King's College London

Research portal

Non tuberculous mycobacteria pulmonary disease: patients and clinicians working together to improve the evidence base for care

Research output: Contribution to journalArticlepeer-review

Marc Lipman, Heinke Kunst, Michael R. Loebinger, Heather J. Milburn, Michael King

Original languageEnglish
Pages (from-to)S73-S77
JournalINTERNATIONAL JOURNAL OF INFECTIOUS DISEASES
Volume113
DOIs
Accepted/In press2021
PublishedDec 2021

Bibliographical note

Publisher Copyright: © 2021 The Author(s) Copyright: Copyright 2021 Elsevier B.V., All rights reserved.

King's Authors

Abstract

Non-tuberculous mycobacterial pulmonary disease is on the rise globally. It is often missed, and causes significant morbidity and even mortality. Here, members of a clinical research network and a patient support group discuss some of the current key issues in NTM management. In addition to the need for research into epidemiology, immunology and treatment, we recommend greater use of patient and clinician networks to: (i) educate primary and secondary care clinicians to develop a high index of suspicion when investigating and treating at risk populations. (ii) promote a multidisciplinary team. (iii) promote shared patient-clinician decision making throughout care. (iv) incorporate use of patient self-report measures to assess progress and outcomes. (v) increase education of patients on their illness and its management. (vi) recruit patients into research projects and registries to improve the clinical evidence base. (vii) increase co-production of research with key stakeholders such as patients and their families, using expert patients and patient groups. (viii) understand more about the psychological, social and economic consequences of the disease.

View graph of relations

© 2020 King's College London | Strand | London WC2R 2LS | England | United Kingdom | Tel +44 (0)20 7836 5454