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Measuring Awareness in People With Dementia: Results of a Systematic Scoping Review

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Measuring Awareness in People With Dementia : Results of a Systematic Scoping Review. / Alexander, Catherine M.; Martyr, Anthony; Savage, Sharon A.; Morris, Robin G.; Clare, Linda.

In: Journal of Geriatric Psychiatry and Neurology, Vol. 34, No. 5, 09.2021, p. 335-348.

Research output: Contribution to journalArticlepeer-review

Harvard

Alexander, CM, Martyr, A, Savage, SA, Morris, RG & Clare, L 2021, 'Measuring Awareness in People With Dementia: Results of a Systematic Scoping Review', Journal of Geriatric Psychiatry and Neurology, vol. 34, no. 5, pp. 335-348. https://doi.org/10.1177/0891988720924717

APA

Alexander, C. M., Martyr, A., Savage, S. A., Morris, R. G., & Clare, L. (2021). Measuring Awareness in People With Dementia: Results of a Systematic Scoping Review. Journal of Geriatric Psychiatry and Neurology, 34(5), 335-348. https://doi.org/10.1177/0891988720924717

Vancouver

Alexander CM, Martyr A, Savage SA, Morris RG, Clare L. Measuring Awareness in People With Dementia: Results of a Systematic Scoping Review. Journal of Geriatric Psychiatry and Neurology. 2021 Sep;34(5):335-348. https://doi.org/10.1177/0891988720924717

Author

Alexander, Catherine M. ; Martyr, Anthony ; Savage, Sharon A. ; Morris, Robin G. ; Clare, Linda. / Measuring Awareness in People With Dementia : Results of a Systematic Scoping Review. In: Journal of Geriatric Psychiatry and Neurology. 2021 ; Vol. 34, No. 5. pp. 335-348.

Bibtex Download

@article{97f0211bf6e948a2935cf1bebda24890,
title = "Measuring Awareness in People With Dementia: Results of a Systematic Scoping Review",
abstract = "Background: Awareness of the diagnosis or related changes in functioning varies in people with dementia (PwD), with implications for the well-being of PwD and their carers. Measuring awareness in a clinical setting could facilitate tailored support and optimize involvement in personal health and care decisions. This scoping review aimed to identify validated methods of assessing awareness in dementia and appraise their clinical utility. Method: A systematic search was conducted of English-language publications that measured awareness in PwD, in 6 electronic databases. Search terms included dement*, Alzheimer*, Pick disease, and awareness, unawareness, anosognosia, insight, denial, metacognit*, or discrepanc*. Results: We screened 30,634 articles, finding 345 articles that met our inclusion criteria. We identified 76 measures, most commonly using a discrepancy questionnaire comparing evaluations of function by PwD and an informant. There were 30 awareness measures developed and validated for use in dementia populations but few designed for general clinical use. Conclusions: Although we found a range of clinical indications for measuring awareness, there were few studies investigating clinical applications and few tools designed for clinical purposes. Further investigation and development of a person-centered tool could facilitate health and care choices in mild-to-moderate dementia.",
keywords = "Alzheimer, anosognosia, clinical tool, denial, insight, person-centered care",
author = "Alexander, {Catherine M.} and Anthony Martyr and Savage, {Sharon A.} and Morris, {Robin G.} and Linda Clare",
note = "Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by an Alzheimer{\textquoteright}s Society clinical training fellowship for CMA (grant number AS-CP-17-001). Publisher Copyright: {\textcopyright} The Author(s) 2020. Copyright: Copyright 2021 Elsevier B.V., All rights reserved.",
year = "2021",
month = sep,
doi = "10.1177/0891988720924717",
language = "English",
volume = "34",
pages = "335--348",
journal = "Journal of Geriatric Psychiatry and Neurology",
issn = "0891-9887",
publisher = "SAGE Publications Inc.",
number = "5",

}

RIS (suitable for import to EndNote) Download

TY - JOUR

T1 - Measuring Awareness in People With Dementia

T2 - Results of a Systematic Scoping Review

AU - Alexander, Catherine M.

AU - Martyr, Anthony

AU - Savage, Sharon A.

AU - Morris, Robin G.

AU - Clare, Linda

N1 - Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by an Alzheimer’s Society clinical training fellowship for CMA (grant number AS-CP-17-001). Publisher Copyright: © The Author(s) 2020. Copyright: Copyright 2021 Elsevier B.V., All rights reserved.

PY - 2021/9

Y1 - 2021/9

N2 - Background: Awareness of the diagnosis or related changes in functioning varies in people with dementia (PwD), with implications for the well-being of PwD and their carers. Measuring awareness in a clinical setting could facilitate tailored support and optimize involvement in personal health and care decisions. This scoping review aimed to identify validated methods of assessing awareness in dementia and appraise their clinical utility. Method: A systematic search was conducted of English-language publications that measured awareness in PwD, in 6 electronic databases. Search terms included dement*, Alzheimer*, Pick disease, and awareness, unawareness, anosognosia, insight, denial, metacognit*, or discrepanc*. Results: We screened 30,634 articles, finding 345 articles that met our inclusion criteria. We identified 76 measures, most commonly using a discrepancy questionnaire comparing evaluations of function by PwD and an informant. There were 30 awareness measures developed and validated for use in dementia populations but few designed for general clinical use. Conclusions: Although we found a range of clinical indications for measuring awareness, there were few studies investigating clinical applications and few tools designed for clinical purposes. Further investigation and development of a person-centered tool could facilitate health and care choices in mild-to-moderate dementia.

AB - Background: Awareness of the diagnosis or related changes in functioning varies in people with dementia (PwD), with implications for the well-being of PwD and their carers. Measuring awareness in a clinical setting could facilitate tailored support and optimize involvement in personal health and care decisions. This scoping review aimed to identify validated methods of assessing awareness in dementia and appraise their clinical utility. Method: A systematic search was conducted of English-language publications that measured awareness in PwD, in 6 electronic databases. Search terms included dement*, Alzheimer*, Pick disease, and awareness, unawareness, anosognosia, insight, denial, metacognit*, or discrepanc*. Results: We screened 30,634 articles, finding 345 articles that met our inclusion criteria. We identified 76 measures, most commonly using a discrepancy questionnaire comparing evaluations of function by PwD and an informant. There were 30 awareness measures developed and validated for use in dementia populations but few designed for general clinical use. Conclusions: Although we found a range of clinical indications for measuring awareness, there were few studies investigating clinical applications and few tools designed for clinical purposes. Further investigation and development of a person-centered tool could facilitate health and care choices in mild-to-moderate dementia.

KW - Alzheimer

KW - anosognosia

KW - clinical tool

KW - denial

KW - insight

KW - person-centered care

UR - http://www.scopus.com/inward/record.url?scp=85084609108&partnerID=8YFLogxK

U2 - 10.1177/0891988720924717

DO - 10.1177/0891988720924717

M3 - Article

C2 - 32400259

AN - SCOPUS:85084609108

VL - 34

SP - 335

EP - 348

JO - Journal of Geriatric Psychiatry and Neurology

JF - Journal of Geriatric Psychiatry and Neurology

SN - 0891-9887

IS - 5

ER -

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