Out of Pocket Expenses in Obsessive Compulsive Disorder

TY - JOUR

T1 - Out of Pocket Expenses in Obsessive Compulsive Disorder

AU - Heslin, Margaret

AU - Gellatly, Judith

AU - Pedley, Rebecca

AU - Knopp-Hoffer, Jasmin

AU - Hardy, Gillian

AU - Arundel, Catherine

AU - Bee, Penny

AU - McMillan, Dean

AU - Peckham, Emily

AU - Gega, Lina

AU - Barkham, Michael

AU - Bower, Peter

AU - Gilbody, Simon

AU - Lovell, Karina

AU - Byford, Sarah

PY - 2022

Y1 - 2022

N2 - Background: Despite anecdotal evidence that the out of pocket costs of OCD can be substantial in some cases, there is no evidence on how many people they affect, or the magnitude of these costs.Aims: This paper explores the type and quantity of out of pocket expenses reported by a large sample of adults with OCD.Methods: Data on out of pocket expenses were collected from participants taking part in the OCTET multi-centre randomised controlled trial. Participants were aged 18+, meeting DSM-IV criteria for OCD, and scoring 16+ on the Yale Brown Obsessive Compulsive Scale. Individual-level resource use data including a description and estimated cost of out of pocket expenses were measured using an adapted version of the Adult Service Use Schedule (AD-SUS): a questionnaire used to collect data on resource use.Results: Forty-five percent (208/465) reported out of pocket expenses due to their OCD. The mean cost of out of pocket expenses was £19.19 per week (SD £27.56 SD), range £0.06–£224.00.Conclusions: Future economic evaluations involving participants with OCD should include out of pocket expenses, but careful consideration of alternative approaches to the collection and costing of this data is needed.

AB - Background: Despite anecdotal evidence that the out of pocket costs of OCD can be substantial in some cases, there is no evidence on how many people they affect, or the magnitude of these costs.Aims: This paper explores the type and quantity of out of pocket expenses reported by a large sample of adults with OCD.Methods: Data on out of pocket expenses were collected from participants taking part in the OCTET multi-centre randomised controlled trial. Participants were aged 18+, meeting DSM-IV criteria for OCD, and scoring 16+ on the Yale Brown Obsessive Compulsive Scale. Individual-level resource use data including a description and estimated cost of out of pocket expenses were measured using an adapted version of the Adult Service Use Schedule (AD-SUS): a questionnaire used to collect data on resource use.Results: Forty-five percent (208/465) reported out of pocket expenses due to their OCD. The mean cost of out of pocket expenses was £19.19 per week (SD £27.56 SD), range £0.06–£224.00.Conclusions: Future economic evaluations involving participants with OCD should include out of pocket expenses, but careful consideration of alternative approaches to the collection and costing of this data is needed.

U2 - 10.1080/09638237.2020.1755028

DO - 10.1080/09638237.2020.1755028

M3 - Article

SN - 0963-8237

JO - Journal of Mental Health

JF - Journal of Mental Health

ER -