In response to Ballantyne and Schaefer's 'Consent and the ethical duty to participate in health data research'

Nilay Hepgul; Katherine E Sleeman; Alice M Firth; Anna Johnston; James T H Teo; William Bernal; Richard J B Dobson; Irene J Higginson

doi:10.1136/medethics-2018-105271

In response to Ballantyne and Schaefer's 'Consent and the ethical duty to participate in health data research'

Nilay Hepgul, Katherine E Sleeman, Alice M Firth, Anna Johnston, James T H Teo, William Bernal, Richard J B Dobson, Irene J Higginson

Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, King's College London, Cicely Saunders Institute, Department of Palliative Care, Policy & Rehabilitation, London, UK; 0International Children's Palliative Care Network (ICPCN), Bristol, UK.
GSTT Guy's and St Thomas' NHS Foundation Trust
King's College London

Research output: Contribution to journal › Review article › peer-review

4 Citations (Scopus)

Abstract

We welcome Ballantyne & Schaefer's discussion of the issues concerning consent and use of health data for research. In response to their acknowledgement of the need for public debate and discussion, we provide evidence from our own public consultation on this topic.

Original language	English
Pages (from-to)	351-352
Number of pages	2
Journal	Journal of Medical Ethics
Volume	45
Issue number	5
Early online date	7 Jan 2019
DOIs	https://doi.org/10.1136/medethics-2018-105271
Publication status	Published - 1 May 2019

Keywords

confidentiality/privacy
information technology
informed consent
patient perspective
research ethics

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1136/medethics-2018-105271Licence: CC BY-NC

Cite this

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AU - Johnston, Anna

AU - Teo, James T H

AU - Bernal, William

AU - Dobson, Richard J B

AU - Higginson, Irene J

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In response to Ballantyne and Schaefer's 'Consent and the ethical duty to participate in health data research'

Abstract

Keywords

UN SDGs

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