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Improving the experience of dementia and enhancing active life - living well with dementia: Study protocol for the IDEAL study

Research output: Contribution to journalArticle

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Improving the experience of dementia and enhancing active life - living well with dementia : Study protocol for the IDEAL study. / Clare, Linda; Nelis, Sharon M.; Quinn, Catherine; Martyr, Anthony; Henderson, Catherine; Hindle, John V.; Jones, Ian R.; Jones, Roy W.; Knapp, Martin; Kopelman, Michael D.; Morris, Robin G.; Pickett, James A.; Rusted, Jennifer M.; Savitch, Nada M.; Thom, Jeanette M.; Victor, Christina R.

In: Health and Quality of Life Outcomes, Vol. 12, No. 1, 164, 30.11.2014, p. 1-15.

Research output: Contribution to journalArticle

Harvard

Clare, L, Nelis, SM, Quinn, C, Martyr, A, Henderson, C, Hindle, JV, Jones, IR, Jones, RW, Knapp, M, Kopelman, MD, Morris, RG, Pickett, JA, Rusted, JM, Savitch, NM, Thom, JM & Victor, CR 2014, 'Improving the experience of dementia and enhancing active life - living well with dementia: Study protocol for the IDEAL study', Health and Quality of Life Outcomes, vol. 12, no. 1, 164, pp. 1-15. https://doi.org/10.1186/s12955-014-0164-6

APA

Clare, L., Nelis, S. M., Quinn, C., Martyr, A., Henderson, C., Hindle, J. V., ... Victor, C. R. (2014). Improving the experience of dementia and enhancing active life - living well with dementia: Study protocol for the IDEAL study. Health and Quality of Life Outcomes, 12(1), 1-15. [164]. https://doi.org/10.1186/s12955-014-0164-6

Vancouver

Clare L, Nelis SM, Quinn C, Martyr A, Henderson C, Hindle JV et al. Improving the experience of dementia and enhancing active life - living well with dementia: Study protocol for the IDEAL study. Health and Quality of Life Outcomes. 2014 Nov 30;12(1):1-15. 164. https://doi.org/10.1186/s12955-014-0164-6

Author

Clare, Linda ; Nelis, Sharon M. ; Quinn, Catherine ; Martyr, Anthony ; Henderson, Catherine ; Hindle, John V. ; Jones, Ian R. ; Jones, Roy W. ; Knapp, Martin ; Kopelman, Michael D. ; Morris, Robin G. ; Pickett, James A. ; Rusted, Jennifer M. ; Savitch, Nada M. ; Thom, Jeanette M. ; Victor, Christina R. / Improving the experience of dementia and enhancing active life - living well with dementia : Study protocol for the IDEAL study. In: Health and Quality of Life Outcomes. 2014 ; Vol. 12, No. 1. pp. 1-15.

Bibtex Download

@article{ffd24dcc8c464f899c12ea0472ceff9b,
title = "Improving the experience of dementia and enhancing active life - living well with dementia: Study protocol for the IDEAL study",
abstract = "BackgroundEnabling people with dementia and carers to ‘live well’ with the condition is a key United Kingdom policy objective. The aim of this project is to identify what helps people to live well or makes it difficult to live well in the context of having dementia or caring for a person with dementia, and to understand what ‘living well’ means from the perspective of people with dementia and carers.Methods/DesignOver a two-year period, 1500 people with early-stage dementia throughout Great Britain will be recruited to the study, together with a carer wherever possible. All the participants will be visited at home initially and again 12 months and 24 months later. This will provide information about the way in which well-being, life satisfaction and quality of life are affected by social capitals, assets and resources, the challenges posed by dementia, and the ways in which people adjust to and cope with these challenges. A smaller group will be interviewed in more depth.DiscussionThe findings will lead to recommendations about what can be done by individuals, communities, health and social care practitioners, care providers and policy-makers to improve the likelihood of living well with dementia.",
keywords = "Alzheimer's disease, Carer, Fronto-temporal dementia, Lewy body dementia, life satisfaction, Parkinson's disease dementia, Person with dementia, Quality of life, Vascular dementia, Well-being",
author = "Linda Clare and Nelis, {Sharon M.} and Catherine Quinn and Anthony Martyr and Catherine Henderson and Hindle, {John V.} and Jones, {Ian R.} and Jones, {Roy W.} and Martin Knapp and Kopelman, {Michael D.} and Morris, {Robin G.} and Pickett, {James A.} and Rusted, {Jennifer M.} and Savitch, {Nada M.} and Thom, {Jeanette M.} and Victor, {Christina R.}",
year = "2014",
month = "11",
day = "30",
doi = "10.1186/s12955-014-0164-6",
language = "English",
volume = "12",
pages = "1--15",
journal = "Health and Quality of Life Outcomes",
issn = "1477-7525",
number = "1",

}

RIS (suitable for import to EndNote) Download

TY - JOUR

T1 - Improving the experience of dementia and enhancing active life - living well with dementia

T2 - Study protocol for the IDEAL study

AU - Clare, Linda

AU - Nelis, Sharon M.

AU - Quinn, Catherine

AU - Martyr, Anthony

AU - Henderson, Catherine

AU - Hindle, John V.

AU - Jones, Ian R.

AU - Jones, Roy W.

AU - Knapp, Martin

AU - Kopelman, Michael D.

AU - Morris, Robin G.

AU - Pickett, James A.

AU - Rusted, Jennifer M.

AU - Savitch, Nada M.

AU - Thom, Jeanette M.

AU - Victor, Christina R.

PY - 2014/11/30

Y1 - 2014/11/30

N2 - BackgroundEnabling people with dementia and carers to ‘live well’ with the condition is a key United Kingdom policy objective. The aim of this project is to identify what helps people to live well or makes it difficult to live well in the context of having dementia or caring for a person with dementia, and to understand what ‘living well’ means from the perspective of people with dementia and carers.Methods/DesignOver a two-year period, 1500 people with early-stage dementia throughout Great Britain will be recruited to the study, together with a carer wherever possible. All the participants will be visited at home initially and again 12 months and 24 months later. This will provide information about the way in which well-being, life satisfaction and quality of life are affected by social capitals, assets and resources, the challenges posed by dementia, and the ways in which people adjust to and cope with these challenges. A smaller group will be interviewed in more depth.DiscussionThe findings will lead to recommendations about what can be done by individuals, communities, health and social care practitioners, care providers and policy-makers to improve the likelihood of living well with dementia.

AB - BackgroundEnabling people with dementia and carers to ‘live well’ with the condition is a key United Kingdom policy objective. The aim of this project is to identify what helps people to live well or makes it difficult to live well in the context of having dementia or caring for a person with dementia, and to understand what ‘living well’ means from the perspective of people with dementia and carers.Methods/DesignOver a two-year period, 1500 people with early-stage dementia throughout Great Britain will be recruited to the study, together with a carer wherever possible. All the participants will be visited at home initially and again 12 months and 24 months later. This will provide information about the way in which well-being, life satisfaction and quality of life are affected by social capitals, assets and resources, the challenges posed by dementia, and the ways in which people adjust to and cope with these challenges. A smaller group will be interviewed in more depth.DiscussionThe findings will lead to recommendations about what can be done by individuals, communities, health and social care practitioners, care providers and policy-makers to improve the likelihood of living well with dementia.

KW - Alzheimer's disease

KW - Carer

KW - Fronto-temporal dementia

KW - Lewy body dementia

KW - life satisfaction

KW - Parkinson's disease dementia

KW - Person with dementia

KW - Quality of life

KW - Vascular dementia

KW - Well-being

UR - http://www.scopus.com/inward/record.url?scp=84930654173&partnerID=8YFLogxK

U2 - 10.1186/s12955-014-0164-6

DO - 10.1186/s12955-014-0164-6

M3 - Article

AN - SCOPUS:84930654173

VL - 12

SP - 1

EP - 15

JO - Health and Quality of Life Outcomes

JF - Health and Quality of Life Outcomes

SN - 1477-7525

IS - 1

M1 - 164

ER -

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