Managing fatigue after cancer treatment: Development of RESTORE, a web-based resource to support self-management

C. Foster*, L. Calman, C. Grimmett, M. Breckons, P. Cotterell, L. Yardley, J. Joseph, S. Hughes, R. Jones, C. Leonidou, J. Armes, L. Batehup, J. Corner, D. Fenlon, E. Lennan, C. Morris, A. Neylon, E. Ream, L. Turner, A. Richardson

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

19 Citations (Scopus)

Abstract

Objective: The aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment. 

Methods: A nine-step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web-based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention. 

Results: Key stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3-5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment. 

Conclusions: It is feasible to systematically 'co-create' an evidence-based and theory-driven web-based self-management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web-based intervention to support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted.

Original languageEnglish
Pages (from-to)940-949
Number of pages10
JournalPsycho-Oncology
Volume24
Issue number8
DOIs
Publication statusPublished - Aug 2015

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