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Learning about Type 1 diabetes and learning to live with it when diagnosed in adulthood: two distinct but inter‐related psychological processes of adaptation A qualitative longitudinal study

Research output: Contribution to journalArticle

Original languageEnglish
Pages (from-to)742-752
JournalDiabetic Medicine
Volume36
Issue number6
Early online date17 Oct 2018
DOIs
Accepted/In press14 Sep 2018
E-pub ahead of print17 Oct 2018
PublishedJun 2019

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King's Authors

Abstract

Aim

To explore the experiences of adults with newly diagnosed Type 1 diabetes in order to understand the adaptive processes that occur in the early phase of the condition.

Methods

We conducted longitudinal semi‐structured interviews with 30 adults newly diagnosed with Type 1 diabetes (age range 20–67 years; 16 men; median diabetes duration 23.5 months), recruited from hospitals in Denmark and the UK. The data were analysed using a narrative approach.

Results
The narratives could be grouped into three thematic areas: the diagnosis; learning about diabetes; and learning to live with diabetes. Diabetes was characterized as a major disruptor to the established and future life plans of participants, causing significant emotional distress. The narratives showed how early experiences triggered the development of ongoing psychological problems (fear of complications or hypoglycaemia) and diabetes distress, and that navigating different social scenarios (relationships and employment) could be challenging, leading to suboptimal self‐management behaviours. The narratives also showed that health professionals often did not attend effectively to participants’ emotional needs after diagnosis, and that the language used frequently triggered negative feelings, such as fear or a sense of failure.

Conclusions
Many of the common psychosocial problems associated with Type 1 diabetes seem to gestate in the early phase of life with the condition. There appear to be opportunities to enhance the support provided in this phase to minimize these problems.

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