Longitudinal Predictors of Informant-Rated Involvement of People with Dementia in Everyday Decision-Making: Findings from the IDEAL Program

TY - JOUR

T1 - Longitudinal Predictors of Informant-Rated Involvement of People with Dementia in Everyday Decision-Making: Findings from the IDEAL Program

AU - behalf of the IDEAL study team

AU - Sabatini, Serena

AU - Martyr, Anthony

AU - Gamble, Laura D

AU - Collins, Rachel

AU - Matthews, Fiona E

AU - Morris, Robin G

AU - Rusted, Jennifer M

AU - Pentecost, Claire

AU - Quinn, Catherine

AU - Clare, Linda

PY - 2022/10/4

Y1 - 2022/10/4

N2 - The extent to which people with dementia are involved in everyday decision-making is unclear. We explored informant-rated involvement of people with dementia in everyday decision-making over 2 years and whether functional, behavioral, and psychological factors related to the person with dementia and the caregiver explain variability in involvement of people with dementia in everyday decision-making. We used IDEAL data for 1182 people with dementia and their caregivers. Baseline mean score on the decision-making involvement scale was 31/45; it minimally declined over time. People with dementia who were female, single, and/or whose caregiver was younger had greater involvement in everyday decision-making than those without these characteristics. Better cognition, fewer functional difficulties, fewer neuropsychiatric symptoms, less caregiver stress, and better informant-rated relationship quality were associated with higher involvement in everyday decision-making. Cognitive and functional rehabilitation, and educational resources for caregivers, could prolong involvement of people with dementia in everyday decision-making.

AB - The extent to which people with dementia are involved in everyday decision-making is unclear. We explored informant-rated involvement of people with dementia in everyday decision-making over 2 years and whether functional, behavioral, and psychological factors related to the person with dementia and the caregiver explain variability in involvement of people with dementia in everyday decision-making. We used IDEAL data for 1182 people with dementia and their caregivers. Baseline mean score on the decision-making involvement scale was 31/45; it minimally declined over time. People with dementia who were female, single, and/or whose caregiver was younger had greater involvement in everyday decision-making than those without these characteristics. Better cognition, fewer functional difficulties, fewer neuropsychiatric symptoms, less caregiver stress, and better informant-rated relationship quality were associated with higher involvement in everyday decision-making. Cognitive and functional rehabilitation, and educational resources for caregivers, could prolong involvement of people with dementia in everyday decision-making.

KW - caregiving

KW - Alzheimer’s disease

KW - neuropsychiatric symptoms

KW - relationship quality

KW - caregiver stress

KW - functional ability

KW - cognitive capacity

U2 - 10.1177/07334648221128558

DO - 10.1177/07334648221128558

M3 - Article

C2 - 36193737

SN - 1552-4523

JO - Journal of applied gerontology : the official journal of the Southern Gerontological Society

JF - Journal of applied gerontology : the official journal of the Southern Gerontological Society

ER -