Managing fatigue after cancer treatment: Development of RESTORE, a web-based resource to support self-management

TY - JOUR

T1 - Managing fatigue after cancer treatment

T2 - Development of RESTORE, a web-based resource to support self-management

AU - Foster, C.

AU - Calman, L.

AU - Grimmett, C.

AU - Breckons, M.

AU - Cotterell, P.

AU - Yardley, L.

AU - Joseph, J.

AU - Hughes, S.

AU - Jones, R.

AU - Leonidou, C.

AU - Armes, J.

AU - Batehup, L.

AU - Corner, J.

AU - Fenlon, D.

AU - Lennan, E.

AU - Morris, C.

AU - Neylon, A.

AU - Ream, E.

AU - Turner, L.

AU - Richardson, A.

PY - 2015/8

Y1 - 2015/8

N2 - Objective: The aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment. Methods: A nine-step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web-based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention. Results: Key stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3-5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment. Conclusions: It is feasible to systematically 'co-create' an evidence-based and theory-driven web-based self-management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web-based intervention to support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted.

AB - Objective: The aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment. Methods: A nine-step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web-based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention. Results: Key stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3-5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment. Conclusions: It is feasible to systematically 'co-create' an evidence-based and theory-driven web-based self-management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web-based intervention to support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted.

UR - http://www.scopus.com/inward/record.url?scp=84922653474&partnerID=8YFLogxK

U2 - 10.1002/pon.3747

DO - 10.1002/pon.3747

M3 - Article

SN - 1057-9249

VL - 24

SP - 940

EP - 949

JO - Psycho-Oncology

JF - Psycho-Oncology

IS - 8

ER -