f1000research.131479.1

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title = "Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and barriers",

abstract = "Background: Despite the development of patient-centred or patient-reported outcome measures (PCOMs or PROMs) in palliative and end-of-life care over recent years, their routine use in practice faces continuing challenges. Objective: To update a highly cited literature review, identify and synthesise new evidence on facilitators, barriers, lessons learned, PCOMs used, models of implementation, implementation outcomes, costs, and consequences of implementing PCOMs in palliative care clinical practice. Methods: We will search MEDLINE, PsycINFO, CINAHL, Embase, Emcare, SCI-Expanded, SSCI, ESCI, and BNI. The database search will be supplemented by a list of studies from the expert advisory committee, hand-searching of reference lists for included articles, and citations of the original review. We will include primary studies using a PCOM during clinical care of adult patients with advanced disease in palliative care settings and extract data on reported models of implementation, PCOMs, facilitators, barriers, lessons learned, costs, and implementation outcomes. Gough{\textquoteright}s Weight of Evidence Framework will be used to assess the robustness and relevance of the studies. We will narratively synthesise and tabulate the findings. This review will follow PRISMA, PRISMA-Abstract, PRISMA-P, and PRISMA-Search as the reporting guidelines. Source of funding: Marie Curie. The funder is not involved in designing or conducting this study.",

keywords = "Patient-centred outcome measurement; patient-reported outcome measurement; palliative care; systematic reviews; implementation; barriers; facilitators",

author = "B{\'a}rbara Antunes and Stephen Barclay and Isla Kuhn and Kathy Eagar and Claudia Bausewein and Fliss Murtagh and Simon Etkind and Ben Bowers and Sarah Dixon and Roberta Lovick and Richard Harding and Irene Higginson and Farhad Shokraneh",

note = "Funding Information: The authors disclosed receipt of the following financial support for research, authorship, and/or publication of this article: FS is funded by Marie Curie Research Grants Scheme Grant 2021. SB is partly funded, and BA is fully funded by the National Institute for Health Research (NIHR) Applied Research Collaboration East of England (ARC EoE) programme. The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care. Publisher Copyright: Copyright: {\textcopyright} 2023 Antunes B et al.",

year = "2023",

month = feb,

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doi = "10.12688/f1000research.131479.1",

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Antunes, B, Barclay, S, Kuhn, I, Eagar, K, Bausewein, C, Murtagh, F, Etkind, S, Bowers, B, Dixon, S, Lovick, R, Harding, R , Higginson, I & Shokraneh, F 2023, 'Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and barriers', F1000Research, vol. 12, 224. https://doi.org/10.12688/f1000research.131479.1

TY - JOUR

T1 - Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM)

T2 - Protocol for an update systematic review of facilitators and barriers

AU - Antunes, Bárbara

AU - Barclay, Stephen

AU - Kuhn, Isla

AU - Eagar, Kathy

AU - Bausewein, Claudia

AU - Murtagh, Fliss

AU - Etkind, Simon

AU - Bowers, Ben

AU - Dixon, Sarah

AU - Lovick, Roberta

AU - Harding, Richard

AU - Higginson, Irene

AU - Shokraneh, Farhad

N1 - Funding Information: The authors disclosed receipt of the following financial support for research, authorship, and/or publication of this article: FS is funded by Marie Curie Research Grants Scheme Grant 2021. SB is partly funded, and BA is fully funded by the National Institute for Health Research (NIHR) Applied Research Collaboration East of England (ARC EoE) programme. The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care. Publisher Copyright: Copyright: © 2023 Antunes B et al.

PY - 2023/2/28

Y1 - 2023/2/28

N2 - Background: Despite the development of patient-centred or patient-reported outcome measures (PCOMs or PROMs) in palliative and end-of-life care over recent years, their routine use in practice faces continuing challenges. Objective: To update a highly cited literature review, identify and synthesise new evidence on facilitators, barriers, lessons learned, PCOMs used, models of implementation, implementation outcomes, costs, and consequences of implementing PCOMs in palliative care clinical practice. Methods: We will search MEDLINE, PsycINFO, CINAHL, Embase, Emcare, SCI-Expanded, SSCI, ESCI, and BNI. The database search will be supplemented by a list of studies from the expert advisory committee, hand-searching of reference lists for included articles, and citations of the original review. We will include primary studies using a PCOM during clinical care of adult patients with advanced disease in palliative care settings and extract data on reported models of implementation, PCOMs, facilitators, barriers, lessons learned, costs, and implementation outcomes. Gough’s Weight of Evidence Framework will be used to assess the robustness and relevance of the studies. We will narratively synthesise and tabulate the findings. This review will follow PRISMA, PRISMA-Abstract, PRISMA-P, and PRISMA-Search as the reporting guidelines. Source of funding: Marie Curie. The funder is not involved in designing or conducting this study.

AB - Background: Despite the development of patient-centred or patient-reported outcome measures (PCOMs or PROMs) in palliative and end-of-life care over recent years, their routine use in practice faces continuing challenges. Objective: To update a highly cited literature review, identify and synthesise new evidence on facilitators, barriers, lessons learned, PCOMs used, models of implementation, implementation outcomes, costs, and consequences of implementing PCOMs in palliative care clinical practice. Methods: We will search MEDLINE, PsycINFO, CINAHL, Embase, Emcare, SCI-Expanded, SSCI, ESCI, and BNI. The database search will be supplemented by a list of studies from the expert advisory committee, hand-searching of reference lists for included articles, and citations of the original review. We will include primary studies using a PCOM during clinical care of adult patients with advanced disease in palliative care settings and extract data on reported models of implementation, PCOMs, facilitators, barriers, lessons learned, costs, and implementation outcomes. Gough’s Weight of Evidence Framework will be used to assess the robustness and relevance of the studies. We will narratively synthesise and tabulate the findings. This review will follow PRISMA, PRISMA-Abstract, PRISMA-P, and PRISMA-Search as the reporting guidelines. Source of funding: Marie Curie. The funder is not involved in designing or conducting this study.

KW - Patient-centred outcome measurement; patient-reported outcome measurement; palliative care; systematic reviews; implementation; barriers; facilitators

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DO - 10.12688/f1000research.131479.1

M3 - Review article

AN - SCOPUS:85152898840

SN - 2046-1402

VL - 12

JO - F1000Research

JF - F1000Research

M1 - 224

ER -

Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and barriers

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